Balancing #AddisonsDisease & raising awareness of the #RareDisease community. Assistant to Chumbe the cockapoo 🐶. Views my own.

England
Joined July 2010
People with adrenal insufficiency deserve safer adrenal crisis care. Adrenal crisis is a life-threatening emergency that needs a time-critical injection of hydrocortisone. Other life-threatening conditions have auto-injectors or pre-filled syringes. Adrenal crisis doesn’t. (1/3)
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Through our #ParaCPD we're delighted to have trained 937 paramedics, students & EMTs in 2025! Thank you @andcorn, we're so glad it has improved your ability to manage steroid dependency & adrenal crisis. Great teamwork @GiuliaBould! Sign up for 2026 👉addisonsdisease.org.uk/adshg…
Completed an excellent and very important training session yesterday. Thank you @AddisonsUK the training will make such an important and vital impact on my ability to treat patients with #addisons who find themselves in crisis. @GiuliaBould we are getting there!
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On #WorldPatientSafetyDay read our @RCPhysicians Medical Care Blog: Addison’s, adrenal insufficiency & patient safety. Patient safety involves mindset, systems & processes. We look at the challenges, new @NICEcomms guidance & steps for positive change. 👉 medicalcare.rcp.ac.uk/conten…
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🩺 @NHSGIRFT do incredibly important work & honoured to be part of it as we all try to improve support & ultimately reduce waiting times for clinicians & patients. #GIRFT Further Faster Endocrinology, thank you for inviting @AddisonsUK to speak. Medics - please use our QR codes!
Thank you to @NHSGIRFT for inviting us to speak at the Further Faster Endocrinology Speciality Meeting today, explaining the resources we have to support clinicians & patients. 🏥Please get in touch if we can support you & your endocrinology unit➡️ addisonsdisease.org.uk/adshg… #GIRFT
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A year on watching your best friend’s Mum’s surgery on TV is a very bizarre (and emotional 😢) experience. Thank you #SuperSurgeons for saving Tracy’s life and for all the Doctors and Nurses who continue to support her and her incredibly precious family 🤍
Meet the professionals pushing the boundaries of medicine every single day. Brand new Super Surgeons starts tonight at 9pm.
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Don’t be fooled by this sleepy dog, our #ECE2024 Patient’s Voice session is thrilling and all should attend 😂 Tomorrow (Sunday 12 May, 12:40 - 13:10 CEST), ECE Hub 2. 🎤 @AddisonsUK, @alexTLCsupport & Professor John Wass. 🗓️ Add to your calendar ➡️ ese-hormonesapps.m-anage.com…
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It's #NationalNappingDay - well there's a day those with Addison's & adrenal insufficiency can relate to! 💤 Before diagnosis 94% of people report overwhelming exhaustion & we describe it as tired in a way no amount of sleep (or power nap!) will fix. 🔗addisonsdisease.org.uk/diagn…
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In the ADSHG magazine we updated you on U-RHYTHM, a device measuring hormones levels, including cortisol. 🎬 Watch to see #URHYTHM in action with @staffordlightma, then visit our website to read “Behind the Research” with @HotmasUpton. ➡️ addisonsdisease.org.uk/blog/… @ultradian2020
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The work of @AddisonsUK is so important & this year the charity turns 40! My body had a rush on adrenal crises last year. Seeing the work your day job has in saving your own life is always an odd one. So please support, starting with #AddisonsDiseaseDay ➡️addisonsdisease.org.uk/event…
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Auntie time ✔️💕 Major Twitter/X v.s. reality as illness came for us 🤦🏻‍♀️ But so precious to see my nephew turn 4 🎂 and short but sweet time on the gorgeous Northumberland coast 🏖️ Shoutout to Chumbe for being the main attraction 🐶🧡
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My amazing Aunt ♥️ So incredibly lucky to have such supportive loving family and friends. Thank you to everyone who donated and cheered her on!
Thank You Alison! Alison has completed her 2-month hike along the South West Coast Path to fundraise in aid of the ADSHG 🥾 She is supporting the ADSHG as her niece, our very own Pippa, has Addison's 💜 #TeamAddisons ✨ To donate, please visit 🔗 justgiving.com/page/alison-s…
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We start our 2023 AGM #AddisonsQA with a round up of the last 12 months by @PhilippaSh_. From our free @rcgp module, paramedic work, @wren_project listening project - we have lots to share with our fantastic community. Thank you to all our members for your support of our work.
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Wishing for a cortisol sensor? 🤔 Important work to make this a reality is underway thanks to @ultradian2020 - a project by @HotmasUpton @ederzavala @staffordlightma @SMQB_UoB & @BristolUni. Thank you to all involved! Read more on @bbchealth @BBCScienceNews⤵️ (1/3)
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Early morning walks to avoid the heat 💚🐶
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We're still catching up on all your amazing #AddisonsDiseaseDay tweets & messages! Thank you to everyone who got involved. We're incredibly proud of our community & how we continue to work our way forward together. It's messages like @IAnsonC 👇that motivate & power our work💜
Replying to @AddisonsUK
@AddisonsUK Thank you & behold a very normal 11 year old now smashing life as a new Addisons expert 😉 #Barnaby #AddisonsDiseaseDay #talk #share #educate
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Philippa Sharman retweeted
To mark #AddisonsDiseaseDay, @PhilippaSh_, Digital Communications and Engagement Manager for @AddisonsUK, discusses how they support their community in living with a life-threatening rare condition and the role of the expert patient. 👉bit.ly/3MTA1rJ
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Thanks for having us @ESEndocrinology #ECE2023!
Thank you to everyone at #ECE2023 who joined our Patient's Voice session to learn more about adrenal crisis awareness. 💬If you have any q's for @lisashepherdcl1, @alexTLCsupport or ourselves please get in touch, we'd love to hear from you! Get in touch: addisonsdisease.org.uk/Event…
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My lovely Aunt will be taking on 56 days of walking, come rain or shine, to cover 630 miles (a total ascent equivalent to 4 Everests) for the best part of 2 months, all to fundraise for @AddisonsUK 🤍 She’s an amazing lady so if you can please support 👉justgiving.com/page/alison-s…
For #FundraiserFriday we are wishing good luck to Alison who is walking all 630 miles of the South West Coast Path in aid of our charity! Alison is walking in support of @PhilippaSh_ from the ADSHG 🌟‍ 💜 To donate, please visit 🔗 justgiving.com/page/alison-s… #TeamAddisons
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Early Christmas present from the family….festive FFP2 masks 😂😷 Bringing the holiday cheer to hospital appointments!
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Dog walking, the snow edition ❄️
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