2005 co-founder HSF Inc., San Diego, that NGO no longer lives. I-Human. Not pharma. Hasten Hidradenitis Suppurativa Research NOW! Speed = Distance / Time
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ALT Advocacy without democracy is marketing. My words, dream by copilot.
ALT Artist: Microsoft Copilot Prompter: Rob Howes, Human, I think. Graphic novel style, androgenous human in shower, blindfolded, playing pin the tail on the donkey.
ALT The Hidradenitis Suppurativa (HS) field has grown in fits, spits and bursts since 2009. The silence of Hidradenitis Suppurativa however, remains central on any arena you can imagine. We now have multiple organizations, overlapping initiatives, shifting leadership claims, evolving narratives, and a public record that doesn’t always align with how the story is told. For a disease community that deserves trust, accuracy, and stability, this fragmentation creates unnecessary confusion. It’s time for something different. A Forensic Transparency Engine for HS could help bring structure to the chaotic HS ecosystem ..It will only have one flaw, it cannot create history from nothing.
ALT DATE 2015 – 2017 CLIENT Abbvie SERVICES Social Media Social Advertising Influencer Campaign CHALLENGE Abbvie approached Indaba to create an online awareness group around Hidradenitis Suppurativa. SOLUTION Indaba developed a comprehensive strategy that included: Brand name, positioning, and development of all brand collateral Launch and management of social media campaign Influencer engagement campaign RESULTS Indaba developed, launched, and executed end-to-end marketing for HS Aware. As a direct result of the campaigns we’ve launched, we have driven the following results: The largest public HS support group in the world Exceeded all campaign goals by 5x The campaign was so successful, that HS Aware was rolled out as a non-profit group
![2007 December HSF San Diego News. Proposed Resolution for A National Hidradenitis Suppurativa awareness month. https://web.archive.org/web/20101203234543/http://hs-foundation.org/pdf/HSF_News_Dec07.pdf Karl Marx: "Hegel remarks somewhere[*] that all great world-historic facts and personages appear, so to speak, twice. He forgot to add: the first time as tragedy, the second time as farce." Karl Marx: "Men make their own history, but they do not make it as they please; they do not make it under self-selected circumstances, but under circumstances existing already, given and transmitted from the past. The tradition of all dead generations weighs like a nightmare on the brains of the living. And just as they seem to be occupied with revolutionizing themselves and things, creating something that did not exist before, precisely in such epochs of revolutionary crisis they anxiously conjure up the spirits of the past to their service..." https://www.marxists.org](https://pbs.twimg.com/media/HKqZIG0aYAAFhf0.jpg?name=orig)
ALT 2007 December HSF San Diego News. Proposed Resolution for A National Hidradenitis Suppurativa awareness month. https://web.archive.org/web/20101203234543/http://hs-foundation.org/pdf/HSF_News_Dec07.pdf Karl Marx: "Hegel remarks somewhere[*] that all great world-historic facts and personages appear, so to speak, twice. He forgot to add: the first time as tragedy, the second time as farce." Karl Marx: "Men make their own history, but they do not make it as they please; they do not make it under self-selected circumstances, but under circumstances existing already, given and transmitted from the past. The tradition of all dead generations weighs like a nightmare on the brains of the living. And just as they seem to be occupied with revolutionizing themselves and things, creating something that did not exist before, precisely in such epochs of revolutionary crisis they anxiously conjure up the spirits of the past to their service..." https://www.marxists.org
ALT 2009 HSF Inc. (San Diego) Second International Hidradenitis Suppurativa Research Symposium. Part-funded by the NIH. Funding awarded to Michelle Barlow, San Diego (founding President of HSF, Inc.) '2026 Internet Archive Screenshot: Fiscal Year 2009. NIH Reporter. Project Number 1R13AR056901-01 Contact PI/Project Leader BARLOW, MICHELLE. NIH part funds the Second International Hidradenitis Suppurativa Research Symposium. 1. NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN DISEASES $2,000 2. OFFICE OF THE DIRECTOR, NATIONAL INSTITUTES OF HEALTH $13,000 https://reporter.nih.gov/search/kFXFORYmMUykIjLLHyTDJA/project-details/7608817
