Advocating for & supporting Renal Patients in England since 2020. Helping lead the conversation for better care for the Renal community 💜

England, United Kingdom
Joined February 2021
Renal Patient Led Advisory Network retweeted
We thought we'd answer some of your most commonly asked questions ahead of #OrganDonationWeek next week. Confirming your decision on the NHS Organ Donor Register is the best thing you'll do today. #ODW25 #OrganDonation
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Renal Patient Led Advisory Network retweeted
🎧 It’s here! New episode of #DiaryOfAKidneyWarriorPodcast is LIVE. @ChristyMillarUK 's journey through CKD, advocacy, and empowerment. Listen now 👉🏽👉 kidneycareuk.org/get-support… Please RT or share with someone who needs this story. 💚 #CKD #KidneyWarrior #ChronicIllnessSupport
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Renal Patient Led Advisory Network retweeted
Christy is waiting for her third #KidneyTransplant, and as she waits she works on her podcast entitled 'Chronically Christy'. Having been through many surgeries, years of #dialysis and #transplants she hopes to help others on their #kidney journeys ❤️ facebook.com/share/15BVfMFvD…
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Renal Patient Led Advisory Network retweeted
Ahead of #InternationalNursesDay tomorrow Christy, who has had a #KidneyTransplant, says thank you to her renal nurses: “I’m still friends with my renal nurses nearly ten years post transplant. They saw me at my worst and my best. My transplant is failing, I hope they’re...1/4
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Renal Patient Led Advisory Network retweeted
Amazing turn out for such an early start for the North West! Exciting to see so many people enthusiastic about using PREM to drive imrovement @KidneyNW22 @kidneycareuk
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Renal Patient Led Advisory Network retweeted
BLOG: Fez is a patient advocate for those living with chronic kidney disease (#CKD) and has lived with it his whole life. He shares his experiences, the importance of early diagnosis & tackling health inequalities within underserved communities.​ 🔗ow.ly/g7jF50R13lO
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Renal Patient Led Advisory Network retweeted
📣 Our 2024 research grants are open for proposals aligned with our key priorities: transforming treatments, multiple health conditions️, health inequalities. 📅 Deadline: 5pm, Wed 24 April 2024 Learn more and apply now! 👇 bit.ly/3vdK3yZ
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Renal Patient Led Advisory Network retweeted
🏥🔍🖥️ E-JOURNAL OF THE WEEK 🖥️🔍🏥 Hemodialysis International is the must-have journal for nephrologists, nurses and technicians worldwide. Access today with your OpenAthens account 👉 bit.ly/3xg4rjB Please share with your colleagues!
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Renal Patient Led Advisory Network retweeted
A groundbreaking clinical trial, with input from a kidney patient in our lay advisory group, has demonstrated that fostamatinib can effectively decrease protein levels in the urine of individuals with advanced IgA nephropathy (IgAN). Learn more below 👇 bit.ly/48V8Wgw
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Renal Patient Led Advisory Network retweeted
On #worldkidneyday @Fezy shares his compelling life journey, filled with trials,setbacks,& triumphs. An undeniable testament to the strength of human spirit, Fez’s story serves as a beacon of hope for those in their darkest times. Out now on: kidneycareuk.org/get-support… @kidneycareuk
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Renal Patient Led Advisory Network retweeted
It’s all about you our renal nursing team North West. NWKN renal nurses event today Thankyou to all our attendees – at Huyton-with-Roby, England
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Renal Patient Led Advisory Network retweeted
What an inspiration so proud to have you are part of this workstream @ChristyMillarUK thank you so much for sharing your incredible and emotional journey. You inspire us all to continue to fight for quality patient centred care ❤️ looking forward to tomorrows podcast releases 😊
Unashamed plug for the wonderful @ChristyMillarUK’s Podcast.
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Renal Patient Led Advisory Network retweeted
Did you know in the UK, 7.2 million people have kidney disease & yet 1 million don't even know it!😯 Kidney disease is common, but awareness remains low. Help us make a difference by simply sharing this post. Find out more: worldkidneyday.co.uk/ #WorldKidneyDay
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Renal Patient Led Advisory Network retweeted
Chaos at Manchester Arndale as huge crowds gather and 'fireworks and alarms set off' manchestereveningnews.co.uk/…
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Great to see so many healthcare professionals, industry and patients coming together face to face; working in partnership to improve kidney services in the region. @KidneyNW22 @rdonne10 @RPLANNW #NWKidneys – at Stretton, England
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Up next @rdonne10 sharing #KQUIP at the @KidneyNW22 launch. We train and support and ensure patients are partners in QI through our methodology #10StepsInQI – at Stretton, England
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Renal Patient Led Advisory Network retweeted
Humbling and inspiring to hear @finnigr rollercoaster patient journey and his massive influence in improving lives for other renal patients. The network is so fortunate to have him as Patient Voice Manager @ThinkKidneys #NWKidneys
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Replying to @KidneyNW22
An emotional start to the North West Kidney Network Launch. Thank you to @SmeetaSinha for her compassionate, leadership and ensuring patient are central, maturing the network to its current state #NWKidneys – at Stretton, England
Renal Patient Led Advisory Network retweeted
We are launching our network today NWKN – at Stretton, England
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Renal Patient Led Advisory Network retweeted
Great start to the day listening to the amazing @finnigr speaking about his journey to becoming @KidneyNW22 Patient Voice Manager & how it’s come down to being in the right place at the right time. Hugely supportive & encouraging to so many other patients including myself!
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