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RaynaudsRF (@RaynaudsRf) profile picture

RaynaudsRF

@RaynaudsRf

Raynauds Unit @RoyalFreeNHS Tweets by Nicola Whitehill patient expert volunteer #RaynaudsFreeWorld https://xitter.gq/t.co/YCr9CXZY63

 London, England
blog.raynaudsscleroderma.co.uk/?m=1
Joined October 2017
  • Tweets2.2K
  • Following250
  • Followers312
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Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)Photo by RaynaudsRF (@RaynaudsRf)
Raynaud's Awareness youtube.com/watch?v=LwEMpz77… #RaynaudsFreeWorld #Research #Raynauds HUGE thanks to the #extraordinary team @RoyalFreeNHS @RoyalFreeChty @eurothermology
Image from RaynaudsRF (@RaynaudsRf)
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#RaynaudsAwarenessMonth blog.raynaudsscleroderma.co.… Huge thanks to Dr Kevin Howell and @LouKParker for their dedication and expertise raynaudsclinic.com royalfreecharity.org/donate #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #Raynauds #RareDisease #NoCure
Image from nicola whitehill (@cosmicfairy444)
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blog.raynaudsscleroderma.co.… #InvisibleDisabilitiesWeek #Fatigue royalfreecharity.org/donate select Scleroderma and Raynaud's royalfreecharity.org/giftsin… #SclerodermaFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #RareDisease #NoCure #UnknownCause #Exhaustion
Image from nicola whitehill (@cosmicfairy444)
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#InvisibleDisabilitiesWeek Medical research provides #HOPE royalfreecharity.org/donate Select Scleroderma and Raynaud's royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
Image from nicola whitehill (@cosmicfairy444)
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youtu.be/_GYIZ8Vh4EQ?is=WJUL… 'Keep researching, never stop, never' 1min 30secs @Worldsclerofnd Medical research provides #HOPE royalfreecharity.org/donate royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #NoCure
Docufilm " A Soul in Struggle" Tariler

Docufilm " A Soul in Struggle" Tariler

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

youtube.com
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'Keep researching, never stop, never' 1min 30secs 'Living with a rare disease without a cure, is most character building, that's for sure' : blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #NoCure
World Scleroderma Foundation (@Worldsclerofnd) profile pictureWorld Scleroderma Foundation@WorldsclerofndOct 21
🎬 A Soul in Struggle gives a voice to those living with systemic sclerosis, sharing their stories of courage, resilience and hope. From Venice, a powerful message of awareness. Watch the video and discover more! #IWSF #SystemicSclerosis #ASoulInStruggle
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#InvisibleDisabilitiesAwarenessWeek #Flashback 2017 blog.raynaudsscleroderma.co.… #RaynaudsAwarenessMonth If I had a £ for every time somebody said to me, "But you look so well" #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #NoCure #SystemicSclerosis #LifeChanging
Image from nicola whitehill (@cosmicfairy444)
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youtu.be/xLmGIpHvLgM?is=0bmN… What is Raynaud's phenomenon? Watch this comprehensive video to find out! #RaynaudsAwarenessMonth #RaynaudsFreeWorld #BePartOfResearch raynaudsclinic.com
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blog.raynaudsscleroderma.co.… #WorldArthritisDay RIP Anne Mawdsley 😇 royalfreecharity.org/donate Select Scleroderma and Raynaud's royalfreecharity.org/giftsin… Royal Free Charity provides a free Will writing service. I'm honoured to be @RoyalFreeNHS Visionary #SclerodermaFreeWorld #NoCure
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blog.raynaudsscleroderma.co.… #WorldMentalHealthDay royalfreecharity.org/donate Select Scleroderma and Raynaud's royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause
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blog.raynaudsscleroderma.co.… #RaynaudsAwarenessMonth royalfreecharity.org/donate Select Scleroderma and Raynaud's royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #Raynauds #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
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RaynaudsRF retweeted
Louise Parker (@LouKParker) profile picture
Louise Parker@LouKParkerOct 5
Delighted to have made it into the Mail on Sunday health pages yesterday! Thank you @MeikeLeonard for the interview. Let’s hope we can help more sufferers going into the winter months. raynaudsclinic.com
Image from Louise Parker (@LouKParker)
Image from Louise Parker (@LouKParker)
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Woweeee 13 years ago! Still no cure 😱 royalfreecharity.org/donate Scroll down until Scleroderma and Raynaud's option. Leave a gift in your Will : royalfreecharity.org/giftsin… I'm honoured to be a @RoyalFreeNHS Visionary. #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch
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October #RaynaudsAwarenessMonth raynaudsrf.blogspot.com/2019… My Raynaud's experience: blog.raynaudsscleroderma.co.… #RaynaudsFreeWorld #Research #Raynauds #BePartOfResearch #NoCure justgiving.com/fundraising/r… #Vasospasm #BlueFingers #BlueToes #Pain #DigitalUlcers #Gangrene #Amputation
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#WorldHeartDay royalfreecharity.org/donate Choose your amount, then click donate now. 'I'd like to donate to a specific appeal or fund' Scroll down until Scleroderma and Raynaud's option OR royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #PAH
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blog.raynaudsscleroderma.co.… Happy Autumnal Equinox to you 🍂 Autumn always provokes some nostalgic thoughts to when I was diagnosed with scleroderma, autumn 1997, and given a 15 month prognosis #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #SystemicSclerosis #Raynauds
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blog.raynaudsscleroderma.co.… Yesterday's fun: my annual MOT: ECHO, ECG and Lung Function Tests. #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
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13 years since coming out of scleroderma awareness closet #SclerodermaFreeWorld #BePartOfResearch blog.raynaudsscleroderma.co.… 'I'm the real-life Tin Man': Woman, 40, must bathe in oil and moisturise for three HOURS every day to prevent her body seizing up dailymail.com/health/article…
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sclerodermarf.blogspot.com/2… August #Gastroparesis Awareness Month royalfreecharity.org/get-inv… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
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Flashback 2018, Happy Birthday @NHSuk #ThankYou #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #NoCure #LifeChanging #ConnectiveTissue #RareDisease blog.raynaudsscleroderma.co.… @RoyalFreeNHS
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#SclerodermaAwarenessMonth 🌻 'Living with a rare disease without a cure, is most character building that's for sure'. royalfreecharity.org/stories… royalfreecharity.org/get-inv… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #SystemicSclerosis #Raynauds #RareDisease #NoCure
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