Establishing Effective Diagnostic Criteria for Lichen Sclerosus (SHELLS) The SHELLS study aims to improve the diagnosis of vulval lichen sclerosus
Nottingham
Joined July 2023
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SHELLS retweeted
WE WON! The LS Guide won an award for 'Communicating effectively with patients and families' at the Picker Experience Network National Awards last week. Our fabulous patient representative Clare Baumhauer @VulvalCancerUK also won for her individual patient contribution.
#PEN25
The Lichen Sclerosus Guide Won and so did I as patient contribution π₯³π₯³π₯³π₯³π₯³
lichensclerosusguide.org.uk/
What a great team we areβΊοΈ
SHELLS retweeted
BBC5 Live: That Time Of The Month: Spotlight on Lichen Sclerosis
bbc.co.uk/programmes/p0kqqx1β¦
Guess how many times we said βVulvaβ and βVaginaβ at lunchtime!??
We had such a massive response to this episode of That Time of the Month on BBC5 Live hosted by @TVNaga01 @DrEkechi and Me as we discussed everything about #lichensclerosus. We were joined by Clare Baumhauer founder of @LichenSclerosisUK & @VulvalCancerUK who shared her lived in experience
If anyone wants more information- here are list of trusted sources:
@WellbeingofWmen
wellbeingofwomen.org.uk/newsβ¦
Dedicated website in partnership with British Society of the Study of Vulval Disease, and the British Association of Dermatologists
lichensclerosusguide.org.uk/
@eveappeal
eveappeal.org.uk/tag/lichen-β¦
Click here to listen π§ to our episode ππ»
bbc.co.uk/programmes/p0kqqx1β¦
#WomensHealth #LichenSclerosus #TTOTM
Producer: @alisonacton
SHELLS retweeted
Ever wondered what happens to the skin in lichen sclerosus? Watch our video 'What is vulval lichen sclerosus?' vimeo.com/1044752540 and visit lichensclerosusguide.org.uk/β¦
SHELLS retweeted
Our Lichen Sclerosus Guide is now LIVE! It's an incredible resource for people with vulval LS and also for healthcare professionals who want to know more about how to diagnose and support people with this condition. Visit us at lichensclerosusguide.org.uk/
SHELLS retweeted
This Friday 17th January, World Lichen Sclerosus Awareness Day, we launch a brand new resource for people who have vulval lichen sclerosus (LS). The aim is to empower people living with LS to learn about the condition, access the right treatment, and live more comfortably.
SHELLS retweeted
This Friday 17th January, World Lichen Sclerosus Awareness Day, we launch a new resource for people who have vulval lichen sclerosus (LS), their loved ones, and health professionals who support them.
instagram.com/p/DEwmrqzN89z/β¦
SHELLS retweeted
ALT Well done to all our sites and the study team. 19 participants recruited so far in November.
SHELLS retweeted
To express interest & for more information please contact our research member: [email protected].
Thank you!
SHELLS retweeted
PEARLS is making great progress, reaching 40 participants now recruited! Well done to the 9 sites who have recruited their first participant!
SHELLS retweeted
Developing a checklist to allow accurate diagnosis of vulval lichen sclerosis. The @shells_study registered at #ISRCTN
isrctn.com/ISRCTN76946205
#clinicaltrials
SHELLS retweeted
1 in every 100 women in the UK suffers from Lichen Sclerosus, but its one of the most misunderstood female health conditions. Causing discomfort, scarring, and thin skin the condition does not have a cure but can be managed.
@PEARLS_Trial
SHELLS retweeted
We are excited to announce that PEARLS is now open to recruitment with 4 sites! Covering Surrey and Sussex Hospital, Liverpool Womenβs Hospital, Nottingham University Hospitals, and Oxleas NHS Foundation Trust!
SHELLS retweeted
Happy International Women's Day from the PEARLS Team! #IWD2024
A perfect day to share the news that the PEARLS trial has now received all approvals and is ready to start opening sites! ππ₯³
@nottingham_CTU @RosalindDerm @GynaeResearcher @NIHRresearch @VulvalCancerUK
SHELLS retweeted
We've partnered with Canesten to create Love Your Vulva - an interactive online platform designed to empower & educate people about vulvas.
It champions the message that #DifferentIsNormal by smashing stigma, busting myths, & boosting body confidence!
love-your-vulva.brook.org.uk
SHELLS retweeted
As itβs World Lichen Sclerosus Day β¬οΈ
Great resources
This is a area we know health professionals need more training and support in.
Great resources β¬οΈ
1~ eveappeal.org.uk/wp-content/β¦
2~ elearning.rcgp.org.uk/courseβ¦
3~ bjgp.org/content/73/730/234
4~ Short film youtube.com/watch?v=3ioDkJw0β¦
5~ independentnurse.co.uk/conteβ¦
6~ bssvd.org/wp-content/uploadsβ¦
SHELLS retweeted
It's #LSAwarenessDay so I'm reposting our short film that conveys the experience of living with LS. It's aimed at health professionals but informative for anyone wanting to understand the patient perspective. #LichenSclerosus #LichenSclerosusAwarenessDay #WomensHealth
The full film is here! tinyurl.com/LS-film
This short film was created based on the real words of people with vulval lichen sclerosus (LS), interviewed as part of the 'Living with vulval LS' study at the Universities of Bristol and Warwick
