
FTD advocate host of Talking FTD podcast, and a care partner to Rod with FTD. A subject matter expert witness for FTD and Co-Founder of @icare_advocacy
Georgia
Joined April 2009
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I have recently been accepted as a subject matter expert witness for frontotemporal dementia (FTD) my CV is available upon request for hearings on guardianship, conservatorship, custody, etc. when FTD is involved.
Sharon Hall retweeted
*****NEW VIDEO WATCH TURN SOUND UP!*****
I'm so sick of these slick, fake tough @ICEgov and @DHSgov videos that I made my own to show the truth.
Watch #IceClownShow
Sharon Hall retweeted
Today is the start of world FTD Awareness Week. Frontotemporal Dementia covers subtypes that include Behavioral Variant FTD where marked behavioral changes are the most prominent early symptom, and aphasic types where the ability to process communication is interrupted.
An excellent article about frontotemporal dementia
yahoo.com/news/articles/lost…?
Sharon Hall retweeted
Big news: @synapticure’s R&D team was just awarded a $2.5M SBIR grant from the @NINDStrials to expand our laboratory research!
➡️ vist.ly/3n623tz
Sharon Hall retweeted
Together, we can shine light on dementia, to dismantle stigma and build a community of understanding and support. Let's dismantle stigma together, and drive dementia justice. 💛 #webringlight#youngeronsetdementia #dementia #carer#100daysoflight
Sharon Hall retweeted
World FTD Awareness Week:
We highlight the Nunn Family, as they navigate this brave diagnosis with BvFTD
Today and every day we shine light on their journey and those diagnosed with younger-onset dementia
#earlyonsetdementia #FTDawarenessweek #WorldAlzheimersMonth
This amazing couple is helping all neurodegenerative diseases, including young onset dementia, have a better life. People living well is their goal, they truly care.
How cool was it to see I AM ALS represented on stage last night at the DNC? We’re so proud of the work this community is doing together. In case you missed it, you can watch Brian and Sandra’s remarks in full: youtube.com/watch?v=Qw4AD9Ds…
I am honored to be on the Steering Committee for Cures Collective as we move forward, united, to make neurodegenerative diseases being cured while helping families dealing with them today.
iamals.org/updates/i-am-als-…
Sharon Hall retweeted
At the ALS Community Summit, @ALSofGNY‘s Tiffany Card moderated an incredible panel on advocacy with FTD advocate @SRHall419 and ALS advocate Ronald Faretra. Watch the full panel recording: youtube.com/watch?v=hLlL0BHM…
Sharon Hall retweeted
I agree with those who say this video should go viral *every single day* until Americans go to the polls in November
You need to watch Senator Ossoff:
Sharon Hall retweeted
When I cast my vote for President Biden, I wasn't expecting much. I just wanted trump out of office.
I knew he was old.
I knew he had a stutter.
I knew he had a rep for "gaffes."
I didn't care. Just wanted trump gone.
Four years later, things are different.
I wasn't expecting that President Biden would be the most legislatively successful President in my lifetime.
I wasn't expecting him to help expand NATO.
I wasn't expecting him to lower insulin & inhalers.
I wasn't expecting him to create & recover 15m jobs.
I wasn't expecting him to bring manufacturing back.
I wasn't expecting him to forgive student debt.
But he did ALL those things, and more.
He surpassed my expectations by a lot.
And he has more planned for 2025-2028.
He's not a master orator,
He doesn't move so smoothly
But neither did FDR from his wheelchair.
Meanwhile, trump is STILL a threat.
He wants to be a dictator.
He wants to stay out of prison.
He wants revenge on his enemies.
He wants to take away from the poor and middle class and give to the ultra wealthy.
His Project 2025 will enable a national abortion ban to criminalize women seeking safe and legal abortions.
His Project 2025 will take away the rights of our LGBTQ family and friends.
His Project 2025 will transform the government into a loyalty pledge, not to America but to him ALONE.
We might never have another free election.
THAT is what is at stake in this election.
We can continue to progress with Biden policies, or we can let trump destroy democracy as we know it.
If you're looking for someone who's young and athletic, go watch a fucking movie.
I'll take the old guy who needs a nap while saving democracy over the old guy trying to overthrow democracy who needs a legal team.
Sharon Hall retweeted
BREAKING NEWS: I am freaking out with excitement to share that @noc_film will be streaming on @PrimeVideo May 28th!
Please share the trailer below with everyone so that, together, we can change the world. #ForLoveAndLife #NoOrdinaryCampaign
Sharon Hall retweeted
In 2020, one of the main reasons I voted for Joe Biden was because I wanted trump out of office.
PERIOD.
Don't get me wrong: I knew Joe was a good guy, and he had a ton of useful experience in politics as well as in the White House, but he wasn't my first choice, and I wasn't expecting much.
But NOW I'm voting for Biden in November mainly because he blew my expectations of him all the way out of the damn water.
He's already the most legislatively successful President in the modern era, having signed key consequential bills into law, like the Infrastructure bill, the PACT Act, the CHIPs Act, and the Inflation Reduction Act.
Now, millions of Americans have insulin capped at $35/month.
The infrastructure bill is so good that Republicans who voted against it are clamoring to take credit for the funds going into their states.
He recovered and created a total of 15 million jobs. The last time unemployment was under 4% this long, we put a man on the moon for the first time.
Here's a new one, that not a lot of people are talking about, but it's a BFD: if you've ever had a flight delayed for hours or canceled, or lost your luggage, you'll love this: automatic compensation, within 20 days, and you don't even have to spend hours on the phone to make it happen.
He's gone after bullshit junk fees that companies charge us, death by a thousand cuts of mystery, mounting fees.
I prefer my President to be hard-working, compassionate, intelligent, and thoughtful.
I prefer my President to respect our NATO alliances, and the role we play in the world.
I prefer my President to respect our fallen soldiers, and not to see them as "suckers and losers."
I prefer my President who wants to leave the world, and his office, in better shape than he found it.
I prefer President Biden. 🙏💪
I recently had the opportunity to share our diagnosis journey on a radio show. It is not all FTD, but I tell our journey at 20:40 ish in the video. It might help someone explain their own journey. I appreciate every opportunity to talk about FTD.
youtu.be/HWSv69J5IMY?si=L-PD…
Sharon Hall retweeted
#atriskalsftd #rarediseaseday The rare disease community , including ALS and FTD, needs support!
Hear Dr Bruce Miller answer FTD questions
roon.com/dementia/experts/dr…
Sharon Hall retweeted
LH brings community worldwide - from El Salvador to Washington . These two shared their journey, connected over moments of beauty and heartbreak and truly felt seen. Connecting with others on this journey brings hope and strength. Thank you Patti and Ila for sharing your light
Sharon Hall retweeted
It can be difficult to access #mentalhealth care when you need it. That’s where Synapticure comes in. Our psychologists are expertly trained to help families dealing with #neurodegenerative diseases navigate grief, build coping skills & find better ways to practice self-care.



















