Scientific Director at the Dravet Syndrome Foundation; PhD from CU-AMC. Views and opinions are my own. Science & advocacy with a splash of puppies and TheOffice
Johnson City, TN
Joined October 2016
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Veronica Hood retweeted
📢If you want to challenge yourself with an exciting gene therapy project for DEEs and join a fantastic, passionate and motivated team, do not hesitate to apply for this position.
Veronica Hood retweeted
2024 DSF Research Grant applications are now open!
We offer five grant categories! To find out more details about each grant category and apply today, visit bit.ly/3THkqP7!
Veronica Hood retweeted
Today, we honored our loved ones during our 3rd annual butterfly release at our Wings of Hope event. 🦋✨ Each butterfly represents a story of resiliency, love, and our collective hope for a cure.
#DSFConference #DravetSyndromeAwarenessMonth #CureDravet #DravetCommunity
Veronica Hood retweeted
Welcome to the 2024 DSF Family & Professional Conference! 🌟 Now that our setup is complete, we’re ready to embark on a journey of learning, sharing, and connecting with all of you.
Veronica Hood retweeted
The @CookChildrens art robot 🤖 #Spikelangelo is back at work today on another portrait for #DravetSyndrome Awareness month! Stay tuned to see the final product later today! @curedravet
Veronica Hood retweeted
At UCB, we understand the power of listening to and learning from patient communities to help us deliver better outcomes. This #PurpleDay2024, learn from rare #epilepsy leaders Karen and Veronica in our most recent episode of Raring to Listen.
Click to listen⬇#EpilepsyAwareness
Veronica Hood retweeted
Catastrophic neurological disorders in children are often caused by a single gene mutation. Most have no effective treatments, making it a huge unmet need. @hcmefford, MD, focuses on neurological diseases like epilepsy & works with PTNI to alter the landscape of these disorders.
Veronica Hood retweeted
This position is still open for US board certified epileptologists who want to care for people (adult+peds) with genetic forms of epilepsy. Strong clinical genetic support and research environment provided.
Please share‼️Our center for Neurogenetics, is jointly (adult Epilepsy & pediatric neurology) recruiting a neurologist with focus:
➡️ Exclusively genetic epilepsies 🧬
➡️ Peds 👦👧🏿 + adult 👩 👨🏽
➡️ Care 💊+ research 🧐 [academic + industry sponsored]
careers.uth.tmc.edu/us/en/jo…
Veronica Hood retweeted
Time is ticking... The #ILAE e-Forum: Optimal models of care during transition from childhood to adulthood is in 2 DAYS on 16 February at 14:30 UTC. Register now for free and gain access to the pre-reading materials: ilae.org/e-forum4.
#epilepsy #epilepsyeducation @yesILAE
ALT ILAE E-FORUM SERIES 2023 16 February 2024, 14:30 - 16:00 Optimal models of care during transition from childhood to adulthood 2 days to go!
Veronica Hood retweeted
"A comprehensive & innovative approach to reduce sudden death in patients with epilepsy.”
Our SUDEP & Seizure Safety Checklist is a simple tool that enables health professionals to have that conversation with patients about risk safety.
Find out more: sudep.org/checklist
Veronica Hood retweeted
Key point: "Discovery of SCN1A variants as genetic biomarkers for Dravet syndrome has aided diagnosis & may partly explain the higher number of articles identified for Dravet syndrome than Lennox–Gastaut syndrome."
Find this & more from @EpilepsiaJourn at p0.vresp.com/buWt6p.
ALT A systematic literature review on the global epidemiology of Dravet syndrome and Lennox–Gastaut syndrome: Prevalence, incidence, diagnosis, and mortality Joseph Sullivan, Arturo Benítez, Jeannine Roth, J. Scott Andrews, Drishti Shah, Emma Butcher, Aimee Jones, J. Helen Cross First published: 22 January 2024 Epilepsia ILAE
Veronica Hood retweeted
A heartfelt 💟Thank You💟 from #TeamDSF to each and every member of our incredible community. Your unwavering support, generous donations, and inspiring stories fuel our mission every day. 💜🦋 #dravet #dravetsyndrome
Veronica Hood retweeted
@curedravet kicked off the weekend at #AES2023 by bringing together researchers, physicians, advocates, & industry for their annual Research Roundtable, which focused on research projects the DSF has funded to address challenges associated with Dravet syndrome and other DEEs.
Veronica Hood retweeted
We greatly appreciate the funding support provided by @curedravet to work w/ @LoriLIsom1 on a new #MGE transplantation project in rabbits
dravetfoundation.org/dsf-ann…
Veronica Hood retweeted
Among patients without identified cause for their #epilepsy:
19% of clinicians would consider WGS ONLY for patients where TREATMENT options were available based on results
HEAR THIS 📣
Knowing the etiology of epilepsy AND
Connecting to a community of people with THAT etiology IS TREATMENT - it may be one of the most beneficial “precision treatments”!!
#AES2023
Veronica Hood retweeted
Caregivers play a vital role in the lives of those with #DravetSyndrome. Our recent collaboration with the Dravet Syndrome Foundation allowed us to better understand some of their challenges. We're committed to providing tailored solutions and support. #Community #EpilepsyVoices
Veronica Hood retweeted
Less than two weeks to go . . . excitement building here in the @BarabanLab as we prepare talks/posters on @Cronutt1, MGE, interneuron development, zebrafish behavior, C1qa mice and more. Not too late to come join us in scenic Park City Utah for @PCEM23
Veronica Hood retweeted
Tonight at the @curedravet #DoubleDown fundraiser my speech was about HOPE 💜
How can you not have HOPE when this many people come out to support your cause??
We’re closer than ever before to cures - this kind of support gets us there!! 🙏🏻
Veronica Hood retweeted
Registration is open! parkcityepilepsymeeting.com/
Veronica Hood retweeted
This was great fun for me to do! Real talk about #epilepsy - let’s just tackle the questions, resolve the mysteries - let’s #TalkAboutIt!
We talked about a lot more stuff and haven’t even scratched the surface!!!
In this new video, we talked to @TheNotoriousEEG about #DravetSyndrome. To learn more about Dravet, visit our friends at @curedravet. For more #epilepsy expert videos, go to TalkAboutItonVideo.com.