| Living with Lupus, Myositis, Raynauds, Scleroderma & Fibromyalgia | Writer | Editor | Love ALL Cats, Adore MY Dog
Nairobi, Kenya
Joined December 2008
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Living with Lupus can be hard, but it is not impossible. 💜💜💜💜💜 jmaruru.wordpress.com/2021/0… via @Sheblossoms
It's my #Twitterversary! I have been on Twitter for 14 years, since 1 Dec 2008 (via @twi_age).
It's my #Twitterversary! I have been on Twitter for 13 years, since 1 Dec 2008 (via @twi_age).
Diarrhea is a very personal symptom. Vomit is disgusting. Losing control of your bladder is embarrassing. Constipation is hard. But diarrhea? It's personal. #LupusSymptoms
Juliet Maruru 🇰🇪 retweeted
The Four Stages of Feeling Good After A Flare
1. I will do so much stuff
2. I’m getting a lot done
3. Wait, I can also do this
4. Oh No…. I overdid it
#LupusInColor
Juliet Maruru 🇰🇪 retweeted
“‘#Opioids are the only treatment that allows me a life.’ The #CDC study adds to a growing body of evidence that the controversial opioid guideline has been ineffective and misdirected… Many pain #patients now live with untreated or poorly treated #pain.” buff.ly/3j5dglw
At least once a year, sometimes twice. Mr. Finnigan brings home a little kitten. He will clean her or show her how to. Point out the litter box, access window, food and water bowls etc etc. The introduction requires several tries but it happens.
Mr. Finnigan is neutered.
Juliet Maruru 🇰🇪 retweeted
Lots of work goes into trying to build communities for people on here since situashen kwa ground si poa. And while it might seem weird to you, there're pple who when they get news, good or bad, their 1st contact is someone on this app/met on here. And I think that's beautiful
Juliet Maruru 🇰🇪 retweeted
Don't ever be ashamed to bring your pain, fears, joy, struggles to this app for any external reason but especially if this is the only safe refuge you have access to. Let not those who walk in comfortable shoes tell you that the nail in yours really isn't sharp.
Juliet Maruru 🇰🇪 retweeted
“If you have someone in your life who struggles with an #invisibleillness just remember they probably do their best to look or act “normal”… Even simple things can set us back for the rest of the day, several days later and even sometimes for a week[s].” buff.ly/3zpw3OT
I often fake being well rather than fake being sick. I can't tell you how many times I flash a big smile while my insides feel like Armageddon. That's just part of living with #Lupus or Chronic Illness.
Juliet Maruru 🇰🇪 retweeted
A night of Horror or what Kenyans came to refer as the black Sunday. The events of night of 13th-14th July 1991 at St Kizito secondary school in Meru county.
The death chamber that was a dormitory and the crazy deputy principal's remark to president Moi.
***Thread***
Juliet Maruru 🇰🇪 retweeted
I think something in our collective conscious snapped during the pandemic. I don’t know what, exactly. It made some people better and some people worse, at least as a subjective determination, but it means I keep feeling like people I once understood are unrecognizable to me now.
Juliet Maruru 🇰🇪 retweeted
Today we’re going to be talking about the wonderful topic of sexism in the medical field. Let’s discuss systemic oppression against women that results in ambivalent care, immense pain and life threatening situations! Yay! Fun, right? 🥲
📹 New video at 5pm 🇬🇧
I was hoping my doctor would clear me to take the Covid vaccine but NOT YET. I am confused because most Covid vaccine info seems to indicate that person's with preexisting illnesses can / should take the vaccine. To be fair, I've been on a rough patch #Lupus - wise for 10 months.