10yo from #Brighton with #PFFD. Fundraising to have leg operations by @Dr_Paley from the @PaleyInstitute. #stepwithkyra #stepbystep
England, United Kingdom
Joined December 2017
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10 year old Kyra from Brighton is having pioneering surgery at @PaleyInstitute in Summer 2021 in order to save and lengthen her leg. Please help support the family. #StepWithKyra
@just4_children
tinyurl.com/StepWithKyra1
Stay safe friends 💖
@PaleyInstitute @quantumhouse
There's an increasing chance for #Dorian to bring a triple-threat of dangers to the Florida east coast...
🌊life-threatening storm surge
🌬️devastating hurricane-force winds
🌧️heavy rains
The onset of tropical storm force winds could be as soon as Saturday evening.
Prepare NOW.
🎉 Big announcement 🎉
Kyra has finish leg lengthening at @PaleyInstitute and we are on our way home! She is one very happy girl and we are incredibly proud of her. #PaleyCare #StepWithKyra #ProudParents #HardWorkPaysOff #MakingImpossiblePossible
Sending love to Dan one of Kyra's supporters, whose cafe was broken into. It's his livelihood & horrible to have to deal with. A #StepWithKyra charity box was stolen which is sickening when we're with Kyra doing daily intensive physio and still have bills to pay. @just4_children
Kyra retweeted
Be safe and be ready for any storm with The City of West Palm Beach Hurricane Preparation Info Sheet. What you need to know now before a possible storm. Download PDF here: bit.ly/2Xxkrqx
Happy #FathersDay to Kyra's dad. Neil is a brilliant, fun, loving & kind dad to all his daughters. He's hands on with Kyra treatment, has climbed mountains (literally) to fund raise and his physical strength to lift and carry Kyra when she's been immobile or in pain is a godsend.
Kyra retweeted
This Father’s Day, #WCATDads decided to show #50Mums how it’s done! They wanted to show that, just like the mums, they #WouldntChangeAThing about their children. Have a look to see the adventure that they went on in their quest to "one-up" the mums! youtu.be/0GP8GOvkJLc
Had a great fun at Golden Cub Mini Golf playing with Chris Sharpe and @Cody_Bolton8 from Pittsburgh @Pirates. Kyra's dad is not a tall boastful that he beat them! 🤣🤣🤣
Thanks to @LittleSmiles_FL for organising. A lovely treat and good exercise for Kyra's leg too. #StepWithKyra
Kyra retweeted
Palm beach pitchers Alex Fagalde and Perry DellaValle had some fun this morning playing mini-golf at Golden Cub with the South Division All-Star team and kids from @LittleSmiles_FL, @POST_FL and @quantumhouse!
Check out that putt from @PerryDellaValle!
Kyra has had her hair dye blue (the picture doesn't do it justice) as a reward for sleeping in her brace every night. As part of the lengthening she has to wear a hip to ankle brace to keep her leg locked in place all night, every night, for 10 weeks. #StepWithKyra
Great to see Devon on #21Again being out and proud about living with #PFFD. #OneInAMillion 💖@BBCOne bbc.co.uk/programmes/m00053g…
Happy Sunday from Palm Beach! It's too hot here to be out in the sun for long but it's nice to get out away from waiting rooms and give Kyra a beak from physio. #StepWithKyra 🌈
Kyra has bounced out of surgery and discharged from hopsital. Little Miss Independent has been getting about on her walker. Here's a message from her just before her first physio session at the @PaleyInstitute. #StepWithKyra facebook.com/ntwarrell/video…
Here's Kyra with Peter Rabbit waiting to go into surgery. She made a cheeky video which you can see on our Facebook group. 💖 facebook.com/groups/StepWith…
#StepWithKyra @PaleyInstitute #PaleyCare
Kyra has been keeping everyone entertained with her poses in the x-ray department 🤣
@PaleyInstitute #PaleyCare #StepWithKyra
