Stripy Lightbulb CIC (@StripyLightCIC) header
Stripy Lightbulb CIC (@StripyLightCIC) profile picture

Evidence-based #CPD #mecfs #etraining for #employers, #healthcare and #education professionals and orgs. M.E.-Friendly Hospital Charter - https://xitter.gq/t.co/Dr0aLqZSse

Portsmouth, UK
Joined September 2018
Photo by Stripy Lightbulb CIC (@StripyLightCIC)Photo by Stripy Lightbulb CIC (@StripyLightCIC)Photo by Stripy Lightbulb CIC (@StripyLightCIC)Photo by Stripy Lightbulb CIC (@StripyLightCIC)Photo by Stripy Lightbulb CIC (@StripyLightCIC)Photo by Stripy Lightbulb CIC (@StripyLightCIC)Photo by Stripy Lightbulb CIC (@StripyLightCIC)Photo by Stripy Lightbulb CIC (@StripyLightCIC)
Are you a professional? Have a duty of care over people with #MECFS? 👇 #SocialEnterprise #CPD
1
68
💡 Support Stripy Lightbulb CIC for FREE! Sign up to easyfundraising and retailers will donate to us whenever you shop online, at no extra cost to you. Every donation helps us deliver more ME/CFS education and training. #MECFS #Fundraising easyfundraising.org.uk/cause…
59
It was great to have a 'Breakfast meeting' with Nicky Judd (CEO) of @ActionHants this morning along with other VCSE leaders across our region. It's always lovely to hear about all of the fantastic work being done locally by VCSEs 👏 #SocEnt
1
86
Stripy Lightbulb CIC retweeted
Six years ago, Beth Dobbin was competing at the highest level of international sport, representing Team GB at the Tokyo Olympics. Now, she is bedbound for up to 22 hours a day after being diagnosed with ME. Commonly known as chronic fatigue syndrome, the condition has been described by Dobbin as “life-decimating”. She has written a letter calling on the Prime Minister to meet with her and commit to more funding for research. Dobbin’s fellow athletes Keely Hodgkinson, Tom Daley and Dina Asher-Smith have also signed the letter. #ME #illness #Olympics
40
168
18
499
33,860
👏
Wow!!! Pediatrician Dr. Maria Bea Merscher Alves delivers a fiery, visibly pissed-off speech condemning the ongoing neglect of children with ME. We need all doctors, scientists, and politicians to speak out like this!! Source: instagram.com/reels/DfJ7KLIx… #pwme #kidswithME #MECFS
1
1
10
205
Stripy Lightbulb CIC retweeted
Hi everyone, hope you’re doing well. I’m reaching out to ask for support for this GoFundMe. This cause is important and whether you can donate or simply share the fundraiser, every little bit helps and is greatly appreciated. Here’s the link: gofund.me/019adc89e
7
41
1
78
1,602
💡 Support Stripy Lightbulb CIC for FREE! Sign up to easyfundraising and retailers will donate to us whenever you shop online, at no extra cost to you. Every donation helps us deliver more ME/CFS education and training. #MECFS #easyfundraising easyfundraising.org.uk/cause…
2
92
How's your day going? Today, we are pulling all of our pre-existing policies into a 'Business Continuity and Emergency Response Plan'. Fun! #SocEnt
1
111
💡 Support Stripy Lightbulb CIC for FREE! Sign up to easyfundraising and retailers will donate to us whenever you shop online, at no extra cost to you. Every donation helps us deliver more ME/CFS education and training. #MECFS #easyfundraising easyfundraising.org.uk/cause…
1
3
131
A difficult update from Sally today. We've made the decision to postpone today's BED For Severe M.E. webinar. Read the announcement to see why. #BEDForSevereME #pwME
14
9
1
48
1,407
We need to keep details private BUT...... We have an exciting project in the works that received grant funding..... AND We have been nominated for an award 🥳 🤐 Details 'coming soon'. #MEcfs #SocEnt
2
1
19
367
Tomorrow morning. 10.30am. 45 minutes that will open your eyes as to the realities of Severe and Very Severe M.E. #Health #ChronicIllness #SevereME #BedForSevereME
Join us at 10:30am BST on 29 Oct for the premiere of: Severe M.E.: Understanding the Reality, Recognising the Risks & Improving Care Exploring severe M.E., stigma, loss, and what professionals can do to improve support. ▶️ youtu.be/hfxbxVAYJwY #BedForSevereME #Webinar
1
1
8
230
Want to get ahead in your practice? Our online ME/CFS training gives #Healthcare professionals the knowledge and confidence to recognise, assess and support people with ME/CFS using current evidence and best practice. Better understanding leads to better care. #Learning #CPD
2
2
66
Stripy Lightbulb CIC retweeted
This is happening on Thursday (29th). Please support 🙏💙 All info, resources, and links on our website. In collaboration with @StripyLightCIC will be hosting an online educational event on Severe M.E. #BedForSevereME #pwME #Fundraising
1
6
7
146
Premiere: 10.30am 29th Oct. For #BedForSevereME Day, join us for a sensitive but important webinar on severe M.E. Understanding the reality. Recognising the risks. Improving care. ▶️ youtu.be/hfxbxVAYJwY #SevereME #Learning #Webinar
57
Join us at 10:30am BST on 29 Oct for the premiere of: Severe M.E.: Understanding the Reality, Recognising the Risks & Improving Care Exploring severe M.E., stigma, loss, and what professionals can do to improve support. ▶️ youtu.be/hfxbxVAYJwY #BedForSevereME #Webinar
4
3
7
848
Join us for the premiere of "Severe M.E.: Understanding the Reality, Recognising the Risks, and Improving Care" at 10:30am BST, 29 Oct. A professional look at severe M.E., stigma, loss & improving support. 🎥 youtu.be/hfxbxVAYJwY #SevereME #BedForSevereME #Webinar
5
6
306