Terry Jo Bichell (@TJBichell) header
Terry Jo Bichell (@TJBichell) profile picture

Terry Jo Bichell

@TJBichell

Politics and Science, in equal measure. Rare disease biomarkers and outcomes specialist. DCDP Exec Comm at large.

 Nashville, TN
combinedbrain.org
Joined February 2015
  • Tweets1.6K
  • Following1.4K
  • Followers781
186Media
Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)Photo by Terry Jo Bichell (@TJBichell)
Terry Jo Bichell retweeted
Liz Landau (@lizlandau) profile picture
Liz Landau@lizlandau20 Aug 2024
I felt so inspired writing this story about @TJBichell, who became a neuroscientist in her 50s because of her son's rare condition. My latest for @Nature: nature.com/articles/d41586-0…
How a midwife became a neuroscientist to seek a cure for her son

How a midwife became a neuroscientist to seek a cure for her son

Nature - Terry Jo Bichell felt the need to work on a scientific solution to her son’s rare disorder, even though it meant being a PhD student in her fifties.

nature.com
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Terry Jo Bichell retweeted
Morgan J. Freeman (@mjfree) profile picture
Morgan J. Freeman
@mjfree13 Apr 2024
I'm going to post this video every day until the election
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Terry Jo Bichell retweeted
Dennis Lal (@LalDennis) profile picture
Dennis Lal@LalDennis19 Aug 2023
Evaluation of the feasibility, diagnostic yield, and clinical utility of rapid genome sequencing in infantile epilepsy (Gene-STEPS): an international, multicentre, pilot cohort study dlvr.it/SttTbD
Image from Dennis Lal (@LalDennis)
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We’re using the power of partnership to collect biospecimens across rare neurodevelopmental disorders! Learn more about the @combinedbrain Biorepository Roadshow and our partnership here: bit.ly/3rrd0VJ #scn2a
COMBINEDBrain Biorepository: Enrolling SCN2A Families

COMBINEDBrain Biorepository: Enrolling SCN2A Families

COMBINEDBrain is collecting patient samples to help researchers find biomarkers for rare neurodevelopmental disorders. How SCN2A families join.

scn2afoundation.org
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Terry Jo Bichell retweeted
Dennis Lal (@LalDennis) profile picture
Dennis Lal@LalDennis18 Jul 2023
Pearls & Oy-sters: Whole Genome Sequencing in Critically Ill Neurologic Patient Leads to Diagnosis with Treatment Implications dlvr.it/SsLPtK
Image from Dennis Lal (@LalDennis)
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Terry Jo Bichell retweeted
Dennis Lal (@LalDennis) profile picture
Dennis Lal@LalDennis29 Jun 2023
1/2 New pre-print research from the team on #CDKL5 deficiency disorder (#CDD) & potential cardiovascular involvement! Using natural language processing, our team around @AlinaIvaniuk @team identified tachycardia as a significant association with CDD (OR 4.2). Interpretation is…
Image from Dennis Lal (@LalDennis)
Image from Dennis Lal (@LalDennis)
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Terry Jo Bichell retweeted
Anita Wadhwani (@anitawadhwani) profile picture
Anita Wadhwani@anitawadhwani16 Mar 2023
Tennessee Democrats demand release of five young children removed from Black family from Georgia after a traffic stop in rural Tennessee. The THP on Thursday also denied our request for body- and dash-cam footage of the stop. tennesseelookout.com/2023/03… @TNLookout
Tennessee Democrats demand release of children removed from Black family after traffic stop •...

Tennessee Democrats demand release of children removed from Black family after traffic stop •...

The Tennessee Democratic Caucus demanded that the Department of Children's Service release five young Black children to their parents.

tennesseelookout.com
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Days after Mila Jackson’s birth, her mother took Mila and her two brothers on what should have been a routine visit to the pediatrician. Instead, baby Mila was ripped away from her parents' loving care by Dallas CPS, and her father was arrested. 🧵
Image from The Afiya Center (@TheAfiyaCenter)
Image from The Afiya Center (@TheAfiyaCenter)
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Terry Jo Bichell retweeted
DRA (@dralegal) profile picture
DRA@dralegal9 Feb 2023
#Indiana #voters with print #disabilities may now cast #absentee ballots privately & independently in future #elections, due to a historic settlement brought by DRA & @INDisRts @acbofindiana! #DisabilityRights #VotingMatters Check out @indystar coverage: indystar.com/story/news/poli…
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Terry Jo Bichell retweeted
Keel Hunt (@KeelHunt) profile picture
Keel Hunt@KeelHunt28 Jan 2023
The passing of our friend Avi Poster has caused a great tumble of thoughts about his good life and fine example. (More to come.) How did you meet Avi, under what circumstances? If you met him at all, you were blessed.
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Terry Jo Bichell retweeted
Stand Together (@StandTogether) profile picture
Stand Together
@StandTogether24 Jan 2023
“I don’t think the state has a right to determine my success or failure rate. Let me try.”

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This really is a mindtrip. Everyone in Japan is wearing a mask at all times. At JFK, people coming off planes are wearing masks. But that's it.
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I'm thrilled to be joined on the Science Committee by my Republican colleague Dr. George Santos, winner of not only the Nobel Prize, but also the Fields Medal - the top prize in Mathematics - for his groundbreaking work with imaginary numbers. axios.com/2023/01/17/george-…
Rep. George Santos gets House committee seats despite blowback for major lies on resume

Rep. George Santos gets House committee seats despite blowback for major lies on resume

Both Republicans and Democrats have called on Santos to resign.

axios.com
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In which @jhollymc invokes Benedict Arnold in describing @RepMarkGreen’s newly revealed role in THE PLOT TO OVERTURN AN AMERICAN ELECTION: “His actions constitute a threat to Democracy and are nothing for a West Pointer to be proud of.” 🇺🇸 tennesseelookout.com/2022/12…
Commentary: Rep. Mark Green, the West Point officer who opposed certifying the results of a U.S....

Commentary: Rep. Mark Green, the West Point officer who opposed certifying the results of a U.S....

U.S. Rep. Mark Green, a West Point graduate and retired Army major, forgot about patriotism when he plotted to overthrow the 2020 election.

tennesseelookout.com
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Top shelf @FOXNashville profile of a #SYNGAP1 family in TN. Jackie Kancir, Jadyne's mom, sets the bar for advocacy. We are grateful for her leadership and example to our @cureSYNGAP1 community. We must all make the world better for our kids. fox17.com/news/local/genetic…
Rare genetic disorder case inspires new ER protocol, emphasizing empathy and respect

Rare genetic disorder case inspires new ER protocol, emphasizing empathy and respect

When 19-year-old Jadyne Kancir had to go to the ER in March 2021, her mother says she was treated like a psychiatric patient. Except she wasn't one.

fox17.com
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Congressional Republicans are telling us exactly what they’ll do with power. On Nov. 8, we have the power to stop them. – at Nashville, TN
Image from Senator Heidi Campbell (@Campbell4TN)
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Terry Jo Bichell retweeted
Rady Genomics (@RadyGenomics) profile picture
Rady Genomics@RadyGenomics25 Oct 2022
Thank you to @combined_brain for its support @Begin_NGS. COMBINEDBrain is a non-profit consortium devoted to speeding the path to clinical treatments for people with severe rare genetic, non-verbal, neurodevelopmental disorders. #RareDisease #BeginNGS combinedbrain.org/
Image from Rady Genomics (@RadyGenomics)
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Terry Jo Bichell retweeted
stxbp1 (@curestxbp1) profile picture
stxbp1@curestxbp11 Oct 2022
.@EncodedTx is launching a research project to learn about children’s experiences living with #STXBP1. The study is open to families in Australia, Canada, Spain, UK and US! Learn more here: stxbp1disorders.org/blog/new…
New STXBP1 ENGAGE Research Study Sponsored by Encoded on Children's Experiences Living with STXBP1...

New STXBP1 ENGAGE Research Study Sponsored by Encoded on Children's Experiences Living with STXBP1...

Encoded Therapeutics is launching a research project called STXBP1 ENGAGE to learn about children’s experiences living with STXBP1. The study is open to families in Australia, Canada, Spain, UK and...

stxbp1disorders.org
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Two of our partners are partnering! @Invitae & @s_searchlight Partner to Accelerate Research through Data Sharing Quoted -@jjtjer @SimonsFdn -@faridvij $NVTA -@charleneson @curestxbp1 -@JMGraglia SRF 🧬 #SYNGAP1 #STXBP1 #SCN2A #SLC6A1 shar.es/af7vd1
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Terry Jo Bichell retweeted
Tara Houston (@TaraHoustn) profile picture
Tara Houston@TaraHoustn5 Aug 2022
This. Thank you thank you thank you. @FredaPlayer
Matt Anderson (@mandersonville) profile pictureMatt Anderson@mandersonville5 Aug 2022
This morning is for thanking people like @FredaPlayer who put together a simple but effective strategy to keep nuts and fruitcakes off the the Metro school board. We will never know what we didn’t wake up to.
Image from Matt Anderson (@mandersonville)
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