Thrombotic Thrombocytopenic Purpura is a rare blood disorder. Awareness is Low | Research is Hope | Early Diagnosis is Key. Together we can find an Answer!
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Joined September 2014
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Today I handed MOH @celliottability letters sharing the painful impact #aTTP has on UniRose families, and how timely access to treatment is a matter of life or death for their loved ones.
Thank you for meeting with me @_kristinabryant, @andrewjlbryant, David & Barb Firman.
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Uniting day for #raredisease patients at the launch of Rare Diseases International #EMM2015MADRID
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Now is the time / Canada's Rare Disease Strategy: youtu.be/Lta3kLNOesw?a via @YouTube
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Thrombotic Thrombocytopenic Purpura - For a month I had been experiencing unusual symptoms; headaches, bruising, ... ow.ly/2z9sHJ
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Thrombotic Thrombocytopenic Purpura & Hemolytic Uremic Syndrome in 2014 goo.gl/kdxTHQ #hematology #Cancer @EORTC @EuropeanCancer
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Meeting w @AndrewSaxton1 on #raredisease day on the Hill @raredisorders @CanMPSSociety @Byrne86 @exact33 @CFCanada – at Ottawa, Ontario
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A @raredisorders team headed to Parliament for #RareDiseaseDay on the Hill @CFCanada @Byrne86 @CanMPSSociety @exact33 – at Ottawa, Ontario
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Meeting with @Carolyn_Bennett on @raredisorders Action Day on Parliament Hill #raredisease @CanMPSSociety @CFCanada – at Ottawa, Ontario
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Had a wonderful meeting with Taryn from #NewmarketAurora & friends on challenges of living with a rare disease. twitpic.com/dxco4f
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Meeting with @tbenskin on #raredisease day on the Hill @raredisorders @CanMPSSociety @Byrne86 @exact33 @CFCanada – at Ottawa, Ontario
