FIND ME ON IG, THREADS,or BLUESKY/actor/writer/author of Rare Disease Girl /aHUS CM-TMA survivor and advocate/audio producer
LA
Joined December 2008
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My first byline is the top trending article in @AppleNews - thanks @HuffPost for making this happening. I hope together we can empower patients and even bring awareness aHUS! I’ll post the article in the thread.
Taylor Coffman ♐️ retweeted
Our Christmas tradition is back! For the 11th year in a row, Z wrote a new oddball holiday jam - this one is called “The Little Things” 🐶🎄🥇 To watch every xmas tune we’ve ever done… tinyurl.com/yb7na9hr
BYE Twitter X! I’m gonna stop tweeting and going on this app- but find me on THREADS or IG instagram.com/taylorcoffmanm…
Taylor Coffman ♐️ retweeted
I Spent Weeks Near Death In The ICU. Asking My Doctors To Do This One Thing May Have Saved My Life. buzzfeed.com/taylorcoffman/a…
Come on Joe @POTUS this would be cool:
I really think the perfect capper to this insane election would be for @POTUS #JoeBiden to resign on January 13--after all, the GOP says he's unfit right?--and make #KamalaHarris the first woman president, if only for a week.
Taylor Coffman ♐️ retweeted
This part of @TaylorACoffman’s story really stuck with me. Today, this feels important to highlight when so much agency may be gone for some.
Taylor reminds us to choose a partner who can do the work, make the hard decisions, and show up when everything is dire.
Taylor Coffman ♐️ retweeted
@TaylorACoffman's story is one to listen to as you are in line to vote. It is about her agency, power, and will to survive when all the odds are stacked against her. I am super inspired to have this convo and see Taylor's work built upon her journey.
thelifeshiftpodcast.com/s3e1…
Taylor Coffman ♐️ retweeted
Tuesday’s Election Day ep is about love, access to healthcare, advocacy, passion, and so much more. Honored to hold the space in this way on my little show.
Tune in on Nov. 5 for The Life Shift podcast (Taylor’s Episode).
Thelifeshiftpodcast.com
Sometimes you gotta write out your anger, even if it’s indirect anger.
A must read piece by @TaylorACoffman about Elisabeth Finch and having your dreams stolen.
taylorcoffman.substack.com/p…
Taylor Coffman ♐️ retweeted
Thank you @NPR and @Chandelis for covering this national conversation and including why it is so important for women to hear this information.
npr.org/2024/10/04/nx-s1-512…
Powerful conversation about survival, optimizing medical care that’s nimble when you have a dynamic case, & reminders to physicians & patients about communicating to get the best outcomes @emcentricusa #pregnancy #nephrology #hematology #RareDisease
podcasts.apple.com/us/podcas…
Taylor Coffman ♐️ retweeted
Differentiating HELLP and aHUS in the Postpartum Period
Re-sharing this article and learning thread 🧵 on aHUS awareness day.
@aHUS24Sept
ahajournals.org/doi/10.1161/…
Sharing our new manuscript on differentiating #HELLP and #aHUS postpartum. Key parameters to recognize aHUS are elevated Creatinine and LDH levels that persist >72hr after delivery.
Differentiating HELLP Syndrome and aHUS in the Postpartum Period ahajournals.org/doi/10.1161/…
Taylor Coffman ♐️ retweeted
On @aHUS24Sept 2024 an interview with @RichardBurwick about #aHUS by @TaylorACoffman open.substack.com/pub/taylor…
Taylor Coffman ♐️ retweeted
It was such a pleasure doing this Q&A with my good friend @TaylorACoffman to discuss #aHUS and #TMA as we approach aHUS awareness day @aHUS24Sept.
Please read this Q&A to learn more and sign up for Rare Disease Girl substack to follow Taylor's journey and advocacy for aHUS.
Ahead of aHUS awareness day this Tuesday, I am happy to collab on a q&a in my Rare Disease Girl substack with an expert on the disease @RichardBurwick ! taylorcoffman.substack.com/p… #TMA #ahus #complement #hematology #nephrology #raredisease
Ahead of aHUS awareness day this Tuesday, I am happy to collab on a q&a in my Rare Disease Girl substack with an expert on the disease @RichardBurwick ! taylorcoffman.substack.com/p… #TMA #ahus #complement #hematology #nephrology #raredisease