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CDG UK

@UK_CDG

CDG UK is the national charity supporting patients and families affected by Congenital Disorders of Glycosylation. Registered Charity Number 1191342.

 United Kingdom
cdg-uk.org
Joined February 2017
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Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)Photo by CDG UK (@UK_CDG)
Together forever #CDG
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#BuiltDifferent #SeeTheUnseen #TodayWeSeeCDGTogether #CDGAwarenessDay #RareDiseaseAwareness #CDGUK cdguk.co.uk/
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#BuiltDifferent #SeeTheUnseen #TodayWeSeeCDGTogether #CDGAwarenessDay #RareDiseaseAwareness #CDGUK cdguk.co.uk/

HOME | Cdg Uk

cdguk.co.uk
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Join us by sharing what CDG means to you and helping us raise awareness far beyond our community. To learn more about CDG, support families, or find out how you can help, visit our website: cdguk.co.uk/ Together, today we see CDG. 💚 #BuiltDifferent

HOME | Cdg Uk

cdguk.co.uk
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Today, we want to make *the unseen seen*. We want families to feel recognised, understood and supported. And we want the world to learn more about life with CDG. Join us by sharing what CDG means to you and helping us raise awareness far beyond our community.
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💚Today on CDG Awareness Day, we are coming together to celebrate every person and family affected by CDG 💚 CDG is rare. CDG is complex. CDG is often unseen. But every individual with CDG is *built different* — with their own strengths, challenges and personalities…
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🎙️ New JIMD Podcast! Eva Morava & Irena Muffels are back to ask a massive question: How do we treat all the CDGs? Organoids, AI, basket trials & the three pillars shaping the therapeutic future of congenital disorders of glycosylation. Listen now: open.spotify.com/episode/2Ok… #CDG
Image from James Nurse (@DrJNurse)
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Three Peaks Challenge completed in 23 hours, 30 minutes, despite rain and gale force winds on all three stages. Really proud of these lads! You can still donate to @UK_CDG here... justgiving.com/page/benclark…
Image from Richard Clark (@glassboy68)
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