The mission the USTMA Consortium is to improve outcomes in through observational studies, clinical trials of novel therapies and translational research.
Joined May 2018
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USTMA Alliance and Consortium retweeted
The groundbreaking initiative, called FAST4TMA, will be launched for patients across the U.S. on June 24, 2023.
GROVEPORT, OHIO, UNITED STATES, June 23, 2023/EINPresswire.com/ -- The United States Thrombotic Microangiopathies Alliance (USTMA)
news-abc.com/culture/ustma-m…
USTMA Alliance and Consortium retweeted
Time to focus on survivorship in #TTP.
🧠 Silent cerebral infarcts (MRI ischemia but no overt stroke) are common and associated with major cognitive impairment.
🎯 targeting vascular risk factors and ADAMTS13 may help
@USTMAConsortium @ReeWynn @TTPFoundation
We mostly focus on the acute disease and manage with plasma exchange, rituximab and caplacizumab but new research from @BloodClotDoc teaches us that TTP pts continue to have silent and symptomatic cerebral infants even in remisssion. @ASH_hematology @HopkinsHeme
USTMA Alliance and Consortium retweeted
@USTMAConsortium patient meeting coming soon!!!
Don’t miss this opportunity to meet the experts & connect with others.
Register now!!
ustma.org/so/f1OVnlJJc?langu…
USTMA Alliance and Consortium retweeted
Heartening experience talking to a whole group of patients and caregivers about #complement & #genetics in #aHUS
“Medical education at its best begins with the patient, continues with the patient, and ends with the patient.”
@aHUSAllianceAct @AtypicalHUS
Happening now at the aHUS Foundation Family Conference - @anuja_java speaks on #Genetics and #aHUS. From the 3 pathways of #complement activation to describing why #mutations & cofactor activity matter in atypical HUS patient care.
USTMA Alliance and Consortium retweeted
Such a pleasure and privilege to meet with a fantastic group of #rare patients and #caregivers.
@USTMAConsortium @HopkinsHeme
Atypical HUS in #Pregnancy with @BloodClotDoc A topic of keen interest to #aHUS families, atypical HUS is difficult to diagnose apart other conditions which present with similar clinical profile. #HELLP #preclampsia #TMA Key that #ADAMTS13 results can assist diagnosis
USTMA Alliance and Consortium retweeted
After listening to the #NephMadness PodCrawl, I have decided to pick Secondary TMA to pull the upset over Primary TMA
This was an easy choice. The committee included Preeclampsia, HELLP, and Pregnancy-associated aHUS in this group. Do not eliminate pregnancy TMA in 1st round!
Don't miss our own @anuja_java who is part of the podcast "Freely Filtered 057" - part of the #NephMadness PodCrawl - for current thoughts on thrombotic microangiopathy #TMA! @kidney_boy @hswapnil Josh Waitzman @sophia_kidney Anna Vinakova
nephjc.com/freelyfiltered/57…
USTMA Alliance and Consortium retweeted
Immune thrombotic thrombocytopenic purpura: Spotlight on long-term outcomes and survivorship
frontiersin.org/articles/10.…
@USTMAConsortium @TTPFoundation
USTMA Alliance and Consortium retweeted
Strategies to optimize long term #iTTP outcomes highlighted in our new review. tinyurl.com/yr4ryehu
#TTP #survivorship #RareDisease @TTPFoundation @USTMAConsortium @TTP_Network @SSukumarMD
USTMA Alliance and Consortium retweeted
Woohoo!! Just published.
Our review on the role of #complement in TMAs associated with autoimmune diseases.
doi.org/10.3899/jrheum…
Icing on the cake: Working with @alhkim as a co-author again🤩.
@WUNephrology @WUSTL_Rheum @WashUDPS @jrheum
IMO, thrombotic microangiopathies (TMAs) are underdiagnosed in autoimmune diseases such as SLE. Led by @anuja_java, we discuss the role & extent of #complement involvement in secondary autoimmune TMAs, and how this can guide Tx with targeted therapies.
jrheum.org/content/early/202…
USTMA Alliance and Consortium retweeted
Our work on #SCI and cognition in #TTP presented at ASH. Each step gets us slightly closer to understanding and improving long term outcomes. 🧠 💪
🙏 to @nih_nhlbi @ASH_hematology for supporting this study.
@USTMAConsortium @ReeWynn @TTPFoundation @HTRSFellows @HopkinsHeme
Among patients with immune thrombotic thrombocytopenic purpura, there may frequently be evidence of brain infarction using MR. Presented at the @ASH_hematology conference #ASH22. fal.cn/3uNg5 #iTTP
USTMA Alliance and Consortium retweeted
New work on #complementbiology in thrombotic microangiopathy in @BloodJournal:
- shorturl.at/LNSW6
🔑✉️:
- Complement activation correlated with endothelial damage biomarkers
- Complement inhibition lead to ⬇️markers of endothelial damage in both in vivo & in vitro models
USTMA Alliance and Consortium retweeted
Excellent manuscript on #TMA syndromes by Dr. Ramy Hanna @RMHUCINEPHRO
#TMA disorders are rare and often cross disciplines. It is critical that institutions support multispecialty TMA teams to help diagnose and coordinate care for these challenging cases. #aHUS #complement
Thrombotic Microangiopathy Syndromes-Common Ground and Distinct Frontiers. Great @ackdonline article on #TMA, #OpenAccess link escholarship.org/uc/item/4rp… Thx @RMHUCINEPHRO @RichardBurwick @edgarvlermamd #aHUS #atypicalHUS #cm_TMA
USTMA Alliance and Consortium retweeted
#Race and Relapse of iTTP: Race affects overall relapse risk and response to #rituximab in iTTP. According to one study, rituximab did not improve overall relapse-free survival in Black patients, although it did show significant benefits in white patients.
USTMA Alliance and Consortium retweeted
Thank you @aHUSAllianceAct for your advocacy for patients with aHUS and for drawing attention to the role of Maternal Fetal Medicine in diagnosing pregnancy associated aHUS and differentiating it from other TMA disorders like HELLP syndrome.
#aHUS #TMA #Complement #HELLP #MedEd
The importance of a #TMA interdisciplinary team approach - collaboration with #maternalfetal #medicine #specialists can improve outcomes & save lives ahusallianceaction.org/mater… Thanks to @RichardBurwick, and to all listed in our global network of #aHUS clinicians & investigators.
USTMA Alliance and Consortium retweeted
🚨Meeting alert
Are you #complement curious?
Highly recommend @TO_Complement22 ⬇️
🗓️ Trainees: abstract deadline extended to Oct 21.
Register: toronto-complement-conferenc…
@anuja_java @USTMAConsortium @HTRSFellows @EccoComplement @roumenina @nkf @ImmuneRheum @APS_ACTION
3rd Annual Toronto Complement Conference - Virtual #TOConference2022
Great speakers, abstract session and more!
Registration is now open.
Follow this 🧵 for more information
USTMA Alliance and Consortium retweeted
The United States Thrombotic Microangiopathy Alliance and Consortium Announces #WebsiteLaunch prunderground.com/?p=272613 @USTMAConsortium
USTMA Alliance and Consortium retweeted
Ever wondered what to do for #TTP in remission? 🤔
Today in @BloodJournal - how I treat TTP after discharge ⬇️
@USTMAConsortium @HTRSFellows @SSukumarMD @TTP_Network @ttpdoc
ashpublications.org/blood/ar…
USTMA Alliance and Consortium retweeted
📣 If you treat #TTP and your patients have concerns about COVID-19 #vaccines and relapse risk 👉
✅ incidence of TTP is not increased after C19 vaccines
✅ relapse risk low, esp if #ADAMTS13 > 20%
@USTMAConsortium @ReeWynn @ASH_hematology @BloodJournal @HopkinsHeme
USTMA Alliance and Consortium retweeted
A rare blood disorder, aTTP, can start with a simple symptom but can be life-threatening if left untreated.
healthywomen.org/created-wit…
USTMA Alliance and Consortium retweeted
Register to be part of this global movement. Everyone, everywhere in the world can participate. More at go.dojiggy.io/participate-tt…