Thriving thanks to two lifesaving transplants! Patient Advocate for organ donation and PKD. Sharing my grateful journey of bouncing back and giving back.
Sacramento, California
Joined October 2009
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Valen Keefer retweeted
2024 Amy Silverstein Transplant Advocacy Award recipient @ValenKeefer shares what this recognition meant to her - and the power of patient voices.
Apply for the 2026 award👉 myast.org/achievement-awards…
Valen Keefer retweeted
@ASNKidney is offering patient scholarships to attend not only Kidney Week, but to become members of @ASNKidney I would be grateful if you would RT this opportunity @ValenKeefer @storaloppan2149 @PGee51 @Monicafox99 @PKDFoundation @nephcure @IGANFoundation
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Valen Keefer retweeted
Proud of @RepScottPeters for standing against HR3. As I have said many times, HR3 is not the solution to out of pocket cost for patients and will just instead end up swapping one negative consequence for another. bit.ly/3Cki5zv
Valen Keefer retweeted
We can't stop thinking about how much fun we had in #SanDiego last week! After speaking at Scripps, we made our way over to @radychildrens and spoke to pediatric transplant recipients and their parents.
Valen Keefer retweeted
We had an amazing time meeting these extraordinary young people and swapping transplant stories with them. We left San Diego feeling so inspired and we can't wait to return next year! 😊
Valen Keefer retweeted
As heard on @kfbk, the world's first anti-Victoria's Secret Fashion show. #dreamwalkfashion is a body positive event happening in NY next month and local double transplant recipient @ValensVoice will rock the runway dreamwalkfashionshow.com – at Sacramento, CA
Valen Keefer retweeted
Spotted at the Ace Mountain Hardware & Sports in Truckee: You could save Josalyn's life.
Valen Keefer retweeted
✨BIG ANNOUNCEMENT!✨
Today kicks off my Miracle Month and I’m bursting with joy to ANNOUNCE that I am the FEATURE STORY in the Summer 2019 issue of, celebrity chef, ROBERT IRVINE’S MAGAZINE!🙌 My liver and kidney… instagram.com/p/B0ojcTaADA1/…
Valen Keefer retweeted
What an inspiration. #NDLM
Just in time to kick off National Donate Life Month, check out this story of how a two time transplant recipient gives back via @kcranews kcra.com/article/norcal-woma…
Valen Keefer retweeted
Just in time to kick off National Donate Life Month, check out this story of how a two time transplant recipient gives back via @kcranews kcra.com/article/norcal-woma…
Valen Keefer retweeted
Dealing with emotions is a huge part of having PKD and @ValensVoice can definitely attest to this. Although keeping a brave face is important, Valen shares why it's okay to let your emotions surface and feel what you are going through. pkdcure.org/blog/were-all-hu…
Valen Keefer retweeted
Sometimes accepting help can be difficult. @ValensVoice knows this all too well. Check out the blog to learn how a visit from her dad helped change her perspective. #endPKD #OnTheBlog pkdcure.org/blog/accepting-h…
Valen Keefer retweeted
“He is an extraordinary caregiver and has held my hand during my darkest days with #PKD.” @ValensVoice recently sat down with her dad, Bill, to talk about what it's like to be a caregiver to a daughter with PKD. #ontheblog #endPKD
ow.ly/gZWW30kCvRn
Valen Keefer retweeted
Up on the blog today, @ValensVoice discusses the importance of the doctor/patient relationship. #PKDConnection #endPKD ow.ly/jCfn30kv01l
Valen Keefer retweeted
“We laughed, we cried, and I hope you are as inspired by my mom as I am.” @ValensVoice recently sat down with her mom, Pam, to talk about their journey sharing PKD. Check out the blog to read their inspiring Q&A! #endPKd
ow.ly/qFTX30kagU1
Valen Keefer retweeted
"Thank you to every human being who helped make the first treatment for ADPKD a reality. I now have hope that younger generations, like my nieces and nephews, won’t have to endure all that many of us have." @ValensVoice
ow.ly/y1xO30jVU8d
#treatment #ADPKD #PKD #endPKD
Valen Keefer retweeted
"Support is a necessity, not only for our emotional well-being, but also to help digest and remember all of the information discussed." Today on the blog, @ValensVoice reflects on her liver transplant prep process.
ow.ly/zWUi30jzMqL
Valen Keefer retweeted
Going through a transplant evaluation can be a taxing process. On the blog, @ValensVoice walks us through her recent experience and shares advice on how to get through it: ow.ly/xnJy30jsVRP #ontheblog #blogpost #newpost
Valen Keefer retweeted
Kidney Month is the perfect time to revisit navigating nutrition. Here's some insight from @ValensVoice on how to approach nutrition as a PKD patient: pkdcure.org/blog/navigating-…
Valen Keefer retweeted
Read today's inspiring post to learn interesting facts about women and kidney disease, why the @KidneyFund's March campaign spoke to @ValensVoice and learn about two special women in her life who she honors in celebration of National Kidney Month. ow.ly/ZJ2s30iTOci
