Vision-DMD Project (@Vision_DMD) header
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Vision-DMD Project

@Vision_DMD

Project aiming to advance clinical development of orphan drug Vamorolone for treatment of DMD.

vision-dmd.info
Joined October 2016
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Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)Photo by Vision-DMD Project (@Vision_DMD)
The VISION-DMD project is proud to announce ' Santhera have Received Positive CHMP Opinion Recommending Approval of AGAMREE® (vamorolone) for the Treatment of Duchenne Muscular Dystrophy' Read the press release here CHMP-press-release.pdf (vision-dmd.info)
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VISION-DMD rare disease day final project newsletter - mailchi.mp/d0b9b678c1c7/visi…
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Eric Hoffman, Suzanne Gaglianone @smgag19 from @ReveraGen and Ritchie Head from Ceratium share their experience on what Patient Organizations can do to have data return from clinical trials #DPA2021 #duchenne
Image from Duchenne Data Foundation (@DuchenneDF)
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''Patients want their data returned after a clinical trial'' Ritchie Head from Ceratium, is talking about the patients preferences on the return of their data following a clinical trial. #DPA2021 #duchenne
Image from Duchenne Data Foundation (@DuchenneDF)
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Throughout the study, Vamorolone: → Showed sustained efficacy across multiple endpoints over 48 weeks → Good safety and tolerability profile was confirmed More about the topline results from the @Vision_DMD study 👇 worldduchenne.org/news/topli…
Topline results of Vamorolone after completing VISION-DMD • World Duchenne

Topline results of Vamorolone after completing VISION-DMD • World Duchenne

Vamorolone showed sustained efficacy across multiple endpoints over 48 weeks, and the good safety and tolerability profile was confirmed.

worldduchenne.org
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Latest news and events from VISION-DMD - mailchi.mp/3e7edb9c269e/late…
#Vamorolone #Venturephilanthropy #DMD
Image from Vision-DMD Project (@Vision_DMD)
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Image from Vision-DMD Project (@Vision_DMD)
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Come and visit us at the WODC 21- stand 79! #WODC #Raredisease #DMD @jwmdrc @worldduchenne
Image from Vision-DMD Project (@Vision_DMD)
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💬 What is the patient perspective on returning individual clinical trial data back to participants after a trial has ended? Help @Vision_DMD answer this question. Please complete this short 4-minute survey 👇 worldduchenne.org/news/retur… #Duchenne #ClinicalTrial #HealthData
Return of clinical trial data survey • World Duchenne

Return of clinical trial data survey • World Duchenne

Invitation to participate in a short survey gathering opinions on returning clinical trial data to patients.

worldduchenne.org
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🚨 Important notice on 'stem cell therapy for Duchenne'. Please RT! → Currently, there are no approved stem cell therapies for #Duchenne → You NEVER pay for a clinical trial → If a ‘trial’ is not on clinicaltrials.gov, it is not a legitimate trial worldduchenne.org/news/warni…
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The power of collaboration: Positive results in VISION DMD study funded by #Horizon2020, #DMD #PatientGroups and US Gov – we are now entering the final phase towards Market Authorisation @santhera @ReveraGen @CORDIS_EU @EUScienceInnov #WDAD2021
Image from Vision-DMD Project (@Vision_DMD)
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Read our latest project news! - mailchi.mp/7bc8205563fd/news…
Today, @Santhera and @ReveraGen announce topline results with Vamorolone in pivotal VISION-DMD study. Santhera will hold a conference call / webcast today at 16:00 CEST, 15:00 BST, 10:00 EDT. Details: globenewswire.com/news-relea…

Santhera and ReveraGen Announce Positive and Statistically Highly Significant Topline Results with...

Santhera will hold a conference call / webcast today at 16:00 CEST, 15:00 BST, 10:00 EDT. Details are at the end of this statement. Vamorolone...

globenewswire.com
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Latest news from the VISION-DMD project - mailchi.mp/8a61e124358e/late…
Image from Vision-DMD Project (@Vision_DMD)
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Vision-DMD Project retweeted
Hélène Le Borgne (@HeleneLBorgne) profile picture
Hélène Le Borgne@HeleneLBorgne11 Mar 2021
Thanks #EUfunded @EJPRareDiseases research co-fund for advertising this White Paper of #EUfunded research @Vision_DMD project: returning individual clinical trial results back to patients - important not only for rare disease patients ! @EU_H2020 #ResearchImpactEU
ERDERA (@ERDERA_org) profile pictureERDERA@ERDERA_org11 Mar 2021
New VISION-DMD White Paper: Returning Individual Clinical Trial Results Back To Patients. It focuses on addressing the ethical and technical challenges, using the vamorolone clinical trial experience. #clinicaltrials #scicomm #medtech vision-dmd.info/return-of-pa…
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📍 New VISION-DMD White Paper: Returning Individual Clinical Trial Results Back To Patients. It focuses on addressing the ethical and technical challenges, using the vamorolone clinical trial experience. #clinicaltrials #scicomm #medtech vision-dmd.info/return-of-pa…
Image from Vision-DMD Project (@Vision_DMD)
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Read the latest newsletter here - mailchi.mp/0525c35c62d6/read…
Interesting talks, free and online
H2020 TranSYS (@H2020TranSYS) profile pictureH2020 TranSYS@H2020TranSYS27 Nov 2020
Its nearly over - catch our last sessions this afternoon h2020transys.eu/transys-onli… #horizoneurope #transys #genderbias #OpenScience
Image from H2020 TranSYS (@H2020TranSYS)
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