DMG-ACT: Adaptive Combinatorial Therapy for treatment of children diagnosed with DMG and DIPG
Joined November 2020
- Tweets21
- Following52
- Followers179
- Likes2
PNOC DMG-ACT retweeted
The more that we talk about it the more common it becomes to those that aren’t directly affected
It's #ChildhoodCancer Awareness Wednesday. Start conversations abt kids fighting & the price most survivors have to pay for rest of their lives AFTER CHEMO. Fund research specifically for cures without toxic side effects. @HappyQuailPress @AmandaHaddock @cac2org @KoontzOncology
PNOC DMG-ACT retweeted
It was an honor to present to families about our #DIPG/#DMG #CART cell lab and clinical work at the @PNOC_kids @act_dmg Symposium. The central focus was work by Carl, Javad, and Sabine to push the DMG-ACT trial forward and advance combinatorial treatment options for our patients.
PNOC DMG-ACT retweeted
Announcing a GAME CHANGER Grant led by
SUJATHA VENKATARAMAN
University of Colorado
“Targeting DIPG using novel CAR-T cell therapy”
chadtough.org/research/grant…
#UniversityofColorado #DIPGResearch #GameChanger #DefeatDIPG #ChadToughDefeatDIPG
PNOC DMG-ACT retweeted
Come meet some of the @chadtough @DefeatDIPG team at our table at @CureFestUSA! We can’t wait to talk with you. TOGETHER, we will #DefeatDIPG! #curefest #toughertogether #DIPG
PNOC DMG-ACT retweeted
Loved hearing Dr. Javad Nazarian speaking from the stage on Freedom Plaza for @CureFestUSA — grateful for his efforts on so many #DIPG/#DMG initiatives! @DefeatDIPG
PNOC DMG-ACT retweeted
5 yr old Hudson lost his life to DIPG last December. Science couldn’t save him then, but his parents, like the rest of our Family Partners, continue to fight for the kids who will face this disease in the future.
#ChadToughDefeatDIPG #DefeatDIPG #ChildhoodCancerAwarenessMonth
We are excited to announce the commencement of enrolment on one of the DMG-ACT clinical trials PNOC023: the ONC206 phase 1 study. A true testament of DMG-ACT global working group.
More to follow.
PNOC DMG-ACT retweeted
Particularly devastating for younger children with brain tumours
Two-thirds of all children diagnosed with cancer are at risk for long-term side effects caused by both the tumor and the treatment. Side effects can include cardiac dysfunction, secondary cancers, impaired balance, decreased muscle tone and hearing loss. #BrainTumorAwarenessMonth
PNOC DMG-ACT retweeted
Fly high sweet girl. Thank you for changing my life for the better. I will never forget the love you taught me. Happy birthday my love. I will love you forever.
PNOC DMG-ACT retweeted
#memorymonday @nbcsvu @therealmariskahargitay was at a #Knicks game and G said “Ant I wanna hang out with her” I’m like I duno about that and she said “you’re @AnthonyMSG you can make it happen” TY @mrjimboslice @warrenleight 4 making it happen. I’ll never forget it. 🙏🏼❤️😢
PNOC DMG-ACT retweeted
Mark my words the world of DIPG gained a boost today. About 15 of THE best research-clinicians, parent advocates, data architects had a visionary call (on Saturday). No one works harder than DIPG greats to end this horror. Retweet if you’re ready to EndDipg! #DIPGWontwait
PNOC DMG-ACT retweeted
It was a pleasure to be a part of that meeting. Looking forward to the amazing work that will come to fruition – at Virginia, USA
Mark my words the world of DIPG gained a boost today. About 15 of THE best research-clinicians, parent advocates, data architects had a visionary call (on Saturday). No one works harder than DIPG greats to end this horror. Retweet if you’re ready to EndDipg! #DIPGWontwait
DMG-ACT is excited to be the recipient of the Swiss National Science Foundation funds. This is one of the largest (over $3Million) European funding in support of DIPG/DMG research.
med.uio.no/ncmm/english/news…
PNOC DMG-ACT retweeted
If there were a stronger word than urgent, it should be applied to finding a cure for Kids #DIPG Brain Cancer. We have 190 cosponsors for H. Res. 114. We need 28 more for a floor vote. Please cosponsor & help kids facing a death sentence. bit.ly/114c-c @RepTomGraves
dipgcenter.ch
We are pleased to launch our Zurich website for DIPG/DMG Center Zurich
