I am kidney failure patient since 2016. I do Hh dialysis. I am also volunteer peer community educator for kidney research UK.
London, England
Joined August 2009
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#UKKW2022 uk Kidney week this week, to all the kidney patients around the UK and globe, every day is a fight with positive mind and work hard to keep going so well done, some pictures of me , and I am on dialysis. @Kidney_Research @kidneycareuk
life on dialysis retweeted
My thoughts are with the family and friends of the person who has tragically lost their life following an incident in the Westow Hill area of Crystal Palace this morning.
News like this is deeply upsetting and will be concerning for many local residents in Lambeth, Bromley and Croydon. I want to thank the emergency services who responded so quickly.
The police investigation is ongoing and I would encourage anyone with information that could assist to contact the police.
Lambeth is a strong community and we stand with everyone affected by this tragedy. news.met.police.uk/news/murd…
life on dialysis retweeted
Dumb or Malicious?
When it is this dumb..beef gelatine containing product being sold as Diwali sweet..it has to be malice.
@Tesco pls apologise and take this off the shelves immediately. Also do not stock @IslaDelice products. Not only are they culturally insensitive, they are shamelessly and commercially exploiting culture.
It is absolutely outrageous to see Tesco stocking Isla Delice Khushii Chocolate Chai Cakes packaged and promoted as a Diwali sweet, despite these products containing beef gelatine. For Hindus beef consumption is strictly forbidden. Selling food with beef during Diwali, a festival of light, devotion, and purity is not just insensitive, it is a profound insult to Hindu religious values and cultural traditions.
Tesco and Isla Delice must answer for this shocking disregard. Labelling a product containing beef as a Diwali offering shows complete disrespect for Hindu faith and dietary practices. This needs urgent correction, public accountability, and immediate removal from shelves. The community deserves a formal apology.
We demand:
- Immediate recall of these offensive products.
- A formal apology to the Hindu community.
- Implementation of strict internal checks to prevent such cultural disrespect again.
Furthermore, we urge Tesco not to stock Isla Delice products due to their past recalls involving 3 products contaminated with harmful bacteria. Consumer safety and respect for cultural diversity must come first.
@Tesco
@IslaDelice
#RemoveIslaDelice
#TescoOurage
#respecthinduculture
Hello Thank you for your message regarding a product in our world food range. We've looked into this, and can confirm that the cakes were incorrectly placed in our Diwali range. These have now been removed. We’re really sorry this happened.not acceptable answer! @Tesco
how will the welfare effecet people on dialysis who have kidney failure is big worry for lots us, who try to make means meet and work what we can do , people say many thing but try dialysis for 1 hour then say @RachelReevesMP @BBCNews @Keir_Starmer @kidneycareuk
what is the use of scanner handheld , when you go to pay the queue are crazy with people scanning there trolley manually surely should be seperate for scanners only. @Tesco
so if @Conservatives @labour want to give tax cuts on National Insurance and people fall for this, what will happen in the end to NHS, oops sorry we can no longer have nhs and need to pay, people should be more brains to know NI is for nhs and pension mainly.
hi @EE I saw my bill payment taken from my account this month
their is 2 addons i been charged for and I have no idea what they are it says £7.84 x 2
which should of happened?
jan 2024 energy prices going up how do home dialysis and other critical ill patient afford this , instead of helping surely by now it should go down. @RishiSunak @kidneycareuk #dialysis #energyprice
life on dialysis retweeted
Not great if you are disabled and on dialysis, which takes at least 4 hours a session, not including prep time or time for needles to be removed afterwards
Disabled parking: Hospital introduces free space time-limit bbc.in/3T2U4Z9
Sending you our warmest wishes on Diwali.May you be blessed with good health,happiness and success.
Subh Diwali 🪔🙏🪔
#Diwali2023
lets all pray for peace and war to end for both set of civilians and hostages. people who maybe in need of dialysis , Hope leaders of the world bring stability in both states.
#Peace @RishiSunak @Keir_Starmer
life on dialysis retweeted
Important reading, much work to be done and encouraging to see that the number of living donors has gone up #OrganDonation
‼️ Ethnicity plays a vital role in organ donation and transplantation.
Our annual ethnicity report, published today, analyses information related to ethnic minority groups in the UK and charts what progress is being made.
Here’s a summary of findings ➡️ orlo.uk/sg1Ls
ALT A graphic shows two arrows side by side - the left arrow is small and purple containing '7.1%' and the right arrow is larger and pink containing '11.7%'. Text next to the illustration says: "The proportion of opt-in registrations from ethnic minority groups added to the NHS Organ Donor Register has increased from 7.1% of opt-ins with ethnicity reported in 2018/19 to 11.7% in 2022/23.
ALT An illustration shows a hand being held out beneath a pink love heart. Text next to it says: "In 2022/23, there was a 6% increase in the number of ethnic minority living donors.'
ALT An illustration shows a hospital building. Text next to it says: "Family consent/authorisation is much lower for ethnic minority potential donors. The overall consent rate was 39% for ethnic minority and 70% for white potential donors last year."
ALT An illustration shows an alarm clock. Text next to it says: "Black patients wait 6 months longer for a transplant than white patients". Smaller text at the bottom also reads: "Median waits are 649 days for Black patients, and 463 days for white patients."
amazing news and hope for possibly many dialysis patients like myself.
great new for the girl and the family
news.sky.com/story/girl-8-be…
#dialysis #KidneyDisease #kidneyfailure @Kidney_Research @kidneycareuk
more funding and support is needed for dialysis patient, it would be good to hear from both parties as alot of patients suffer and struggle alot.
@kidneycareuk @SteveBarclay @wesstreeting #dialysis
Today i got told i am brown you dont belong here. I am 46 born here on dialysis work full time pay taxes. My parenrs worked 64 years. Thank you to the tories @RishiSunak @SuellaBraverman for making us a outsider u divided society and hate #LBC #dialysis
Today i got told i am brown you dont belong here. I am 46 born here on dialysis work full time pay taxes. My parenrs worked 64 years. Thank you to the tories @RishiSunak @SuellaBraverman for making us a outsider u divided society and hate #dialysis
Shocking to hear pm blaming drs and nurses for waiting list. Thats totally disgrace and unacceptable #NHS #PMQs #RishiSunak @RishiSunak @Keir_Starmer rishi shud apologies for that remark
