The 2026 PCD Patients Conference will take place in one month on November 13th (evening) and 14th (morning). Registration is opened and the final program is now available in English, French and German! beat-pcd.org/events/2026/11/…

@dcpes_org @PCD_UK @pcdcyprus @EuropeanLung @PCDFoundation @PCD_ispm @PCD_CTN @ErnLung

The manuscript « Mapping challenges in the delivery of care for primary ciliary dyskinesia: an international survey on barriers and priorities » is now available on ERJ Open research doi.org/10.1183/23120541.016… @bruna_rubbo @mgoutaki @ClaudiaKuehni @JaneSLucas1 @_Claire_Jackson

The systematic review of AI and digital-automated tools for PCD lead by @beatpcd WP3 P. Kouis @mathieu_bottier, N. Rumman & @_Claire_Jackson with @Shoemelia @mgoutaki in collaboration with CRC Connect is now available in ERJ Open Res doi.org/10.1183/23120541.016…

Prof @mgoutaki and @andrea_fernro will present the Living with PCD study, an international participatory research study @ISPMBern @PCD_ispm that collects evidence directly from people with PCD on Wednesday 18th November 2026 5:30 PM CET beat-pcd.org/events/2026/11/…

The video from the Global PCD Conference 2026 Recap Webinar is now available on the @PCDFoundation YouTube at the following link: youtu.be/WUGizp7-Fts

A huge thank you to everyone who follows BEAT-PCD, supports our work, and helps us share information about primary ciliary dyskinesia (PCD). Let’s keep reaching out to the community and spreading the word. facebook.com/profile.php?id=…

Help us grow the BEAT-PCD community by inviting your friends, family, and anyone interested in PCD to follow our Facebook page. The more our community grows, the more we can share information, resources, and updates with people. facebook.com/profile.php?id=…

BEAT-PCD has reached the final step in its digital transformation! Explore our new, simplified website at beat-pcd.org for faster access to resources, research, and community updates.

Researchers from @uni_muenster and @harvardmed have identified a previously unknown transition zone linker whose defects cause structural and functional abnormalities in motile cilia—revealing a new genetic mechanism underlying PCD: science.org/doi/10.1126/scie…

We are live for the Global PCD conference 2026 highlights organized by @PCDFoundation and recording will be available shortly after the webinar. @Shoemelia @RunningOnO2

A busy #ERSCongress2026 for BEAT-PCD! From our 60–65-strong Management Committee meeting to PCD posters, oral presentations, guidelines on diagnosis & nasal NO screening, and a dedicated PCD symposium - plus a great chance to connect with colleagues from around the world.

We would like to remind everyone that the BEAT-PCD meeting during the ERS congress will take place today at 14:00 to 16:45 CET, in Room 3.12, (Theatre Room), Hall CC3 at the conference centre. beat-pcd.squarespace.com/eve…

For those attending the ERS conference, we're having an informal meet up on Monday at  12.30 at the bronchiectasis pavilion - our chairs and members of our management committee will be there, come and join us!

Together with ClinGen, we’ve just updated the list of PCD-associated genes on our site: beat-pcd.squarespace.com. It’s growing so check back often for new additions!

[Reminder] The BEAT-PCD meeting during the ERS conference will take place on Saturday, 5th September 2026, 14:00 to 16:45 CET, in Room 3.12, (Theatre Room), Hall CC3 at the conference centre. The meeting is open to a broader audience (registration to the conference mandatory).

Did you miss the first Global PCD Conference in Montreal, or want a refresher on the key highlights? Join conference chairs as they revisit key advances in PCD biology, disease mechanisms, clinical care and more. 📅 15 September | 14:00 CEST 🔗 Register: beat-pcd.squarespace.com/eve…

The PCD patient conference 2026 will be held online on Friday 13 November and Saturday 14 November 2026. The registration is now available on our website: beat-pcd.squarespace.com/eve…