Supporting those affected by Congenital Melanocytic Naevi. https://xitter.gq/t.co/ekHcaYoeau…
UK
Joined August 2011
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- Following815
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Caring Matters Now retweeted
"A new genetic therapy has been developed that could reverse giant, debilitating moles that accompany a rare skin condition, #CMN."
@SkyNews @cmnsupportgroup @KinslerLab @MrElbank @TheCrick @GreatOrmondSt
news.sky.com/story/breakthro…
Caring Matters Now retweeted
A kind of melanocytic nevus is typically called a birthmark, a condition of pigment-producing skin cells.
They can be as small as a freckle or involve large areas of the body, like in this case.
xitter.gq/Levandov_2/status/1728…
Caring Matters Now retweeted
We’re back for Day 2 of the AVM 2023 Conference for everyone working in the field of volunteer management. Welcome to everyone joining us today for another educational and inspiring day of talks, workshops and discussions.
Join in with the conversation at #AVM2023.
Caring Matters Now retweeted
Tomorrow I will trek 13 miles to support Caring Matters Now. Challenge made difficult as I am recovering from an op and travel restrictions in london. BUT I CAN DO THIS 🤞 Thanks for everyones support. If you still want to donate please do below👇😊. justgiving.com/fundraising/a…
Caring Matters Now retweeted
Big day tomorrow. Our day to trek 24 miles. Cannot believe it is here now! We have raised over £900 to date. THANK YOU ❤️
Let’s push to get to £1000 🙌🌟🌟🌟Use the link below to donate 👇to this amazing charity, Caring Matters Now @cmnsupportgroup #cmn25
justgiving.com/Emma-Robins6?…
Caring Matters Now retweeted
When art, photography and creativity is combined with dermatology @HealthySkin4All #BAD2022 #CMN #HowdoyouCMeNow caringmattersnow.co.uk/aware…
Caring Matters Now retweeted
Delighted to be raising awareness of CMN today. Come and see us #BAD2022 @HealthySkin4All @cmnsupportgroup @J0diWhitehouse #howdoyouseemenow
Caring Matters Now retweeted
Lots of admiration and praise for these striking images in Glasgow right now! #congenitalmelanocyticneavus @cmnsupportgroup @Mr_Elbank #howdoyouseemenow #BAD2022 @HealthySkin4All
Caring Matters Now retweeted
Our booklet is going to Melbourne! Raising awareness globally! 🙌🏻 Safe travels ✈️ #CMN @cmnsupportgroup @J0diWhitehouse #BAD2022
Caring Matters Now retweeted
I am #fundraising for Caring Matters Now @cmnsupportgroup A special charity who support families like ours affected by CMN.
I will lead one day of the trek as trustee, covering 24 miles.
Please #sponsorme on @JustGiving & RT. Thanks! For Ava 💖 justgiving.com/Emma-Robins6?…
Caring Matters Now retweeted
Excited to be @cmnsupportgroup 25th birthday party at Alton Towers! @J0diWhitehouse
Caring Matters Now retweeted
LISTEN 📻
Ellesmere dad Karl says he wants to reduce the stigma around his daughter's birthmark and has got a tattoo in the shape of her mark on his leg 🙌@cmnsupportgroup
bbc.co.uk/programmes/p0c3fc0…
Caring Matters Now retweeted
Thanks! You'll be able to listen live or afterwards from here:
bbc.co.uk/programmes/p0c05dh…
Caring Matters Now retweeted
NEW PODCAST EPISODE! 69: Young People with CMN. Bruna and new co-host @abbimathews are joined by @EllaGuestCAR, researcher from @CAR_UWE, and representatives from charity @CMNSupportGroup to talk about the birthmark condition. Listen now: bit.ly/carpod_69 #CMN #Appearance
ALT A half blue, half pink background, with 6 illustrations of young people with the birthmark condition CMN. There are 3 boys and 3 girls. The title reads ‘CMN. Appearance Matters: The Podcast!’. Under the image, text reads: ’69: Young people with CMN. Hosted by Bruna and Abbi.’ Next to this text there is a blue play button.
Caring Matters Now retweeted
D A Y O N E complete of Sol’s challenge to run 25 miles over 25 consecutive days for @cmnsupportgroup 25th anniversary. £410 raised so far 👏🏻
@halewoodcofe
Caring Matters Now retweeted
Would you or someone you know benefit from using FaceIT@home? This self-guided online programme, which can be accessed from the comfort of your home, helps you learn new skills and manage challenges related to living with a visible difference.
Learn more: bit.ly/FaceITHome
ALT On the right: Naomi, a woman in her 40s, with light brown hair hair and some facial scars on her forehead. To the left: a blue box containing a quote: 'I found the programme to be supportive, extensive and beneficial. It’s user friendly and the exercises you work through are relatable and practical. They helped me look at everyday experiences and come up with strategies that worked for me. (Naomi, FaceIT@home user)'
Caring Matters Now retweeted
P R O U D of Josh for finishing his virtual London Marathon yesterday in 3hr 42mins raising over £800 for @cmnsupportgroup 👏🏻 #LondonMarathon #WeRunTogether
Caring Matters Now retweeted
Such a lovely morning helping out with storytime for @cmnsupportgroup! A great event & a brilliant message - celebrate your differences & love the skin you’re in. Well done to the team! 📖 👏👏
Huge thank you to @CharlotteHawkns for hosting our Story Time event. We had 23 children aged 0-4 join us this morning as we listened to Charlotte read ‘Giraffes Can’t Dance’ and thought about how differences are to be celebrated. Let’s all love the skin we are in!
