PerianalCrohns disease. Vitamin E ambassador. Freelance Blogger / vlogger for all things Crohns and Ostomy related. Founder of The IBD & Ostomy Support show.
South East, England
Joined February 2017
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- Following1.7K
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In this day and age where everything has to be filter perfect , nothing less than a 6 pack or a toned stomach suffice.
I no longer have any muscles to define abs, im held in by mesh. My scars got from under my boobs down to my well 😉.
I'm OK with how I look. What about you?
⬇️ This ⬇️
So much more awareness needs to be raised. We have to advocate for ourselves. I've been told by previous consultants that the symptoms were in my head. It's taken two years to get a half diagnosis from gynea and a 6 month wait for vulva dermatology appointments
Excellent article. I have advised several women @jodivineuk who had their LS and vulval cancer misdiagnosed as thrush. Some GPs didn't even examine them! HCPs need better training and people need to be aware of the symptoms, not ignore them or self treat with Canestan #GCAM
How do you apply yours? I used to rip and wrap.
I've now learnt how to mould it to the right size from the hole outwards.
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There needs to be so much more advocation for womens reproductive health. We are fobbed off too often and learn to suffer in a circle of silence
If a man had to undergo surgery to have their testes removed (which would mean they wouldn’t produce testosterone), do you think they would leave hospital without a hormone replacement plan? Of course they wouldn’t!
The menopause, and women’s health generally actually, is hugely under funded, under resourced and under researched and it’s really frustrating because so many women end up suffering as a result. This needs to change and I will not stop my work until it does!
It's so important to be aware of ones anatomy and not be ashamed to ask for help, a referral to get it checked.
It annoys me that its automatically assumed that intimate itching is down to stds. I'm still waiting for my vulva dermatology appointment 😪
Stop self treating recurrent itching with Canestan, get it checked. You need to be examined. Ask to be referred to a genital dermatologist if your GP keeps telling you it's thrush. #Notallitchingisthrush #Knowyourvulva #BeVulavAware #VulvarAwarenessDay
crohns fighting retweeted
"Body image is unique to each of us. There is no right or wrong way with stoma life. You can flaunt it and show off your life saving, life improving device, or you can keep covered." 💜
Read more 👉 buff.ly/3YE8TCq
What my insides look like post proctectomy and say hi to part of buddy the cyst that's playing hide and seek bottom right.
I got seen pretty early today and my husband came so I had back up
Having had sepsis a few times this is so important to share. It's still one of the most common misdiagnosed or not diagnosed silent and invisible killer.
September is sepsis awareness month
In the time it takes to make a cup of tea or put on a load of washing, you could get #SepsisSavvy 🕗
Knowing the signs of sepsis saves lives, so bump getting #SepsisSavvy up your to-do list, because everyday chores can wait.
Get #SepsisSavvy today: sepsistrust.org/sepsis-savvy
crohns fighting retweeted
The first episode of our brand new podcast, Beyond the Pouch, is now live! 🤩
Rachel and Louise open up about their stoma stories & navigating the ups & downs of life with an ostomy.
🎧 Listen on Spotify: buff.ly/44b7Qf1
📽️ Watch on YouTube: buff.ly/43ajbKX
Say Hi to an all new podcast with @PelicanHealth @respondltd & @TGEakin
It's such an honour to be asked to be co-hosting with @RachelA13142350 , she's an absolutely lovely human and a firm friend who's supported me behind the scenes.
👀 for next week for an all new podcast
For most of us, this is the reality of #chronicillness
I've really not been well for a while.
it's been discovered that my buddy, the cyst, has got a lot larger
Whenever I come up to A&E, I always pack my medication and stoma supplies. Alongside an overnight bag and a wash kit
When you'd been wearing the same clothes for 48 hrs and my amazing husband comes and helps the invalid shower and change into clean pjs. Trousers are a must because I can't shave my legs as I still can't sit down due to the amount of pain it causes.
Heres to new pain meds 🤞
This needs to be implemented. Having experienced 12 hrs in A&E and a pass round, the consultant decided on it, finally being a gynea issue. Even though previous gynea has said its colerectal. Now waiting to be reviewed in CDU
Various conditions in women's health have overlap symptoms with #IBD (eg, endometriosis). Likewise with life transitions (eg, menopause). And others too.
Opportunities are ripe for education on symptom overlap. This will lead to fewer blind alleys and better self-knowledge. ⭐
Eakin slims have always been a must for me. They extend my bag wear time, protect my skin around my stoma and gives me confidence in not experiencing leaks
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crohns fighting retweeted
Celebrating World IBD Day with our wonderful ambassador Louise (@crohnsfighting) who has been living with Crohn’s disease for 20 years now but doesn’t let it define who she is 👏💜
#WorldIBDDay2023
crohns fighting retweeted
"Waking up after 3 weeks on life support and seeing a rather large open wound, wires every where and a new stoma that I was not expecting can have a dramatic down turn of ones mental health." @crohnsfighting 💜
Read more 👉 buff.ly/3OjbSgh
crohns fighting retweeted
We found that 35% of ostomates felt it took a year or more to feel comfortable in their bodies after surgery, which can take a toll on a person's mental health.
Take a read of @crohnsfighting's experience of feeling comfortable in her body 💜
#MentalHealthAwarenessWeek
crohns fighting retweeted
"Respond have always been so adept and their customer services has always gone above and beyond." 💚
In our latest blog, @crohnsfighting shares why she uses Respond as her chosen home delivery service. Read here 👉 buff.ly/414pkaG
Today's life lesson, double check the fence blockade your husband put up. She bleeding well escaped and found the biggest oil leak she could find. All of this whilst on a remote all day tutor session. FML.
#oilleakpuppy #monsterpuppy #houdini #escapeartist #amusingringdoorbell
Crazy to think that bullying is still rife in the ostomate community and how people use their platforms to encourage their followers to troll and bully another person who's currently in hospital fighting their own battle because of a difference of opinion. 😢
crohns fighting retweeted
Read Louise's full review on our Vitamin E baseplates and how it saved her stoma skin in our latest blog 👉
buff.ly/3HfmaJ5