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EDHRA

@datamattersEU

The European Data in Health Research Alliance - ensuring the Data Protection Regulation allows vital research to continue. http://t.co/uLEpUppbWP

 Europe
Joined November 2014
  • Tweets869
  • Following308
  • Followers657
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Photo by EDHRA (@datamattersEU)Photo by EDHRA (@datamattersEU)Photo by EDHRA (@datamattersEU)Photo by EDHRA (@datamattersEU)Photo by EDHRA (@datamattersEU)Photo by EDHRA (@datamattersEU)Photo by EDHRA (@datamattersEU)
More detailed coverage of how research will be covered in #EUdataP researchprofessional.com/0/r… @ResearchProfes @wellcometrust @datamattersEU
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Still time to sign the @datamattersEU petition on this! datasaveslives.eu/petition xitter.gq/ICR_London/status/6673…
The ICR (@ICR_London) profile pictureThe ICR@ICR_London19 Nov 2015
Using personal data is essential for future medical discoveries - CEO Prof Paul Workman signs letter in @thetimes thetimes.co.uk/tto/opinion/l…
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Sign the petition and help us keep vital health data available for research wellc.me/1SXL1AY #EUdataP @datamattersEU #research
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I’ve just signed the @datamattersEU petition to safeguard #health research in #EUdataP. Please join me. datasaveslives.eu/petition
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Help us keep vital health data available for research wellc.me/1SXL1AY #EUdataP @datamattersEU #research
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SIOPE Ruth Ladenstein speaks on essential role of health data for #childhoodcancer treatment @EP_Environment workshop today @datamattersEU
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Chairing "Data Saves Lives" workshop of the #Health WG @Europarl_EN #dataprotection #medicalresearch
Image from Lojze Peterle (@lojzepeterle)
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Action needed to secure positive result - sign @datamattersEU petition keep vital health data available for research wellc.me/1SXL1AY
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Off-topic, but please sign @datamattersEU to safeguard #health research & access to vital study data in EU datasaveslives.eu/petition #EUdataP
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Alongside signing letters in today's Times @sangerinstitute supports @datamattersEU - please sign the petition datasaveslives.eu/petition
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Sign up to show your support. @datamattersEU xitter.gq/HarrietOAdams/status/6…
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Useful background info on proposed changes to EU law on data protection and implications for research xitter.gq/datamattersEU/status/6…
EDHRA (@datamattersEU) profile pictureEDHRA@datamattersEU29 Oct 2015
Confused by #EUdataP? Let our glossary and Q&A guide you datasaveslives.eu/faqs-and-g…
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EDHRA retweeted
IPDLN (@IPDLN) profile picture
IPDLN@IPDLN29 Oct 2015
....but don't stop there - keep on signing!! xitter.gq/datamattersEU/status/6…
EDHRA (@datamattersEU) profile pictureEDHRA@datamattersEU29 Oct 2015
Thank you to all the patients and researchers across Europe who have signed our petition! bit.ly/1RjRKnn#datasaveslive…
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Consider signing @datamattersEU petition - data sharing is essential for #RareDisease patients. datasaveslives.eu/petition @camraredisease
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Vital that research in Europe can carry on as it does today. Show your support by signing @datamattersEU petition datasaveslives.eu/petition
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Great to see so many people have already signed up to the @datamattersEU petition. Support EU research by joining us datasaveslives.eu/petition
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If you want to see EU data regulations strike the right balance for research, sign the @datamattersEU petition: ow.ly/TL8WV
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Sign the petition! @datamattersEU needs your help to ensure vital #health research continues datasaveslives.eu/petition xitter.gq/datamattersEU/status/6…
EDHRA (@datamattersEU) profile pictureEDHRA@datamattersEU15 Oct 2015
It's vital that #EUdataP safeguards privacy and ensures research can carry on. Sign our petition to support datasaveslives.eu/petition
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If you want to see EU data regulations strike the right balance for research, sign the @datamattersEU petition: ow.ly/TL8Pt
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I’ve just signed the @datamattersEU petition to safeguard #health research in #EUdataP. Please join me. datasaveslives.eu/petition
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