urte_g retweeted
It’s not only #cysticfibrosis patients in low income countries that can’t access #Kaftrio #Trikafta because of the price tag 💵
We’ll be at @ECFSConference next week for patients like Lukas #Lithuania who continue to suffer.
Shame on you @VertexPharma
righttobreathe.net/post/pati…
urte_g retweeted
We are in Glasgow this week at #ECFS2024 to highlight the plight of thousands of #CysticFibrosis patients around the world who do not have access to lifesaving medicines because of the extortionate price tag. 🫁💊🌍
Together we will be heard. #Trikafta4All @JustTreatment
urte_g retweeted
VSU CF mums & supporters have been speaking out at the European CF Conference in Glasgow to insist that @VertexPharma lowers their unjustifiable price for #Trikafta and stops holding sick children to ransom.
Enough is enough. 🫁💊🌍
#RightToBreathe #Trikafta4All
#CFWontWait
urte_g retweeted
#NACFC2023 Following Jonathan Guo’s presentation on equitable access to modulators, with emotional testimony from Lithuanian CF mum @g_urte, audience members waited to have their say, including: (1/6)
I had a short speach at #NACFC2023 as a member of @VertexSaveUs about not having gene modulators in my country #lithuania because of their high price @VertexPharma has set. My 3 year old daughter Milda is condemned to a slow and painful death without these drugs.
#righttobreathe
My daughter with CF has no access to gene modulators! @VertexPharma how many billions is enough?!
🚨BREAKING: US drug giant @VertexPharma has just been called out by #RightToBreathe campaigners over its scandalous drug pricing.💊
How many billions is enough?
We demand that lives are put before profits.🌍 #NACFC2023 #CFcantwait
urte_g retweeted
@DrMeghanMcGarry - saying it as it is: @VertexPharma: not normal behaviour…record breaking profits…not putting $ back…$3b stock buybacks…serving shareholders… using the CF community…copay changes…no one can afford these drugs…Vertex don’t care…we need to speak out.👊💊🌎
urte_g retweeted
The action was led by 3 #cysticfibrosis mums - Gayle (UK🇬🇧), Pratibha (India🇮🇳) & Urte (Lithuania🇱🇹) - who travelled across the world to confront Vertex.
They brought dozens of messages from CF families urging global access to meds. @VertexPharma, are you listening?"
urte_g retweeted
BREAKING: Today VSU representatives were at @VertexPharma offices in Boston to deliver heartbreaking messages from CF families around the world who cannot access #Trikafta b/c of the extortionate price tag.
Enough is enough! Every patient everywhere has the #RightToBreathe.
urte_g retweeted
Urtė from #Lithuania spoke about life without access to modulators for her daughter Milda.
The reality is so powerful that some audience members were moved to tears. 😢
@VertexPharma must change their ways & provide access to all. #RightToBreathe
urte_g retweeted
We are at #NACFC2023 in Arizona.
Raising our voices for CF families around the world that don’t have access to #Trikafta & other modulators.
Taking a message to @VertexPharma that their profit driven behaviour is not acceptable. We will not stay silent.
#Trikafta4All #NACFC
urte_g retweeted
📢 Last week at the #ECFS2023, @VertexPharma faced unprecedented pressure from the #RightToBreathe campaign.
Patients, parents & clinicians were united in a call for affordable access to lifesaving #CF meds. The silence is broken & the tide is turning⬇️
righttobreathe.net/post/vert…
urte_g retweeted
#ECFS2023 @VertexPharma session - real-world study - #Trikafta for children age 6-11. Challenging Vrtx on access to #cysticfibrosis medicines in LMICs. “Clinicians and families in those countries would also like to see these results”. We need a global access plan NOW #CFWontWait
urte_g retweeted
#ECFS2023 After 3x @VertexPharma talks about the effectiveness of #Kaftrio. VSU mum @g_urte from #Lithuania joins CF researcher Jonathan Guo to talk about life w/o access to CF modulators. So powerful ❤️. One attendee said this was “the best presentation at the conference by far”
urte_g retweeted
Dr Marco Zampoli, from #SouthAfrica CF advocate & VSU supporter, presenting at the European CF Conference today, outlining the unacceptable disparity in access to #Trikafta #Kaftrio around the world. #RightToBreathe
urte_g retweeted
Day 2 of the European CF Conference in Vienna - we are here to highlight the disparity in access to #Trikafta #Kaftrio and speak up for all those countries without access. Enough is enough. #RightToBreathe #NoOneLeftBehind
urte_g retweeted
The European #CysticFibrosis Conference has kicked off today in Vienna! 🙌
We're excited to speak to CF clinicians & advocates about our #RightToBreathe campaign for global access to lifesaving CF treatment. 🌍
Find out more ⬇ righttobreathe.net/
#ECFS2023 @VertexSaveUs
urte_g retweeted
Lots of support already for the #RightToBreathe campaign at #ECFS2023!
Thousands of #cysticfibrosis patients are being left to suffer & die because @VertexPharma is charging $326k for lifesaving treatment.
This must change. #CFcantwait
Find out more 👇
righttobreathe.net/
urte_g retweeted
If you have been following the 'Right To Breathe' campaign over the past few months, then it is now easier to keep up with the latest developments and connect with the campaign via this vibrant new website ⬇️
righttobreathe.net/
@cfaware #cysticfibrosis @JustTreatment
urte_g retweeted
🌎 Right to Breathe campaigners take action at the Brazilian Cystic Fibrosis Congress! 🇧🇷
Advocating for global access to essential #CysticFibrosis medication and urging @VertexPharm to lower prices. #RightToBreathe
