Project Lead for @LongCovidLearn and https://xitter.gq/t.co/WSuHTGYJo4. By day, I'm Product @Microsoft. Find work stuff @ThatPMGreg. Mastodon: @greghoward@med-mastodon.com
Kirkland, WA
Joined October 2009
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It's been an incredible journey learning from the research and patient-advocate communities to prepare for today's launch of LongCovidLearning.org and @LongCovidLearn. We hope our work helps you find ways to talk to coworkers, friends, and family about the risks to us all.
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We're excited to announce the launch of LongCovidLearning.org at today's @TheWHN symposium. What are we learning about #LongCovid? Should the risks change what precautions we take? Follow us for key findings from the global research community made simple and accessible to all.
Another year desperately trying to get my kid a booster before she brings Covid home to the rest of the family. FDA *could* have approved them to ship it weeks ago. Hell, the approved pediatric dose is actually just half the Moderna vial for 12yo+. Same concentration! But nooooo.
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I've learned from my own efforts to improve air quality in local schools that it takes organization, funding, and especially the will to make a difference. I'm hopeful Illinois can step up and set an example for the nation. Clean indoor air helps keep kids healthy and learning.
Hey @AlaskaAir, even if you don't care about unmasked passengers getting sick from poorly ventilated flights, it would be awesome not to spend 6hr on AS 3 DCA->SEA with a splitting headache from ~2000ppm CO2. I'll be rethinking who I fly with until you do something about this.
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Oh, sure, the kids can wait on vaccines, given that schools are magical zones where viruses don't spread. Especially because young kids, who are at higher risk for hospitalization than most adults, are well-known for their stellar hygiene. cidrap.umn.edu/covid-19/more…
Why have COVID shots for younger children been hard to find?
@CDCDirector told reporters today:
"manufacturers and distributors were getting out the adult vaccines first. So that was what was shipping, in the first number of days"
tinalexander.github.io/notes…
![A screenshot of this text: "Mandy Cohen, CDC [00:58:07] We’re about two weeks into having the new updated COVID vaccine, and it is a different process this year. So previous years this was– the vaccine was purchased by the federal government and then distributed by one entity. Now we’re sort of going back to what I’d call the normal course of business, the same way that flu vaccines are distributed, is the way these new updated COVID vaccines. So it means that individual providers need to order them, the manufacturers and distributors need to ship them, and in ordering them, they purchase those vaccines. So again, it’s just a different process than we’ve done the last couple of years. We do know that our manufacturers and distributors were getting out the adult vaccines first. So that was what was shipping, in the first number of days. And now they are shipping pediatric vaccine. We know pediatric vaccine has shipped."](https://pbs.twimg.com/media/F7ILW3pWYAAWMy6.png?name=orig)
ALT A screenshot of this text: "Mandy Cohen, CDC [00:58:07] We’re about two weeks into having the new updated COVID vaccine, and it is a different process this year. So previous years this was– the vaccine was purchased by the federal government and then distributed by one entity. Now we’re sort of going back to what I’d call the normal course of business, the same way that flu vaccines are distributed, is the way these new updated COVID vaccines. So it means that individual providers need to order them, the manufacturers and distributors need to ship them, and in ordering them, they purchase those vaccines. So again, it’s just a different process than we’ve done the last couple of years. We do know that our manufacturers and distributors were getting out the adult vaccines first. So that was what was shipping, in the first number of days. And now they are shipping pediatric vaccine. We know pediatric vaccine has shipped."
“Even after COVID started to wane, it feels like there's problems with [the 84.9% increase in excess] mortality, which I believe right now is a public health problem that can be addressed by insurance taking leadership.” Well someone has to, eh @CDCgov? 🙄 insurancenewsnet.com/innarti…
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Public health is flying blind. With folks struggling to find and afford tests, wastewater is the only surveillance we have left to take action proactively BEFORE we wake up to full hospitals. Today is the last day to tell CDC to extend testing for 3 years: regulations.gov/commenton/CD…
Wastewater data is critical for the new indoor air quality standard, which defines for schools and businesses an "infection risk management mode, which applies during identified periods of elevated disease transmission risk." How will we know when that is? ashrae.org/about/news/2023/a…
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Please join @PTF_org and remind the CDC's ACIP committee: kids are not supposed to die or become disabled by viruses allowed to run rampant in schools. Quickly making the next iteration of the vaccine available to all ages is a moral imperative in the absence of safety concerns.
Public comment is open until September 8: regulations.gov/commenton/CD…. Masks are so rarely seen at schools, most of which have also failed to use billions in federal ESSER funds to provide clean air to classrooms. "We have the tools" is apparently *just* vaccines. So approve them.
Want to help us advocate? Time to flood the comment section for the ACIP–we have till the end of the week. Please comment as many times as you can and use the bullets (in thread) to help you craft your statement! regulations.gov/commenton/CD… Thanks for your advocacy!
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Takeaway: Just because you can't eliminate Covid exposure doesn't mean you shouldn't try. Immunity conferred by vaccines and/or prior infection is stronger when viral load is reduced by ventilation, filtration, and quality masks. We *can* fight Covid's spread without isolation.
A short 🧵on a recent study by @MaggieLind2 with @MHitchingsEpi @datcummings Albert Ko et al. Data show that immunity induced by vaccines, prior infection or both (hybrid) protects against SARS-CoV-2 infection when viral exposure is low to moderate (1/)
nature.com/articles/s41467-0…
oh, well, I guess that's a good reason to delay boosters that will save lives as we enter the school year surge, idk ¯\_(ツ)_/¯
I learned today via FDA why and when the new Covid boosters will be ready
—The reason for the delay is that the Covid Public Health Emergency ended May 11, 2023, so it requires a Product Licensing Application (PLA) instead of an EUA —Now projected to be available ~9/15
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"... the politicization and polarization of the COVID debate and pandemic fatigue has prevented very serious and legitimate science about the potential long-term dangers on COVID infection leading to neurodegenerative issues from entering the mainstream" salon.com/2023/08/13/long-is…
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More key excerpts ...
“While the general public ignores & downplays the risk of SARS-CoV-2… #LongCovid may well prove to be one of the biggest health problems of the 21st Century, presenting a real risk that a secondary pandemic of chronic illness will be overlooked.”salon.com/2023/08/13/long-is…
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"For doctors to counsel deliberately exposing children to COVID when a vaccine is available [...] is “a moral abomination,” Howard says. He’s right.
In a world guided by science, the promoters of an unsuccessful herd immunity theory would long ago have lost their credibility..."
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"We are living through the biggest mass delusion in the history of mankind." Can't disagree. Too many folks get tripped up when they get to the part that goes: "But a future with escalating disability and death CAN'T be true because surely they would ..." -- but no, "they" won't.
There are things we can do to minimize suffering without requiring everyone to live like it's March 2020. What it does require is the willingness to *care* and to recognize our own agency. Clean water is not controversial. Clean air shouldn't be either.
Doc: Give the patient this diagnosis and what it means, but be nice about it so I don't have to be.
Chatbot: OK, but this part kinda isn't accurate based on my model. Let me rewrite it for you.
Doc: Sure, fine, whatever, looks good.
This new study is eye-opening.
The authors compared Physicians vs AI Chatbot responses to patient questions posted to a public social media forum.
The results?
Patients preferred ChatGPT 79% of the time. 79%! 🤯
Not only AI responses were rated of higher quality but also more empathetic.
Imagine the potential implications of this:
- Faster, more accurate diagnoses for patients.
- Greater accessibility to healthcare information in remote areas.
- Reduced workload for overburdened healthcare professionals
- Personalized health advice accessible 24/7.
AI is going to revolutionize almost every sector.
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"Hundreds of millions of people could be at higher risk of developing Parkinson's disease or other neurodegenerative issues later in life. If it comes to pass, the public health resources required to help will be astronomical." salon.com/2023/04/24/long-pa…
From the industry I keep thinking will "get it" soonest: "...the CDC shows that 1 in 13 adults have #LongCovid symptoms, and 80% of adults with the disease have trouble with daily activities. These aren’t just numbers; they represent the people who keep your company in business."
'Is Long-COVID a Simmering National Health Disaster? Here’s Why Some Experts Think So'
riskandinsurance.com/is-long…
"'Everyone wants to say goodbye to COVID, and if long COVID keeps existing and people keep talking about it, COVID doesn’t go away.' The people who still live with COVID are being ignored so that everyone else can live with ignoring it." Glad to have @edyong209 back again.
The accumulated evidence about long COVID, alongside the stories of patients, points to a substantial and ongoing crisis that complicates the current "mission accomplished" rhetoric. @edyong209 reports: on.theatln.tc/58tUjvI
Democrats mistakenly embraced the idea that advocating for Covid precautions is politically unpopular. But they work for us. Demand safe schools and workplaces with healthy indoor air. Demand access to healthcare free of infection. Demand sick leave legislation. Demand better.
Progressives are failing us, too afraid to speak out against policies that not only exclude those at higher risk from safely using healthcare, transportation, government services, and more, but put us all at risk of disability or death. Read the rest of his thread. Demand better.
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