Group for Research in Relationships and NeuroDiversity based at UCL Brain Sciences Co-production Co-delivery Autism_ ADHD_ Syndromes Mental health Healthcare

London, UK
Joined April 2021
We are a diverse bunch of researchers, scholar activists, artists, advocates, service users, education and health consultants. Together we aim to better understand social factors in the mental, emotional, and physical well-being of neurodivergent people of all ages.
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Rather than judging emotions against neurotypical norms, a neurodiverse group of academic and youth co- researchers asked 57 autistic and/or ADHD adolescents (11–15)to explain-in their own words-what makes life feel overwhelming and what genuinely helps.
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If you’ve ever watched a neurodivergent young person ride out a tough moment at school or home and wondered, “How can I actually help?”this new open-access study in Nature’s Scientific Reports offers refreshingly practical answers.
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Registered: "therapeutic interventions that are offered in psychiatric inpatient care for autistic young people"--scoping review crd.york.ac.uk/PROSPERO/view… "...inpatient hospitalisation can be a traumatic experience and comes with significant challenges for autistic individuals"
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Our latest paper challenges deficit-based views of emotion (dys)regulation in autistic and ADHD youth and centres their own voices instead. Only few young participants described their struggles as “internal deficits.” @UCLBrainScience @ExPANDKCL nature.com/articles/s41598-0…
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Instead, they identified external stressors and environments as the real drivers of distress + call for a shift: 💡 From “fixing” individuals to adapting environments 💡 From standardised strategies to self-chosen regulation+agency 💡 From “accommodation” to true belonging
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Importantly, while autistic+ ADHD adolescents shared overlapping needs, they also articulated distinctions: #Autistic youth valued consistency, predictability, co-regulation. #ADHD youth emphasised loyalty, reciprocity, and harnessing personal strengths during adversity.
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🗣️ “We’re Emma Kluibenschadl from STAK Life and Dr Venessa Swaby from A2ndvoice CIC, proud facilitators for Autism Central’s Online Peer Education Program funded by #NHS and run by @annafreuduk Together, we’re using our lived experiences to support autistic people, families, and professionals, takes place from Tuesday, Wednesday and Thursday between 10.30 - 9pm, includes: 5 series, 18 hours (1 hour sessions spread across the day) - education family guides - drop in sessions - reflective sessions With repeated sessions. And joined by Bengi O Reily and Olive Kayonga. Our goal is to create spaces where voices are heard, communities are connected, and inclusion becomes the norm. Join us at Autism Central events to learn, share, and celebrate neurodiversity, because when we share our voices, we empower others to find theirs.” ✨ On-screen text ideas: “Autism Central 🤝 Peer Education Program” “Real Voices. Real Change.” “💜 Difference Not Deficit 💜” 🔗 Event Link (for caption or bio): autismcentral.org.uk/events 📍 Suggested Tags: #AutismCentral #PeerEducation #STAKLife #A2ndvoice #AutismAcceptance #LearningDisability #Neurodiversity #RealVoicesRealChange #DifferenceNotDeficit #Siblings #olderautisticpeople #Puberty #Friendships #Relationships #post16
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👀 It’s a smasher of an episode.
Our Prof of Social Care @sarasiobhan discusses her new book on the unfair treatment of people with learning disabilities on 'The Skies We're Under' podcast. Listen 🔗 podbean.com/media/share/pb-m…
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Final call!!📣📣 #EducationMentalHealth Practitioners #EMHPs Kindly support us in hearing from graduate or trainee EMHPs’ views on supporting #autistic students’ #MentalHealth in mainstream secondary schools. 🔗 Link: shorturl.at/aqVDH
📢We are still recruiting #EducationMentalHealth Practitioners #EMHPs Kindly support us in hearing from graduate or trainee EMHPs’ views on supporting #autistic students’ #MentalHealth in mainstream secondary schools. 🔗 Link: shorturl.at/aqVDH @grrand_team @CDLDlab
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Jade used drawing to convey how it feels to experience sensory overwhelm. The jagged lines and enclosed corners in Jade’s drawing highlighted both the intensity of the sensory bombardment and her instinct to retreat. link.springer.com/article/10…
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The jagged lines and enclosed corners in Jade’s drawing highlighted both the intensity of the sensory bombardment and her instinct to retreat. In this way, the artwork not only illustrated her words but offered additional insight into the embodied nature of shutdown.
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Our webinars are back for the 3rd year! autismcentral.org.uk/events/…
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"experiences and situations that induce negative emotional reactions" in N=57 autistic &/or ADHD 11-15 year-olds, interviews, free acamh.onlinelibrary.wiley.co… quote from an autistic 12 year-old: "When people sum autism up as a negative thing, it makes me feel like I am worthless..."
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We’re thrilled to announce the publication of our latest research in Nature: Humanities & Social Sciences Communications! 🧠📚 This article is the result of a brilliant collaboration with leading researchers from Project CREATE and our own @JoPavlopoulou nature.com/articles/s41599-0…
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This paper examines the ways in which a broadly interdisciplinary team of academics and youth co-researchers involved in mental health research interpreted a number of research and mental health terms that are central to their work.
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