Metaplastic Breast Cancer Advocate and Elizabeth Smider Foundation Board Member. http://t.co/Aivh4yRV4E
Northern Virginia
Joined October 2012
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How @JoanLunden and @hodakotb made me cry even though I "expected to win" every time. mariatfowler.blogspot.com/20… #Someofusdontwin
Wow! The level of immorality is off the charts. Company hikes price 5,000% for drug that fights cancer complication
usatoday.com/story/news/heal…
10 rads up... 10 rads down.... let move on... get this brace off soon and get back to JUST fighting lung metastasis. #BCSM #mpbcsucks
I guess I'm not one of those tough guy kind of tweeters. Trying to keep up. Moved from PDL1 trial so I could be treated more quickly. #
Looks like #PDL1 trial is dead for me. I just don't have time to wait to get the next dose. Tumor growing too fast. On to Eribulin today!
Possibly might need to switch to Eribulin immediately to ensure tumor treatment. Getting port placed today. Cancer is a tricky beast. #3
#PDL1 trial might not allow TX while in rads, but can't go w/o TX for any time. Tumor doubled while waiting to get into trial 5 to 9 cm #2
After 4 days in the hospital & my first rad treatment - important decisions need to be made about staying in the trial or changing #PDL1 #1
Yesterday's miracle - PCA morphine pump. AMAZING. Today's miracle Michale who found a vein in 1 shot. Running out of veins #PDL1 trial
Update #PDL1 final question to answer. Did the trial drug start a massive immune response for my good? Will seek that answer 2day. #3
Update #PDL1 trial. ALSO, high WBC over 33,000. Monday evening find answer. Tumor on spine fractured causing many issues. So, why hi WBC? #2
Update. #PDL1 trial. Dose 1 Tuesday - hospital ER Sunday night - pain, cough, shortness of breath. Mon worst day ever. Terrible pain 1 of 3
I'm in that period when nice ppl are starting to say some amazingly dumb things to me..... this is my experience... my experience, my choice
2
Good & bad: Good, first treatment #PDL1 trial. No reactions or prob. Bad: DH realized how much of my pain was cancer & not SE of coughing
Drug only took an hour but have to stay 4 more for observation. EKG' before, after vitals every fifteen minutes. Feel fine. #PDL1 #pleasewrk
I'll be answering questions as best as I can. Telling it like it is and doing my best to inform on the #PDL1 trial I'm in with MEDI4736.