The Transverse Myelitis Association - Now SRNA (@myelitis) profile picture

The Transverse Myelitis Association - Now SRNA

@myelitis

On November 1, The Transverse Myelitis Association (TMA) will have a new name. We’ll be called the Siegel Rare Neuroimmune Association (SRNA) in honor of our fo

myelitis.org/srna
Joined October 2019
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Help us break the stigma around invisible disabilities by getting your favorite invisible/invincible merch item today: bonfire.com/store/srna #SRNArarediseasemonth #strongertogether #wearesrna #rarediseaseday #invisibleinvincible
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...“be kind, because you will meet people fighting battles you know nothing about” has never been more accurate". Read Craig’s full story of his daily battle: bit.ly/2Uvvpy5 #SRNArarediseasemonth #strongertogether #wearesrna #rarediseaseday #invisibleinvincible
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Not all people diagnosed with a rare disorder look like something is going on with them in the way of physical problems. They appear to be without symptoms. Think before you assume and... #SRNArarediseasemonth #strongertogether #wearesrna #rarediseaseday #invisibleinvincible
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We are kicking off our first week of the #SRNArarediseasemonth by shining light on all forms of disability. Help us disrupt the silence by sharing your story with us this week. #strongertogether #wearesrna #rarediseaseday
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#MotivationalMonday What's motivating you as you end 2019 and welcome in 2020? We're motivated by the number of upcoming events already planned for 2020! Check one out near you or plan one nearby! bit.ly/35965Qb #myelitis #ADEM #AFM #MOGAb #NMOSD #ON #TM #raredisease
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It's #TakeInitiativeTuesday! Take the initiative in your health and read, listen, or watch all you can about a rare neuroimmune dx. Begin in our Resource Library! #myelitis #raredisease #SRNA #ADEM #AFM #MOGAb #NMOSD #ON #TM bit.ly/34pfP9k
What Causes a Mysterious Paralysis in Children? Researchers Find Viral Clues nyti.ms/35RrK0X #afm #thisisafm #myelitis #raredisease #acuteflaccidmyelitis

What Causes a Mysterious Paralysis in Children? Researchers Find Viral Clues (Published 2019)

In one study, nearly 70 percent of children with the disease had antibodies to common enteroviruses that usually produce mild effects but can sometimes cause neurological problems.

nytimes.com
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