NOAACF (@noaacf) profile picture

NOAACF

@noaacf

The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.

Joined June 2020
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Replying to @ManneResearch @LurieChildrens @NUFeinbergMed @SusannaMcColley @NUCATSInstitute
Listen to Dr. McColley, MD, discuss newborn screening and her work promoting equity in early diagnosis and care for #cysticfibrosis on @ManneResearch's In Pursuit podcast. Hosted by Manne Research Institute Prez &CRO @DrPatrickSeed. research.luriechildrens.org/…
Image from Stanley Manne Children's Research Institute (@ManneResearch)
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I am so honored to be featured by my Alma mater, The University of Arkansas, in this beautifully written article that uniquely highlights and pays homepage to my deep Tuskegee Roots and my quest for health equity!!! news.uark.edu/articles/70592… And the Best is still yet to come! ❤

Tuskegee Roots Inspire Public Policy Alumna's Fight for Health Equality

A graduate of the doctoral program in public policy, Michele Wise Wright has focused her research on health and leadership and participated in several initiatives in healthcare and community develo...

news.uark.edu
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I am so honored for @TerryGeneWright and me to join this phenomenal 2024 lineup of cohorts during the American Thoracic Society’s Public Advisory Roundtable (PAR)'s 18th annual Patients & Expert Forum, which will take place on May 18, 2024, in San Diego, Calif! Flyer is below!
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Timely diagnosis and treatment is essential for infants with #CysticFibrosis and other disorders diagnosed by #NewbornScreening @CF_Foundation @BabysFirstTest_ @ExpectHealthOrg @SaritaEdwards @LurieChildrens @ManneResearch @CDCChronic – at Chicago, IL
Lurie Children's (@LurieChildrens) profile pictureLurie Children's@LurieChildrens21 Sep 2023
Earlier evaluation for cystic fibrosis is associated with better early life nutrition. @manneresearch Learn more luriechildrens.org/CFnewborn…. #newbornscreening #newbornscreeningawarenessmonth #cysticfibrosis
Image from Lurie Children's (@LurieChildrens)
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I'm so excited to feature the @ExpectHealthOrg video from me speaking, alongside Dr. Malika Fair, MD, MPH, FACEP, as the featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" on July 27th!!! youtube.com/watch?v=zajKPpEy…
Casual Conversations, Challenging Topics: Being Black in Healthcare — Patient and Provider Views

Casual Conversations, Challenging Topics: Being Black in Healthcare — Patient and Provider Views

There has been a lot of conversation about Black patients’ experien...

youtube.com
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“If you were not Black, I’d say you have #CysticFibrosis,” what Dr. Michele Wright’s (@noaacf) then fiance was told by a White physician 17 years before he was diagnosed with CF. #raredisease #healthequity #genetics #DEI #healthdisparities
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Grateful to ⁦@CDCgov⁩ ⁦@CF_Foundation⁩ and The Legacy of Angels Foundation for supporting our work to achieve equity in CF diagnosis ⁦@LurieChildrens⁩ ⁦@ManneResearch⁩ ⁦@noaacf⁩ ⁦@DrMeghanMcGarry⁩ luriechildrens.org/en/news-s…
Diagnosis of Cystic Fibrosis Often Missed or Delayed, Especially in Non-White Infants

Diagnosis of Cystic Fibrosis Often Missed or Delayed, Especially in Non-White Infants

Lurie Children’s is leading an awareness campaign that aims to reduce missed or delayed diagnosis of cystic fibrosis after newborn screening, especially in non-White infants. In its first phase, the...

luriechildrens.org
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Interesting Article! Should the medical world reconsider the use of race in medical algorithms? news.yahoo.com/should-the-me… Funds were granted to five organizations to reconsider the use of race in medical algorithms as the medical industry is increasingly scrutinizing centuries...
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Join us on July 27th at 1:00 PM EST to hear Dr. Michele Wright (@noaacf) and Dr. Malika Fair (@AAMCtoday) share their experiences navigating the healthcare system from the Black patient advocate and healthcare provider perspectives. Secure your spot: bit.ly/3Xzm1Iq
Image from Expecting Health (@ExpectHealthOrg)
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I am so excited to join Dr. Malika Fair, MD, MPH, FACEP as a featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" hosted by Expecting Health on Thursday, July 27, 2023, from 1-2 PM EST. us02web.zoom.us/meeting/regi…
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What an honor to be featured on the cover and as the featured article in the April 2023 issue of the Society of Motion Picture and Television Engineers (SMPTE) Motion Imaging Journal. In addition to available print copies, the digital link is as follows: smpte.org/blog/michele-wrigh…
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As I prepare to join my SMPTE cohorts to visit Atlanta University Center this week, this post brings back some wonderful HBCU vibes!!!
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With this being the climax of Black History Month coupled with being Rare Disease Day, Terry Wright and I are so honored to be featured in the February 28, 2023 issue of National Geographic Magazine written by Sr. Writer Bijal Trivedi (Article Link: nationalgeographic.com/magaz…)!
Cystic fibrosis often goes under-diagnosed—unless you’re white

Cystic fibrosis often goes under-diagnosed—unless you’re white

Anyone, of any ethnicity, can get cystic fibrosis. But for decades it has been overlooked in people of color, leading to misdiagnoses and dismal health disparities.

nationalgeographic.com
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Today's 2023 BIOMERGD Conference hosted by NOAACF was a major success. Special Thanks to NOAACF Board Members, and BIOMERGD Speakers/Participants: Roshni Kulkarni, MD; Gathline Etienne, MD; Jennifer Shedden, MD; Meghan McGarry, MD, Bijal Trivedi, & Patient Advocate, Rachel Alder!
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On February 25th, NOAACF will be hosting our 3rd Annual BIOMERGD Conference. Please Join Us and Register Here: us02web.zoom.us/webinar/regi…
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Such an wonderful and entire day to be followed and photographed by National Geographic. Stay tuned! The featured article is coming on 2-22-23!!!
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My husband @TerryGeneWright and I are most honored to be featured as Community Leaders today by AARP (in their Valentine's Day Post) in honor of Black History Month. Now, that's some Love!!!
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As we officially enter Black History Month 2023, what an immense honor from such a phenomenal organization to be named among "100 Voices for Our Planet". And to be included among such an amazing group of rare & exemplary voices is surreal. Thank you @LumbieMlambo and @JbDondolo!
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Yes it does. Just ask Dr. @JenTaylorCousar !!!
Jerome Adams (@JeromeAdamsMD) profile pictureJerome Adams
@JeromeAdamsMD20 Jan 2023
African American medical student passed me in the hall today and did a double take. As he was walking away I heard him say, “OMG- was that…?!” I turned and said, reach out if there’s ever anything I can do for you. #RepresentationMatters
Image from Jerome Adams (@JeromeAdamsMD)
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