@WellcomeTrust #OrphanDrugs: High prices, access to medicines and the transformation of #biopharmaceutical #innovation @sheffielduni @ihumansheff #raredisease
University of Sheffield
Joined March 2021
- Tweets44
- Following620
- Followers97
- Likes58
DrugOrphanisation retweeted
Just a few minutes after the Online Safety Act went into effect last night, Proton VPN signups originating in the UK surged by more than 1,400%.
Unlike previous surges, this one is sustained, and is significantly higher than when France lost access to adult content.
DrugOrphanisation retweeted
I can't because it's not true - certainly not universally. For many Uni is the best option, and will both boost their earning power, and give unique exposures to outlooks & opportunities.
What I have written though, many times, is with the increased payback, it is more important than ever for people to assess if Uni is specifically right for them, and look at alternatives. Doing it by default as you've no other ideas is certainly a bad way to do it.
DrugOrphanisation retweeted
Last call! If you are a #qualitative researcher (academic or industry) with concerns about how the move to #openaccess / #openscience fits with interpretivist modes of inquiry, then please do take part!
Survey: docs.google.com/forms/d/e/1F…
Project details:
sheffield.ac.uk/ihuman/our-w…
DrugOrphanisation retweeted
We couldn't be more excited about Dr. Jin Ding's presentation!
Will be full of insights and promising work
Monday can't come soon enough😃
We're excited for team member Dr. Jin Ding to present our @ResEngland participatory work (connected to our larger @wellcometrust project) in a Lightening Talk at @rarebeacon's #drugrepo22 next week - @sheffielduni @SheffSocScience @iHumanSheff - More at: rarebeacon.org/drug-repurpos…
DrugOrphanisation retweeted
On average 24,800 Americans were living with #ALS in 2017, according to a new report on data gathered by #ATSDR's National ALS Registry. These and other findings will help researchers measure the disease burden of ALS in the U.S. Read more at bit.ly/3K5UaY9. #ALSregistry
DrugOrphanisation retweeted
Happy Wednesday!
#1fdsm #fabry #fabrydisease #fabrydiseaseawareness #raredisease #wednesdaysquote #strength #dontquit
DrugOrphanisation retweeted
Study Highlights Barriers to #RareDisease Diagnosis
A Japanese study of patients with hereditary angioedema found that it took years for patients to achieve a diagnosis and a rare disease was not considered early enough. Learn more: ow.ly/2ZK050IOVqW
DrugOrphanisation retweeted
Would you like to be on the cover of #RarityLife magazine? We’re on the lookout for confident individuals who have a #RareDisease #ChronicCondition #Disability or #Cancer who would like to take part in a photoshoot & share their story
Email: [email protected]
DrugOrphanisation retweeted
We have approved for the first monoclonal antibody treatment for the prevention and treatment of COVID-19 in the UK.
Find our more: gov.uk/government/news/first…
DrugOrphanisation retweeted
UK drug companies fined £260m for inflating prices for NHS theguardian.com/business/202…
