A community of people living w/ SCD & trait who relate to one another without biases. Fostering a network that encourages, inspires & empowers.🩸
#spoonie
Joined July 2011
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Today, on World Sickle Cell Day, I reflect on the profound impact this disease has had on my life and the life of my younger sister, whom we lost too soon to it in October. This day is not just a moment to raise awareness but a reminder of the urgency in advancing care,
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Civil Rights Policy Tracker. All the rights you've lost, clearly explained
civilrightstracker.netlify.a…
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You’re not alone. We’re opening up the conversation at the Caregiver Summit starting with this:
✨ “What’s the biggest challenge you face as a caregiver?”
Drop your thoughts below ⬇️ and let’s discuss them together at the summit.
Checkout SCDAA Sickle Cell Awareness Month Bood Drive 2025 sleevesup.redcrossblood.org/…
Doing Well with Sickle Cell on August 9th, 2025
REC City Philadelphia
flipcause.com/secure/event_s…
A story about treatment options…
Follow Nia’s story to learn about sickle cell disease treatment options.
myscdstory.org/
Protest of Budget Cuts to National Institute of Health (NIH) and elimination of NIH/NCCIH redcap.uits.iu.edu/surveys/?…
Black Men Living — And Fathering — With Sickle Cell Disease | Essence from my sis @ItsWunmiB essence.com/health-and-welln…
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🩸 Today is #WorldSickleCellDay — the most common genetic blood disorder affects 100K+ in the U.S. & millions worldwide.
Let’s raise awareness, support those living with #SickleCell, and push for better care. ❤️💪🏾 #SCD #SickleCellAwareness
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🔊Today is World Sickle Cell Awareness Day. We are showing love to all sickle cell warriors, caregivers, researchers, funders, students, and support groups. Running a #WorldSickleCellDay campaign? Tag us and we will help amplify your message. Let’s make some noise together!
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What do you do if you find out your baby has sickle cell?
Here are some tips for what is often a very stressful time in the life of a family ♥️ #sicklecell #family
April is #MinorityHealth Month
Black Americans are 30% more likely to die young from heart disease. Latino children face higher asthma rates. Native communities have lower cancer screening rates.
VIRTUAL SYMPOSIUM ON GENE THERAPY IN SICKLE CELL DISEASE: a one-day virtual symposium dedicated to the groundbreaking advancements in gene therapy for sickle cell disease. This event brings together top researchers, clinicians, and industry leaders
edgereg.net/er/Registration/…
Why gene therapy for sickle cell is slow to catch on with patients reuters.com/business/healthc…
How doctor's mission to ease the burden of sickle cell disease in Nigeria led her to Memphis commercialappeal.com/story/n… via @memphisnews
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Sickle cell disease is an inherited blood disorder that affects millions worldwide. We ball with these great coaches, Ray Dalio, The Dalio Center for Health Justice, and NYPresbyterian for all afflicted by the disease. sicklecellball.com. #IBall4SickleCell @nyphospital