Wheelchair user due to MS - Blogger - Think in decimals - UK
UK
Joined June 2010
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I now have shingles…, excruciating pain, desperately trying to avoid it leading to any other complications.
Crossing everything to have 6 ‘healthy’ months with just MS… 😔
Returning to work after 8 months of maternity leave… can I find a wheelchair accessible taxi again?! Only if I go in after school times and arrive at work at 10 🤦🏻♀️😫 being disabled is fucking tedious.
Maybe it’s the contrast of disease at 71 against a successful career and life prior… but, having been diagnosed w MS at 16 I genuinely struggle to sympathise. 🤷🏻♀️illness makes you bitter like that
Hmmm
Jeremy Paxman says Parkinson's "makes you wish you hadn't been born."
Hate comparing neuro-diseases, but the TV presenter was diagnosed at 71. (Average onset age 60).
MS - average diagnosis 30. Pivotal time re career, relationships & having children.
bbc.co.uk/news/uk-68795161
‘staff were not trained to push different types of wheelchairs’… This is the type of bullshit I hate about the UK @EurostarUK WHAT TRAINING DO YOU NEED TO PUSH A WHEELCHAIR?! How about fricking shopping trolleys?? They’re not army tanks 🙄 theguardian.com/money/2024/a…
MSers: How much vitamin D to give to my baby to prevent MS? They’re getting the RDA through formula milk but should we do more? #multiplesclerosis #vitD
I am in total amazement that my disfunctional body grew a baby, it truly feels like the womb and nervous system operate entirely separately. 💜
thinkindecimals.wordpress.co…
Where have 9 months gone?! My experience of advanced disability and pregnancy. Rare I guess. But I would have loved to have read this a year ago!
#pregnancy #MS #wheelchair #MultipleSclerosis #Disabled
thinkindecimals.wordpress.co…
Email today from my care agency that all my morning calls will be at 7am starting TOMORROW (currently between 7/8.30 depending on my working days). No consultation. No notice. Fucking #socialcare
The hoist at Hitchin swimming pool has been broken for 3 months. @NorthHertsDC an alternative method needs to be found to let disabled swimmers use the pool?
Following the Covid lockdown, I had to re-learn to swim & it was very difficult. We should not be in this position again.
High kerbs, cobbled streets, and upstairs terraces… But still… Take me back ☀️ #wheelchairtravel
New blog - thinkindecimals.wordpress.co…
Edith Solenne Monk retweeted
Farage has finally admitted it. "Brexit has failed." Chip in now and let's make sure everybody knows what he said 👇
crowdfunder.co.uk/p/lets-put…
I managed to move into a bungalow, just a few #disability adaptations needed… simple no?
New blog - Hi again social services – think in decimals thinkindecimals.wordpress.co…
Why on earth have @DWPgovuk redesigned the MONTHLY #AccessToWork claim form from 2 pages to SIX ?! I thought the idea was to make work easier for disableds 🤦🏻♀️ #cantevenholdthisall #strugglingwithpaper
SEVEN unsuccessful canular attempts before today’s #tysabri infusion 😩 My arms hurt.
No staff to assist at Deptford station at weekends, totally fine as we all know wheelchair users only go out Monday- Friday right 😡😡😡 @Se_Railway @TLRailUK
Two years crawling through waiting lists in lockdown… it was worth a try
#botox #MultipleSclerosis
New blog: thinkindecimals.wordpress.co…
Literally yesterday I asked a social worker about having a ramp & widening doors in my potential new bungalow,
The answer: ‘ we advise people to only move to places that are already accessible‘…. Cool idea hun 🙄😡
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