Patients, scientists and artists together researching vulval diseases
UK
Joined June 2019
- Tweets265
- Following19
- Followers216
- Likes331
VisibleVulvas retweeted
Early menopause due to cancer treatment can be a shock. It can feel physically and emotionally overwhelming. It can cause difficult symptoms.
A sudden menopause (due to treatment) can cause more severe symptoms than a natural menopause.
#earlymenopause #menopause
VisibleVulvas retweeted
Really excited to start this next year. Fantastic that the NIHR have invested in research for #lichensclerosus Conditions with social taboos and stigma attached to them are often seen as less appealing to funders. I hope this brings more research to the field of vulval disease.
PEARL study NIHR Funding and Awards. Treatment of vulval LS. Looking forward to starting this work with @sophielour lead by Roz Simpson @LSclerosus @VulvalCancerUK @VulvalPainVPS. fundingawards.nihr.ac.uk/awa…
VisibleVulvas retweeted
#VulvalCancer -🧵
‘Daughter's plea over vulval cancer embarrassment’ from @BBCNews - really important story & a very tough read bbc.co.uk/news/uk-scotland-n…
VisibleVulvas retweeted
Today we invite all medical professionals who treat women to improve their skills in diagnosing, studying, and treating vulvovaginal diseases.
Watch now and learn from our issvdcourses.com/
#vulvarawarenessday #ISSVD #Womenshealth #vulvarpainspecialist #cureandcare #
VisibleVulvas retweeted
⚠️ Excellent Resource Alert! 'Pleasure & Intimacy - a guide for people living with cancer' created by Cancer Sex & Intimacy + @FruitflyC funded by @macmillancancer #GynaeCancerAwarenessMonth
👀View here issuu.com/fruitflycollective…
🖨️Get print copies: instagram.com/sex_cancer_int…
Congratulations Sophie!
Delighted to share the first publication from my @ESRC study published today! Proud of this work - these women deserve to have their voices heard. 🧵
onlinelibrary.wiley.com/doi/…
#vulvaldisease #lichensclerosus #LSresearch @BrsTrialsCentre @WarwickCTU
VisibleVulvas retweeted
We are looking to chat to women and people with gynae organs about their experiences going to the doctors about their gynae health- if you have a story to tell (whether it was positive or negative)- get in touch with [email protected].
Congratulations Vanitha! Very well deserved.
Very privileged to have been awarded a BGCS Oral Short Prize for the #EDuCATE study. Thank you to everyone who participated! Clinician-led education and support is key to supporting women at risk of #vulvalcancer feel confident with #vulvalselfexamination. @BGCS_org @bssvd_org
VisibleVulvas retweeted
Very privileged to have been awarded a BGCS Oral Short Prize for the #EDuCATE study. Thank you to everyone who participated! Clinician-led education and support is key to supporting women at risk of #vulvalcancer feel confident with #vulvalselfexamination. @BGCS_org @bssvd_org
VisibleVulvas retweeted
Great resource here for GPs. Early detection of vulval cancer saves lives and reduces morbidity to patients. But patients need to present to primary care! #Awareness #earlydetection #selfexamination #vulvalcancer @VulvalCancerUK @bssvd @DrSelvarajah @ursula_winters
.@eveappeal and @rcgp, with support from patients, have launched an elearning resource to help GPs detect #VulvalCancer. If you are GP, you can take the training course on this link: elearning.rcgp.org.uk/course……
Super talk from Vanitha @BGCS_org Early detection of vulval disease is so important @bssvd_org @eveappeal #vulva
Delighted to give pathology updates in vulval cancer at BGCS 2022 RCR contouring workshop. Important new radiotherapy guidelines for vulval cancer. @BGCS_org @eveappeal @RCPath @BAGPGynPath #vulvalcancer
VisibleVulvas retweeted
Proud to represent the @bssvd_org at #RCOG2022 world congress. Great discussion with the audience highlighting the need for more research esp RCTs in #vulval disease. @CebdNottm @FBMH_UoM @VulvalCancerUK @LSclerosus
VisibleVulvas retweeted
We are developing an online 8 week ‘Parenting with cancer’ coaching programme with a variety of experts and life coaches. What would help you as a parent living with cancer? What topics are important to you?
Please share around. Ta #parentingwithcancer
VisibleVulvas retweeted
Great news 👏🏻
We're delighted to announce the first research project funded by our #VulvalCancerResearchFund.
Researchers @imperialcollege will be looking at genetic changes to unpick how vulval precancer turns to cancer to help us be able to prevent it: bit.ly/3GgrBXo
ALT two researchers stand in a lab, they have face coverings, gloves and lab coats on. Behind them is the desk with a microscope and lots of boxes on shelves. A quote on the image says: Ash says: "Our new project will look at samples of vulval cancer using a new technology called spatial transcriptomics. This allows us to measure the gene activity in specific areas of vulval tissue. We can then build a picture of the genetic changes between normal skin, areas of inflammation, precancerous lesions and cancer. Unpicking why precancer turns into cancer can help us prevent vulval cancer from occurring.
VisibleVulvas retweeted
Really excited to be at the f2f @bssvd_org scientific meeting in #glasgow. Great first talk from @DrAmandaSelk about harnessing social media to battle misinformation @ursula_winters @VulvalCancerUK @LSclerosus #vulva #vulvaldisease @VulvalPainVPS
VisibleVulvas retweeted
We would love to know your thoughts about UK gynaecological health services!
qualtrics.manchester.ac.uk/j…
VisibleVulvas retweeted
#lifeaftercancer
once cancer treatment ends we are often just left to get on with it.
#earlymenopause is just one!
