Former BSL-2/3 Preclinical Researcher, now surviving #LONGCOVID, #MCAS, #EDS, & 20 yrs of #MECFS. Artist, Bio Major, & Dino/Bird Nerd. N95 Respirator Fanboy!😷
Get FREE N95’s in the US 👇
Joined May 2023
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Sorry I’ve been MIA.
Severe 24/7 headache upper backside of head, stiff neck, vertigo/nausea, bad balance walking, xtreme light/sound sensitivity, numbness on all L side of body.
New calcifications inside skull on CT = normal & then FND diagnosis by neuro.
What can be done?
waysidewhelp retweeted
Bonus if you use eye protection too. Sunglasses/eyeglasses w/ side shields are my fav.
Pro-tip: Put some skin-safe silicone tape inside respie nosebridge area to create a foggless seal for glasses :)
waysidewhelp retweeted
Advice:
Don ur well-fitting respie b4 you leave ur abode.
Keep it on when in shared public air unless emergency doffing is required (to prevent dehydration, hyperthermia, to have CPR performed on you etc)
Doff ur respie after you get back inside abode.
Wash ur hands.
👍
Advice:
Don ur well-fitting respie b4 you leave ur abode.
Keep it on when in shared public air unless emergency doffing is required (to prevent dehydration, hyperthermia, to have CPR performed on you etc)
Doff ur respie after you get back inside abode.
Wash ur hands.
👍
Checking in w/ all my LC peeps who I’ve missed while MIA. ❤️
How are you feeling today? Be as honest as you want. 🙏
The good, the bad, all of it. Anything you want to share/vent/put out there. Speak your mind in the replies.
👇👇👇
My pain management out of pocket costs are $700/month self pay, since the Pain Management Clinic my PCP is affiliated with refuses to help me so I can use my insurance.
ADHD treatment is $400/month oop selfpay, too.
My special medical diet for MCAS is ~$800/month. No SNAP.
waysidewhelp retweeted
Checking in w/ all my LC peeps who I’ve missed while MIA. ❤️
How are you feeling today? Be as honest as you want. 🙏
The good, the bad, all of it. Anything you want to share/vent/put out there. Speak your mind in the replies.
👇👇👇
A helpful change I recently made to my tiny studio apartment in SF is our DIY air circulation set up:
20” box fan facing inward w/ a Merv13 filter strapped to it (intake)
20” box fan stacked on top facing outward (exhaust)
Intake on high speed, exhaust low speed.
Wanna grab a quantitive CO2 monitor next. We already monitor humidity & temp. Humidity over 80% may lead to filtration failure.
While running the box fans are LOUD so I wear earplugs. But staying in the apt during the day no longer worsens my baseline. Win!
Been outta commission for a while - how much denial are ppl still in about how SARS-CoV-2 infections negatively affect a host’s immune function? 🫣
Anyone know?
Small Update:
Started 500mg Magnesium Citrate oral gelcaps 1x daily (in evening w/ meal) today.
Gonna trial this for 40 days. According to literature, that is the min timeframe needed to correct severe systemic Mg deficiency.
Will provide weekly updates.
Special thanks to @dysautonomian for explaining to me the importance of Magnesium in the body’s handling of Calcium earlier today. Without you I’d never have looked into how my symptoms fit so well with a likely severe Mg deficiency presentation!