Deb Daines

CRITICAL CONGRESSIONAL UPDATE Big step forward for ME/CFS: the L-HHS bill has passed, sending it to the President’s desk for signature. This bill contains the strongest language for ME/CFS in recent years, if ever. At #NotJustFatigue, we’ve been advocating for this for almost two years. It directs NIH to come back within 180 days with a detailed plan to implement the ME/CFS Research Roadmap. This is a huge step toward real progress—Congress is asking NIH to spell out how it will move forward on biomarkers, diagnostic tools, and clinical trials so patients can finally see a path toward treatments. The bill also calls for Long COVID research at NIH and ARPA-H to better include people with ME/CFS, PEM, and POTS, helping ensure patients aren't left out of the search for answers.