Caged Bird 🕊”living” quarantined @🏠 with ME for 22yrs / Creative soul, Analytical mind / 🌈 / #ME 💙
Joined January 2014
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ReMEmber them,
ReMEmber us,
ReMEmber #ME
and sooooo many more who passed from #severeME or who are still hidden in dark rooms without light or sound, sick to the bone, wasting away bc of #medicalneglect & #prejudice .
#MEkills #SevereMEDay #InternalMedicine #doctors
Hey @vonderleyen @GiorgiaMeloni … WTH?!
If they ‘are needed’ (big question mark seeing as they are immigration officers!) as ‘bodyguards for US diplomats etc’, they (at the very least) will be obliged to show their faces?
Shame on you both.
Say NO for once!
🚹: immune system (IS) goes faster/harder. when 🚀 they die (cytokine storm) (ex: C-pandemic. More men died),
🚺: IS slower & more moderate (re. reproduction safety?).
Q: ‘persistent immune reaction’↗️ in 🚺 w/ ‘reservoir 🦠’ & low NK cytotoxicity?
#pwme #immunology
CatEye retweeted
I just spot-checked and it looks correct that the fake tariffs are just trade deficit percentages. It seems like Trump has no actual economists on his team who could explain basic concepts to him like comparative advantage and opportunity cost. worldpopulationreview.com/co…
CatEye retweeted
This is the best summary of the current geopolitical situation I have seen. Sir Alex Younger was head of MI6 between 2014 and 2020. Really worth watching.
CatEye retweeted
Nobody says it better than Michelle. Watch this – and then make sure you’re ready to vote tomorrow: IWillVote.com
CatEye retweeted
Jennifer Aniston, who rarely makes political statements, responds to @JDVance’s comments about “childless cat ladies who are miserable at their own lives.”
“I truly can't believe this is coming from a potential VP of The United States. All I can say is...Mr. Vance, I pray that your daughter is fortunate enough to bear children of her own one day. I hope she will not need to turn to IVF as a second option. Because you are trying to take that away from her, too.”
can’t stomach reading #doctors #Medical & #hospital staff’s excuses & #gaslighting of #pwme #ME patients (even beyond death) anymore.
23yrs ill. NOTHING changed.
Tip: google “Can you die from ME?”.
If 1 medic wld have done so, Maeve wld perhaps still be alive.
#MaeveInquest
CatEye retweeted
#PwME don't choose to end their lives because they're deconditioned. They do so because they experience unbearable suffering from a physical condition for which there is no cure and which incredibly many doctors still know nothing about.
Condolences to friends and family.🕯️
CatEye retweeted
We don't know what would have happened if we hadn't got involved tonight - and the Chronic Collaboration is just two people from a council house in south London. This is insane #SaveCarlasLife #ExposeMENow
“Dr Shan&co R conducting the 1st controlled study assessing #neuroinflammation in the #brain of ppl w/ #ME (ICC).
#pwME
The team plans 2 use new advanced imaging MRI to conduct a thorough investigation of #neuro #inflammation & the #glymphatic network”
#science #research
ME Research UK is delighted to announce funding to Dr Zack Shan @usceduau for the world’s first controlled study directly assessing neuroinflammation in the brains of people with ME/CFS. Read more: meres.uk/shan062 More detailed description: meres.uk/shan062info #MECFS
CatEye retweeted
Dear researchers,
People with PEM might not participate in your Long Covid exercise study because it will make their PEM worse, but then again they might—so it’s still up to you to make sure your intervention is safe by assessing for and excluding people with PEM.
Signed,
😒
CatEye retweeted
1) "Thomas Bast, the epileptologist, has experienced in his closest circle that pacing can stabilize patients. His daughter, who was born with an immune deficiency, became ill at the age of 14 and developed severe disease. Today she is 18, in a wheelchair
zeitung.faz.net/fas/leben/20…
CatEye retweeted
8) decade at the latest, significantly more people have suffered from it than from MS.
But times change. We now know a lot about #MECFS and a lot more than we did ten years ago. “In terms of disease mechanism, ME/CFS is pretty much the most complex thing we have in medicine,”
CatEye retweeted
5) to change that, expanded the consultation hours and made #MECFS one of her research focuses. Today the professor is one of the most renowned experts in the world. Nevertheless, she experienced something similar to her patients for years: she was not taken seriously. From the
Let’s hope #science beats the #BPS cult* this time.
Before they* put their claws in #longcovid .
(Like they did w/ #ME for the past century)
We need a new “-ology” 4
post (?) #infectious illness.
+ clinic(s) w/ ‘body/brain’ specific tests (following research) & med trials.
“In the short history of studying #LongCovid, this is probably the most hopeful moment we’ve ever had”
“Researchers are optimistic that breakthroughs are coming.” time.com/6327296/long-covid-…
CatEye retweeted
A sobering but essential watch for anyone interested in how on earth so many millions of ppl with #ME #MECFS & now #LongCovid ended up so neglected, mistreated & gaslighted.
A must watch & share
The @DialoguesMECFS website is v useful resource to learn about this condition
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Neuro-inflammation in #PACS (aka long covid).
PET imaging.
#NeuroTwitter
#neuroscience
#MedEd
@be_gezondheid @RIZIV_INAMI @UZLeuven @UZAnieuws @SfNtweets @aktweetsbe @Domus_Medica @vanranstmarc
@terzaketv @deafspraaktv
We are excited to share that @MBVanElzakker & team at @MGHMartinos have published a preprint with the results of a high-resolution #LongCovid imaging study. They identified neuroinflammation across a wide range of brain regions in LongCovid patients: polybio.org/polybio-supporte…