CEO of OpenApp, specialists in health informatics, focused on health intelligence and patient registries. #ERN #rarediseases #RealWorldData #NaturalHistory
Dublin, Ireland
Joined May 2012
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Con Hennessy retweeted
Ireland’s National Centre for Inherited Metabolic Disorders @TempleStreetHos delighted to join metabERN as a full member.
Much work went into the process, special thanks to : Dr Monavari, @Meabheos @eilismurphy5 @CeoHardiman @Ampforan
Con Hennessy retweeted
The Irish EB registry is open. Should you, or someone you care for, be interested you can now opt to discuss the registry with the CHI EB team over the phone or online rather than in person. Contact [email protected] to arrange a time that suits you.
Con Hennessy retweeted
We are delighted to be featured in the current issue of @RareRevolutionM !
Our own @ConHennessy and @LisaChiyo debunk some of the common myths associated with #patientregistries.
Check it out here!
>> bit.ly/Myths-Facts <<
Con Hennessy retweeted
Two villages missing their idiots in waterford tonight. Was abused for wearing a mask as am now part of the government conspiracy to manage the population with the assistance of RTE apparently. When the two scientifically based researchers who use google as their source 1/3
They can also allow quality of care comparisons across diverse clinical settings.
Patient groups need to better understand their disease so that they have control over their disease. Natural history studies do this and they help attract industry to your disease. - @nashafitter1, @foxg1research #2020RDDS
Con Hennessy retweeted
irishexaminer.com/breakingne…
Hey everyone ❤️ the amazing @Aine_Kenny_ covered this article, please do read and share!
Con Hennessy retweeted
Good Morning! About to kick-off the second day of #ECRD2020 and looking forward to more incredible speakers and discussions with booth visitors! Come talk #patientregistries with us! #RareDiseases
Con Hennessy retweeted
Delighted to announce we will be attending the virtual European Conference on Rare Diseases & Orphan Products 2020 #ECRD2020 which kicks off tomorrow! If you are registered to attend, please stop by our virtual booth and say hi 👋🏻! #rarediseases #patientregistry
Con Hennessy retweeted
The INPDR is a groundbreaking global database of Niemann-Pick Disease patients.
Our aim is to improve the lives of patients & their families through:
📊 powerful data
🔬 better research
⚖️ equitable access
🏥 improved diagnostics.
Visit inpdr.org to find out more
Con Hennessy retweeted
The @SecureAa #patientregistry’s sister registry @ad_secure is now available with Spanish, in addition to English & Chinese.
Be grateful if you could spread the word @Desaze @SergioVanoG @DrRamonGrimalt
Con Hennessy retweeted
Lovely to be part of a developing network of #Dermatology #patientregistries
Just published @BrJDermatol we describe how @PsoProtect& @ad_secure have created global registries to inform care during #COVID19 for patients with #psoriasis & #atopicdermatitis
onlinelibrary.wiley.com/doi/…
Con Hennessy retweeted
Dear customers.
It is with deep regret that we have come to the point where we feel that we need to post this message. COVID-19 has affected all of us in many ways, and none more so than our team #challenges #COVID19
Con Hennessy retweeted
Two weeks ago, Dr. Fauci said that he'd want Brad Pitt to play him.
Two weeks later, Brad Pitt is playing Dr. Fauci on SNL.
Con Hennessy retweeted
As a kid I remember my Sunday nights filled with dread for the school days ahead... think many parents will be feeling the same right now... that’s why this message is sooo important... #homeschooling #anxiety #BeKind #GoEasyOnYourself – at Chester, England
Con Hennessy retweeted
This is brilliant. Really clear explanation of just how tight the margins are for getting the next few weeks and months right.
This is how Angela Merkel explained the effect of a higher #covid19 infection rate on the country's health system.
This part of today's press conf was great, so I just added English subtitels for all non-German speakers. #flattenthecurve
More front line workers showing us that their concerns are focused on those in need of support.
Sergio tiene una discapacidad del 86%. Para el poder salir es como una medicina. Hoy se ha parado un coche de la @policia . Yo esperaba que nos pidiera un informe médico que justificarse su salida. Pero no... (Abro hilo)
Con Hennessy retweeted
#SECUREAD - the registry for patients with #atopicdermatitis (#eczema) treated with systemics with #COVID19 is live. Please report any known cases to the registry to help us all understand the risk of #COVID19 in AD covidderm.org/login/?next=/i…
@irvinederm @DmitriWall
We at @OpenappIreland are delighted to work with the Specialisterne team.
We are delighted to announce that Part 1 of The Ability Series: Introducing Specialisterne Ireland & SAP - A Case Study in Best Practice is now live!! Thank you to
@AsIAmIreland
for your support here. youtube.com/watch?v=1xVK74Cc… #autism #specialist #recruitment #euinmyregion