International software company providing healthcare IT solutions to Health Executives, Patient Organisations & Pharmaceuticals. #evidenceforhealthcare
Dublin, Ireland
Joined April 2014
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Openapp - an IQVIA business retweeted
We had a great day in Cork on Tuesday, meeting with our friends at @SkinRegs to share learning, research & talking all things registries!
Excellent piece which provides an illuminating view on registry set up, operation and sustainability!
#realworlddata #patientregistires
Today, HRCI & our collaborators NISR & CFRI publish 𝐔𝐧𝐥𝐨𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐏𝐨𝐭𝐞𝐧𝐭𝐢𝐚𝐥 𝐨𝐟 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐢𝐞𝐬: 𝐀 𝐆𝐮𝐢𝐝𝐞 𝐟𝐨𝐫 𝐒𝐮𝐜𝐜𝐞𝐬𝐬. It lays out practical advice on developing & sustaining a patient registry. bit.ly/RegGuide2023
We can't wait to read what will be a very informative piece on effective patient registries. We know first-hand how knowledgeable the CFRI team are through collaborating on their successful patient registry!
#patientregistries
Excellent article in the Medical Independent highlighting the need to prioritize the patient voice/experience in rare disease research!
#rarediseaseresearch #patientengagement
Thanks to @med_indonews for highlighting patient engagement in research activities in rare diseases! Great to see the Rare Disease Clinical Trial Network @rare_trial growing and reaching the rare community. Read the article here bit.ly/MedIndoRDCTN #HealthResearchMatters
Openapp - an IQVIA business retweeted
It’s the perfect weather for a park stroll, and our GeoFindIt knows just where to go 🍃🚶♂️
Join us on a sunny exploration as we uncover the best nearby parks for today’s outdoor adventure.
Download our GeoFindIt app now 👉 geodirectory.ie/products-ser…
For everything you need to know about GDPR for patient data:openapp.ie/openapp-is-your-b…
#GDPR #Patientregistrysoftware
What types of software maintenance are found in the software development life cycle? The 4 critical pillars of your healthcare software development plan: openapp.ie/why-software-main…
#softwaremaintenance #softwaresupport
Openapp - an IQVIA business retweeted
Unveiling Q2 2023 Irish Property Trends🏡
Discover the latest numbers, trends, and insights shaping the future of #IrishRealEstate! From rising #ConstructionRates to changing #Vacancy figures, it's all here 📊🏢
Read our latest blog ow.ly/KTxo50PCgkT
We are delighted to bring you our SMArtCARE case study, accessible here: openapp.ie/smartcare-patient…
#realworlddata #patientregistries #raredisease
For everything you need to know about GDPR for patient data! openapp.ie/openapp-is-your-b…
#GDPR #Patientdata #patientregistry
Openapp - an IQVIA business retweeted
Save the date--
Sunday, September 17, 2023
join.ctf.org/2023chlasymposi…
NF1 Medical Symposium, hosted by Children's Hospital of Los Angeles, NF California and CTF
8:30am-3:00pm PT
Openapp - an IQVIA business retweeted
GeoDirectory's latest Residential Buildings Report found that there are 21,134 #derelict units nationwide, with Connaught accounting for the highest units at 37.1% 🏚️
Access the full report 👉 ow.ly/GeBb50PzqL3
OR read via @RTE_PrimeTime rte.ie/news/primetime/2023/0…
Here is an excellent resource comprehensively detailing the National Alpha-1 Antitrypsin Deficiency (AATD) Registry: alpha1.ie/irish-alpha-1-regi…
#alpha1awareness #raredisease #patientregistries
With #InternationalAlopeciaDay this Saturday gone, we wanted to highlight the work we've been doing in collaboration with GRASS to develop an international registry platform for alopecia areata.
For info on how to get involved please visit: nisrsolutions.com/registry/t…
Openapp - an IQVIA business retweeted
Our residential property report found the number of buildings under construction in Ireland increased by 2% in Q2 2023, compared to last year.
⬆️ Co. Dublin had the highest activity
⬇️ Co. Leitrim had the lowest activity
Learn more here: ow.ly/bIuz50PqC3C
Openapp - an IQVIA business retweeted
Don't forget to join us on our next virtual NF2 Meetup on Thursday, August 3 at 7 PM ET!
Link to register:
ctf.zoom.us/meeting/register…
Live captioning will be available. #EndNF #NF2
Mark your calendar for our next virtual NF2 Meetup on Thursday, August 3 at 7 PM ET for a presentation of the NF2-related research from the 2023 NF Medical Conference.
Please join us by registering here: ctf.zoom.us/meeting/register…
Live captioning will be available. #EndNF #NF2
Excellent video series introducing the faces behind the @inpdr_registry who are advancing the knowledge and care for Niemann Pick: youtube.com/watch?v=NNoImSbl…
#raredisease #patientregistrysoftware #niemannpick
An excellent paper distributed highlighting the utility of patient registries for informing regulatory authorities on rare disease medicinal products: frontiersin.org/articles/10.…
#patientregistries #realworlddata #raredisease
If you didn't catch our CEO @ConHennessy's interview with Rare Revolution Magazine, it is now being featured as part of their throwback series!
#patientregistrysoftware #raredisease #ceo
#ThrowbackThursday is back, and this time we revisit Con Hennessy of Open App.
With a background in IT and the healthcare system, Con Hennessy became CEO of OpenApp in 2017.
Read Con's full feature here: bit.ly/42zdUMH
Check out our Children Tumor Foundation Patient Registry case study! openapp.ie/childrens-tumor-f…
#raredisease #realworlddata #patientregistries