Campaigning for NHS prescription for medical cannabis for Teagan & all who need it to treat epilepsy #helpforteagan
Joined October 2018
- Tweets824
- Following237
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HelpForTeagan retweeted
Unable to continue the long-term costs of advanced cannabis medicines, Teagan has deteriorated, requiring intubation. Further treatments haven't been effective. We hope @DHSCgovuk considers our recommendations and brings about urgent access.
#dravetsyndrome
#epilepsy
HelpForTeagan retweeted
Joining me & @julesserkin on next weeks #BBunker Radio Show our guests are
Oliver & Lucy @prinfab
Emma @ForTeagan
All the details here ==> bizradio.co.uk
HelpForTeagan retweeted
#ThereSheGoes It still hits true and depicts the realities & little moments life throws up as a #rarechromo parent. It just keeps on delivering & removing the mystery of our world & a shout out in the episode for @Unique_charity too 😊 #idic15 #dup15q
HelpForTeagan retweeted
Spent the day interviewing parents of children left in a bleak situation with their cannabis prescriptions. Many are going to end up back in ICU. Some will die.
Because funding and manufacturing their medication in the UK isn't profitable.
The price of a child's life.
HelpForTeagan retweeted
Finding your community can make all the difference.
We're here for you.
#MentalHealthAwarenessWeek
HelpForTeagan retweeted
I attended @cannabiseuropa last week and spoke on a panel about the continued issues around access for children to cannabis based medicines. I was humbled to hear about what happens when there’s no access, families are forced to illegally access cannabis. (1) #westandwithyou
HelpForTeagan retweeted
A post about when I met @MattHancock. It’s very topical as he’s on @imacelebrity and I know many parents like me feel very angry that he’s been allowed to be on the show and receive a vast sum of money in return. I met Matt in his office in early 2020 (1)
HelpForTeagan retweeted
l.facebook.com/l.php?u=https… please vote for my daughter Even just to share my grandaughter story thank you @ForTeagan
HelpForTeagan retweeted
This is beyond evil. Taking a life saving drug away that was legalised but not given freely. @ForTeagan
Parents fundraise £2k a month to buy this. Now their lifeline has been stolen from them. PLEASE RT people need to see this. @JeremyVineOn5
cannabishealthnews.co.uk/202…
HelpForTeagan retweeted
A plea please to check out @ForTeagan page and the shocking news that the MHRA has removed the compassionate licence to import a lifesaving type of medical cannabis. Gov legalised in 2018, families still have to self fund at £2k per month, now can't even get it.
HelpForTeagan retweeted
Hi Paul, me again!! Please can you give a huge shout out to the amazing Emma Appleby, mum of Teagan @ForTeagan who works her bottom off to fundraise for lifesaving meds for her daughter. Any local business who can help them would be incredible. She is truly amazing. Thanks 😊 xx
HelpForTeagan retweeted
Please vote for my grandaughter she is a true fighter it takes one minute just a name and email @ForTeagan thank you
Congratulations to Teagan Appleby @ForTeagan who has been nominated for the Positive Role Model Award for Disability: sponsored by @ovoenergy at The National Diversity Awards 2022 in association with @itvnews. To vote please visit nationaldiversityawards.co.u… #NDA22 #VotingNowOpen
HelpForTeagan retweeted
Congratulations to Teagan Appleby @ForTeagan who has been nominated for the Positive Role Model Award for Disability: sponsored by @ovoenergy at The National Diversity Awards 2022 in association with @itvnews. To vote please visit nationaldiversityawards.co.u… #NDA22 #VotingNowOpen
HelpForTeagan retweeted
If you want to see the definition of brave, look no further. Am over the moon that Teagan from @ForTeagan had been shortlisted for this award. Please take a minute to vote. She is incredible 😍
Teagan Appleby nationaldiversityawards.co.u…
HelpForTeagan retweeted
Medical cannabis was rightly legalised in 2018 but since then only three prescriptions have been issued.
In Parliament I was pleased to join with the End Our Pain campaign in calling for improved patient access.
HelpForTeagan retweeted
Another crucial point made by @AndyMcDonaldMP. Parents cannot and should not have to pay up to £2000 a month simply to keep their children safe. It is both unjust and unsustainable to expect them to continue to do so three years later. #medicalcannabis
HelpForTeagan retweeted
Important point made by @IanByrneMP on behalf of his constituent during the debate yesterday: "My time together with my son is precious, and I shouldn’t have to keep fighting.. the Health Secretary @sajidjavid must help now before it’s too late."
HelpForTeagan retweeted
Hugely powerful speech made by @AndyMcDonaldMP yesterday during the #medicalcannabis debate. This medicine has proved life transforming for so many children with #epilepsy. Families are calling for better access as they simply want to keep their children safe.
HelpForTeagan retweeted
We are very grateful to APPG Co-Chair @AlbertoCostaMP for his continued support, as yesterday he hosted a debate in #Westminsterhall on #medicalcannabis under prescription for children with #epilepsy. This is a legal medicine that has proved life transforming for these children.
HelpForTeagan retweeted
Please Watch & Share
A Huge Thank You To BBC Wales Who Gave Us Amazing Coverage For Bailey Yesterday. They Are Bewildered As Too Why We Are Still In This Same Position 3Yrs On Since The Law Change !
@sajidjavid Javid End Our Pain
#cruellydeniedNHSaccess
m.facebook.com/story.php?sto…