HD Genetics retweeted
Proud to be part of both @HuntingtonSG amd @HD_Genetics and couldn’t be happier to see them together!!! 💕 Congratulations @BJsView and @WesSolem!!
pr.com/press-release/919586
HD Genetics retweeted
Find out about @HD_Genetics' new service as BJ Viau joins us on #Help4HDLive! Hear the details this TOMORROW at 1pm PST! blogtalkradio.com/help4hd
Listen later on your streaming service: Spotify, iTunes, iHeartRadio, or Blog Talk.
HD Genetics retweeted
Happening in 1 Hour! HDYou Community Stories - Robyn’s Testing Story! Thanks to Wes from @HD_Genetics! @EHDN_GRANTM @hdfcures @HuntingtonSG @HDA_tweeting
youtube.com/watch?v=tw9yuTfv…
HD Genetics retweeted
The director’s cut: how CAG repeats change the editing of genetic messages - ift.tt/WXdOtiq
HD Genetics retweeted
#HSG2023 is set for November 2-4 in Phoenix. Dr. Amy-Lee Bredlau will present during the Clinical Trial Round-Up on Friday, and during the Research Blitz: New & Upcoming Studies with Q&A on Saturday. Register by October 17 and join us! bit.ly/3LXsND9 #HuntingtonsDisease
HD Genetics retweeted
Wes Solem, Director of @HD_Genetics joins us Oct 14th! Learn more about at home genetic testing for those at-risk for HD at #Help4HD Symposium in #SanDiegoCA! Register for FREE! #HDGenetics #Help4HDSympo2023 #HuntingtonsDisease
help4hd.org/events-1/help-4-…
HD Genetics retweeted
THREAD 1/4! I'm approaching 30 years since I learned my Mom had the genetic mutation for Huntington's Disease and my family joined the war against HD.
Many years later the battle hasn't gotten any easier!
HD Genetics retweeted
Our treatment for #chorea associated with Huntington's disease (HD) in adults has been approved by @US_FDA to help reduce involuntary movements. Learn more about the impact of this approval for the HD community: bit.ly/45hP0U8 #HuntingtonsDisease
HD Genetics retweeted
Happening in 20 minutes - Emma & RJ's Testing Story! Learn about their genetic testing experiences and how learning their results has changed their lives.
@HDA_tweeting @EHDN_GRANTM @PTCBio @EuroHuntington @HD_Genetics @SageBiotech @uniQure_NV @TevaUSA
youtu.be/tG3LbHf7nwA
HD Genetics retweeted
Hear from @HD_Genetics Director Wes Solem about #HD genetic #testing and #counseling SATURDAY at #Help4HD HIPE! #HDGenetics #DetroitMI #Help4HDHIPE2023
help4hd.org/events-1/help-4-…
HD Genetics retweeted
HDYou Community Stories - Testing Negative
RJ (US) and Emma (UK) sat down with HDYO Ed. Committee Member and Genetic Counselor from @HD_Genetics, Wes, to tell their stories. Tune in on Monday, August 7th at 12 p.m. ET/5 p.m. GMT.
@TevaUSA @EHDN_GRANTM @uniQure_NV @SageBiotech
HD Genetics retweeted
HDYO is invested in breaking down the many barriers of #huntingtonsdisease. On Thursday, July 27 at 12 pm EST, we will be premiering a discussion with Dr. Michael Hayden from @PrileniaTx to talk about the latest updates on PROOF-HD. Links to come. Mark your calendars!
HD Genetics retweeted
REGISTRATION IS COMING SOON!
You do not want to miss #HSG2023 in Phoenix, Arizona!
This year we are celebrating the 30th anniversary of the Huntington Study Group and the discovery of the HD gene! #HuntingtonsDisease #ThrowbackThursday
More info: huntingtonstudygroup.org/hsg…
HD Genetics retweeted
Do you want to make a difference in the lives of the international Huntington's disease community through marketing? JOIN OUR MARKETING COMMITTEE! We are looking for international marketing and/or SEO experience to propel the HDYO mission.
Interested? Email [email protected].
HD Genetics retweeted
Help 4 HD welcomes @BJ Viau , the director of @HD_Genetics! Listen in next week at our virtual #HIPE on July 1st! #Help4HD #Help4HDHIPE2023 #HuntingtonsDisease
Join us July 1st 8am-1:30pm PST. Click here to register today: help4hd.org/events-1/help-4-…
HD Genetics retweeted
This morning, we shared positive interim data from the 12-week portion of the PIVOT-HD Phase 2 study of PTC518 in Huntington’s disease (HD) patients. Read more: ir.ptcbio.com/news-releases/… #Huntingtonsdisease
HD Genetics retweeted
Today we announced promising interim data from our trial of #genetherapy AMT-130. The encouraging update shows early signs of potential clinical benefit and supportive trends in key biomarker NfL, providing early hope for #huntingtonsdisease patients. uniqure.gcs-web.com/news-rel…
HD Genetics retweeted
Join us next Tuesday, June 20th at 5pm PST for #Support group! Talk with other #JHD Caregivers who can relate to you. Inbox us for the zoom link or contact us here: help4hd.org/contact #Help4HD #JuvenileHuntingtonsDisease #Caregivers
HD Genetics retweeted
Share Your Thoughts. What's something you would advise doing before getting tested for HD/ JHD? #GeneticTesting #diagnosis
Thinking about getting tested? @HD_Genetics is a great resource. Check out their page or feel free to message us for more information






















