Mother, writer, campaigner. Living w/ multiple sclerosis #MS since 2012. Powered by #Lemtrada. 🏴󠁧󠁢󠁳󠁣󠁴󠁿🇳🇴🏳️‍🌈

Scandi-Scot in Wales, UK
Joined November 2012
10 years ago, I was struggling to finish my degree after being diagnosed with #MS. Today, I passed my #PhD viva!
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How could they. We have been so honest & open about how donations to our small self funding charity are spent and then I read this. bbc.co.uk/news/articles/c86q…
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Sir Chris Hoy says he has terminal cancer and his wife Sarra has an aggressive form of MS Yet he remains positive and still feels ‘lucky’ Can only admire the resilience and attitude of some people
Sir Chris Hoy, the six-time Olympic gold medallist, announced in February that he has cancer. Now, he reveals publicly that his illness is incurable. He tells us how he is determined to find hope and happiness on the home straight thetimes.com/magazines/the-s…
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Just landed in Perth, Australia from London, on the way to see my son (the Teenager from my blog!) for his 25th birthday. Three nights to get over #MS travelling then on to Melbourne to finally, finally give him a big hug after almost two years away 🤗
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Paris Olympics open today! Even more special as twins @Laviai & @LinaFJNielsen are among Team GB's best Olympic gold medal hopes. Both have MS. They are running the 4x400m relay. Laviai is also going for gold in the 400m & Lina in the 400m hurdles. olympics.com/en/news/laviai-…
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Fabulous evening, beautiful poetry, thank you! 🤗
I'm so thrilled to be supporting @DustyCutPhil along with Jonathan Edwards as he launches his new book. Tomorrow night at the @TSSWales . Please come and also lend support to Phil, a talented writer and musician and all round lovely human! @LitWales @SerenBooks
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Ocrevus jab approved in England! People with MS on Ocrevus/ocrelizumab can now have a 10 min injection vs current 4/5 hr hospital infusion. The injection is just as effective as the infusion, trials have shown. Over 9,000 ppl in England are on Ocrevus. theguardian.com/society/arti…
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Early birthday presents before we visit my son in Melbourne, Australia for his 25th birthday ( aka The Teenager in my blog) 🤗. He moved there on a whim and loves it so much, I think he’s staying 🫤
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Pulp cover of the day.
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It has come to my attention that in Norway “up and not crying” is a fairly common response to “how are you” and I demand the rest of us adopt this immediately
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In case u couldn't read it before: Why I set up the RH Prize for Women's Research You don't have to be a man to win an MS research award, but it sure helps... % of women scientists awarded: Charcot Award - 5% John Dystel Prize - 10% Barancik Prize - 20% multiple-sclerosis-research.…
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Barbara is all of us
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“If disabled people were represented in politics according to their proportion of the UK population, there would be about 136 disabled MPs. There were, in fact, just five in 2021.” @Lucy_Webster_ theguardian.com/commentisfre…
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On #WorldMSDay, I’m beyond grateful to everyone who has supported me since May 2012. A huge thank you! 🤗.
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Broke: prince of Wales in a boring velvet suit at the BAFTAs Woke: Norwegian salmon billionaire as a decaying garden statue in a fable about destruction and cyclicality
Replying to @MediumSizeMeech
I don’t really understand Gustav Magnar Witzoe’s look, but he’s worth $3.8B and I think we should have lunch
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We share the sad news that our founder, boob chief, colleague, friend and queen of glittering turds, Kris, has died. Kris approached life in a creative, fun and fearless way, showing us that it is possible to live life to the full with cancer. Statement at coppafeel.org
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