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NF Forward

@NFForward

We are a non-profit funding neurofibromatosis (NF) research with audacious, high-reaching goals that will bring us closer to a cure for NF.

 Detroit, MI
nfforwarddetroit.org/
Joined March 2018
  • Tweets83
  • Following320
  • Followers342
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Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)
Thank you for helping us raise $3 MILLION in support of #beNeFit XI! We cannot thank our sponsors enough for the tremendous outpouring of support this year. See you November 18th! ⁠ #beNeFitXI #nfforward #endNF
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Meet our 2023 Intern, Caroline Miota! She recently graduated from Michigan State University and her primary responsibilities include assisting in the execution of beNeFit XI. Caroline can't wait to work with our great donors and supporters! #nfforwarddetroit #beNeFitXI
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beNeFit XI -Save the date November 18th! #beNeFitXI
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On May 17, 2023, landmarks across the world lit up in blue and green for the Shine a Light Campaign promoting NF awareness. Many buildings across Detroit showed their support for National NF Awareness Day. Thank you to all the participating buildings💙💚 #EndNF #ShineALightonNF
Image from NF Forward (@NFForward)
Image from NF Forward (@NFForward)
Image from NF Forward (@NFForward)
Image from NF Forward (@NFForward)
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We have partnered with @NFForward and @ChildrensTumor to launch the Bow Tie campaign. We're dedicating our 2022-23 season to Nick Gilbert and the millions of others impacted by neurofibromatosis (NF). Learn more at on.nba.com/3gGfZnY!
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Image from Cleveland Cavaliers (@cavs)
Image from Cleveland Cavaliers (@cavs)
Image from Cleveland Cavaliers (@cavs)
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On May 17, 2022, landmarks across the world lit up in blue and green for the Shine a Light Campaign promoting NF awareness. Check out some participating buildings in the Detroit area and go to our website for the full list!
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On World NF Awareness Day, and every day we strive to shine a light on the cause and the people living with NF. We are committed to continuing our work and supporting efforts to accelerate a cure. #MakeNFVisible #endnf #NF
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Image from NF Forward (@NFForward)
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Today is the day! If you are watching from the comfort of your home click the link below to join the live stream. See you soon! youtu.be/JHvxtiB49NM
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We are excited to announce a new study aimed to understand the mechanisms of vision loss caused by NF1-OPG. Led by Drs. Rob Avery @ChildrensPhila and Jeff Goldberg @StanfordMed, findings will help inform future therapies and validate existing models. gilbertfamilyfoundation.org/…
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GFF is excited to announce a new clinical study in collaboration with @CHOPCancerCntr and the Children's Oncology Group to validate optical coherence tomography (OCT) as a biomarker for treatment response in NF1 patients with optic pathway gliomas. gilbertfamilyfoundation.org/…
Gilbert Family Foundation Collaborates with the Children’s Oncology Group and Children’s Hospital...

Gilbert Family Foundation Collaborates with the Children’s Oncology Group and Children’s Hospital...

The Gilbert Family Foundation today announced the launch of a clinical study that aims to validate optical coherence tomography (OCT) as a tool to objectively assess the visual system and its...

gilbertfamilyfoundation.org
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A clinical study funded by @GilbertFamilyFd will allow CHOP researchers to partner with the Children's Oncology Group to validate optical coherence tomography (OCT) to measure NF1-related progressive vision loss. Learn more at: bit.ly/3B4JbLf. #ForBreakthroughs
Image from Cancer Center @ CHOP (@CHOPCancerCntr)
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*BIG NEWS* KOSELUGO APPROVED BY THE EU COMMISSION FOR CHILDREN W/ NF1 & PLEXIFORM NEUROFIBROMAS astrazeneca.com/media-centre…

Koselugo approved in the EU for children with neurofibromatosis type 1 and plexiform neurofibromas

astrazeneca.com
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Countdown is on... mark your calendars for beNeFit IX! #beNeFitIX #NFForward #NFF #beNeFit
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We were proud to illuminate The Albert and The Scott blue and green for the Shine a Light on NF campaign. Learn how more Detroit organizations helped #makeNFvisible in @cbsdetroit’s article! #EndNF detroit.cbslocal.com/2021/05… @BedrockDetroit @ChildrensTumor @NFForward
Bedrock Detroit Partners With Property Owners To Illuminate Detroit Buildings For NF Awareness

Bedrock Detroit Partners With Property Owners To Illuminate Detroit Buildings For NF Awareness

Bedrock Detroit has partnered with other local property owners to "Shine a Light" on neurofibromatosis (NF) this month by illuminating buildings across downtown Detroit in green and blue.

cbsnews.com
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Thank you @BedrockDetroit for partnering with us to raise awareness and Shine a Light in Detroit!
Bedrock (@BedrockDetroit) profile pictureBedrock
@BedrockDetroit18 May 2021
Through the end of the month, Bedrock and community partners are ‘Shining a Light’ on Neurofibromatosis (NF) by illuminating buildings blue and green. Shine a Light on NF is an awareness campaign spearheaded by @ChildrensTumor. #EndNF
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Image from Bedrock (@BedrockDetroit)
Image from Bedrock (@BedrockDetroit)
Image from Bedrock (@BedrockDetroit)
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Thank you for joining us and @ChildrensTumor in our fight to #makeNFvisible!
Broder & Sachse (@brodersachse) profile pictureBroder & Sachse@brodersachse18 May 2021
In support of the Shine a Light on NF campaign, @brodersachse’s The Albert - Capitol Park and The Scott at Brush Park went blue yesterday on World NF Awareness Day! Let’s #EndNF together! Beyond NF Awareness Month, please help us continue to #makeNFvisible.
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Image from Broder & Sachse (@brodersachse)
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NF Forward retweeted
Allan (@raptolemy) profile picture
Allan@raptolemy18 May 2021
Replying to @NFForward
Everyone’s fight is different - but what a strong community! Briella’s our fighter. #TruroCivicSquare #May17 #EndNF #NFAwarenessDay #shinealightonNF #CTF
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Today is #WorldNFDay - join us this week as we continue to raise awareness for NF. #MakeNFVisible
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NF causes tumors to grow on nerves throughout the body. #makenfvisible #neurofibromatosis #endnf
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NF Forward retweeted
Renie Moss (@RenieMoss) profile picture
Renie Moss@RenieMoss10 Apr 2021
Our son’s inoperable NF plexiform neck tumor is again, cowering in the face of our fierce efforts to defeat it. #Koselugo or #selumetinib as we have known it for 6 years now, continues to be an answer to prayer. Today’s battle is won but our war with NF1 continues. #endnf 💚💙
Image from Renie Moss (@RenieMoss)
Image from Renie Moss (@RenieMoss)
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