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NF Forward (@NFForward) profile picture

NF Forward

@NFForward

We are a non-profit funding neurofibromatosis (NF) research with audacious, high-reaching goals that will bring us closer to a cure for NF.

 Detroit, MI
nfforwarddetroit.org/
Joined March 2018
  • Tweets83
  • Following320
  • Followers342
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Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)Photo by NF Forward (@NFForward)
We have partnered with @NFForward and @ChildrensTumor to launch the Bow Tie campaign. We're dedicating our 2022-23 season to Nick Gilbert and the millions of others impacted by neurofibromatosis (NF). Learn more at on.nba.com/3gGfZnY!
Image from Cleveland Cavaliers (@cavs)
Image from Cleveland Cavaliers (@cavs)
Image from Cleveland Cavaliers (@cavs)
Image from Cleveland Cavaliers (@cavs)
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We are excited to announce a new study aimed to understand the mechanisms of vision loss caused by NF1-OPG. Led by Drs. Rob Avery @ChildrensPhila and Jeff Goldberg @StanfordMed, findings will help inform future therapies and validate existing models. gilbertfamilyfoundation.org/…
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GFF is excited to announce a new clinical study in collaboration with @CHOPCancerCntr and the Children's Oncology Group to validate optical coherence tomography (OCT) as a biomarker for treatment response in NF1 patients with optic pathway gliomas. gilbertfamilyfoundation.org/…
Gilbert Family Foundation Collaborates with the Children’s Oncology Group and Children’s Hospital...

Gilbert Family Foundation Collaborates with the Children’s Oncology Group and Children’s Hospital...

The Gilbert Family Foundation today announced the launch of a clinical study that aims to validate optical coherence tomography (OCT) as a tool to objectively assess the visual system and its...

gilbertfamilyfoundation.org
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A clinical study funded by @GilbertFamilyFd will allow CHOP researchers to partner with the Children's Oncology Group to validate optical coherence tomography (OCT) to measure NF1-related progressive vision loss. Learn more at: bit.ly/3B4JbLf. #ForBreakthroughs
Image from Cancer Center @ CHOP (@CHOPCancerCntr)
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*BIG NEWS* KOSELUGO APPROVED BY THE EU COMMISSION FOR CHILDREN W/ NF1 & PLEXIFORM NEUROFIBROMAS astrazeneca.com/media-centre…

Koselugo approved in the EU for children with neurofibromatosis type 1 and plexiform neurofibromas

astrazeneca.com
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We were proud to illuminate The Albert and The Scott blue and green for the Shine a Light on NF campaign. Learn how more Detroit organizations helped #makeNFvisible in @cbsdetroit’s article! #EndNF detroit.cbslocal.com/2021/05… @BedrockDetroit @ChildrensTumor @NFForward
Bedrock Detroit Partners With Property Owners To Illuminate Detroit Buildings For NF Awareness

Bedrock Detroit Partners With Property Owners To Illuminate Detroit Buildings For NF Awareness

Bedrock Detroit has partnered with other local property owners to "Shine a Light" on neurofibromatosis (NF) this month by illuminating buildings across downtown Detroit in green and blue.

cbsnews.com
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NF Forward retweeted
Allan (@raptolemy) profile picture
Allan@raptolemy18 May 2021
Replying to @NFForward
Everyone’s fight is different - but what a strong community! Briella’s our fighter. #TruroCivicSquare #May17 #EndNF #NFAwarenessDay #shinealightonNF #CTF
Image from Allan (@raptolemy)
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NF causes tumors to grow on nerves throughout the body. #makenfvisible #neurofibromatosis #endnf
Image from Children's Tumor Fdn (@ChildrensTumor)
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NF Forward retweeted
Renie Moss (@RenieMoss) profile picture
Renie Moss@RenieMoss10 Apr 2021
Our son’s inoperable NF plexiform neck tumor is again, cowering in the face of our fierce efforts to defeat it. #Koselugo or #selumetinib as we have known it for 6 years now, continues to be an answer to prayer. Today’s battle is won but our war with NF1 continues. #endnf 💚💙
Image from Renie Moss (@RenieMoss)
Image from Renie Moss (@RenieMoss)
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One year ago today, the #FDA announced the approval of the first-ever drug for use in NF patients with inoperable plexiform neurofibromas, Koselugo (selumetinib)!! (1-)
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One of many organizations we are proud to support is @NFForward, a nonprofit striving to raise awareness about neurofibromatosis (NF) among a wide range of individuals and invite their support of this innovative vision. Click to learn more: buff.ly/2N2nmHv
Image from Consilio LLC (@ConsilioGlobal)
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NF1 is the most common type of NF, and is usually, but not always, diagnosed in early childhood. #EndNF#NF1
Image from Children's Tumor Fdn (@ChildrensTumor)
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On 5/17, World NF Awareness Day, tune in at 7PM ET, when we'll be joined by well-known actors, musicians, athletes, comedians, chefs, magicians, celebrities, and NF Heroes, all combining forces for this important cause: TO MAKE NF VISIBLE! youtu.be/82trEGmZT3g
Image from Children's Tumor Fdn (@ChildrensTumor)
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NF tumors can lead to deafness, blindness, disfigurement, bone abnormalities, learning disabilities, disabling pain, and cancer.#EndNF#neurofibromatosis #nfawarenessmonth
Image from Children's Tumor Fdn (@ChildrensTumor)
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NF causes tumors to grow on nerves throughout the body.#EndNF#neurofibromatosis #NFFacts
Image from Children's Tumor Fdn (@ChildrensTumor)
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When times are tough, as they are now, it helps to focus on our community and our brave NF Heroes, like Oskar N. ctf.org/news/stories-of-nf-o… #endnf
Image from Children's Tumor Fdn (@ChildrensTumor)
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NF Forward retweeted
Jay Farner (@JDFarner) profile picture
Jay Farner@JDFarner17 Mar 2020
Detroit - here is our commitment to you. bit.ly/3d9eBUs
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Supporting our fellow NF org across the Atlantic - Vote on Shine a Light for the People's Choice Award! #endnf
Nerve Tumours UK (@NervetumoursUK) profile pictureNerve Tumours UK@NervetumoursUK11 Feb 2020
Rare Festival 2020 - Vote for us - we need your support in the people's choice award - amazing fesitval and incredible films to raise awareness #EndNF #Film #Charity raredisease.org.uk/rarefilmf…
Image from Nerve Tumours UK (@NervetumoursUK)
Image from Nerve Tumours UK (@NervetumoursUK)
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NF Forward retweeted
Jeff Perry (@JFPerry1) profile picture
Jeff Perry
@JFPerry116 Nov 2019
Over 5.3 million raised last night at the @NFForward beNeFit at Cobo Center. The amount of support from friends, family, and business partners of the Gilbert family is inspiring and heartwarming. I’m grateful to be a part of it all! #endnf
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Today is the first day of NF Awareness Month! There is no cure- that's why we work so hard to educate, raise awareness & money to fund critical research. Stick with us for research updates, ways to get involved, & inspiring stories about people living w/ NF. (@WOdetroit ) #EndNF
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