@PPALSorg

(PPALS) is a non-profit organization committed to supporting the function of Patient Advocacy within the biotech and pharmaceutical industries.

PPALS.org
Joined April 2017
  • Tweets345
  • Following2K
  • Followers987
58Media
Thank you to our own Austin Letcher for your presentation at PPALS! It is an honor to meet and collaborate others passionate about rare disease advocacy! @PPALSorg @amicusrx1
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#PPALSPACT2023 @PPALSorg case study discussion with PAOs, biotech & pharma attendees. Lots of good conversations @SanfordCoRDS @jgersh1115 @bwuebbels @DMLaGreca @RobertTomaino
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#PPALSPACT2023 @SanfordBenF speaking to Industry Intermediate class at Day 2 of @PPALSorg PACT course at @SanfordResearch Great discussion on appropriate interactions with #rarediseasepatientadvocacyorganizations @BarbWuebbels @jgersh1115 @DMLaGreca
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#PPALSPACT2023 @DrDavidPearce discussion on @SanfordResearch on Day 1 of @PPALSorg PACT course. @RobertTomaino @SanfordCoRDS @jgersh1115 @DMLaGreca @BarbWuebbels #patientadvocacyinlifesciences
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Mark Sept 27 for a must attend @_OurOdyssey_ special topic meetup. Thanks @Srotberg15 for being on the program! @PPALSorg @SanfordCoRDS @RobertTomaino @HDYOFeed @EveryLifeOrg @RareAdvocates @CystinosisCRN @livinlavidalopo @One_Rare_ @UpliftingAth #RareDisease #chronicillness
Our Odyssey@_OurOdyssey_14 Sep 2022
Don't miss: Seth Rotberg patient advocate & Co-Founder of Our Odyssey will be guest speaker on Sept. 27th at 5:30 pm ET, "Empowering Yourself and Others as a Patient Advocate" for those impacted by a rare or chronic condition ourodyssey.org/topic-specifi… #RareDisease #chronicillness
A picture of Seth Rotberg and logos for Our Odyssey and Travere. Text says Empowering Yourself and Others as a Patient Advocate.

ALT A picture of Seth Rotberg and logos for Our Odyssey and Travere. Text says Empowering Yourself and Others as a Patient Advocate.

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Young adults (18-35) impacted by rare or chronic conditions 👉Join us! @_OurOdyssey_ hosts free virtual meetups! The next one is Sunday August 28th 4 - 5pm EST Learn more & sign up here: ourodyssey.org/virtual-meet-…… #RareDisease #chronicillness
Image contains picture of a zoom call with smiling participants. Logos for Our Odyssey and Travere. Text says: It's your community. Young Adults aged 18 to 35 impacted by rare or chronic conditions. Join our free virtual meetups.

ALT Image contains picture of a zoom call with smiling participants. Logos for Our Odyssey and Travere. Text says: It's your community. Young Adults aged 18 to 35 impacted by rare or chronic conditions. Join our free virtual meetups.

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Lots of learning, connecting and wonderful discussions were had at #PACT2022. Thank you @PPALSorg & @SanfordCoRDS for a great week!
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"I am so glad we had this time together!" A fabulous group of Patient Advocates at the end of the @SanfordCoRDS @PPALSorg #PACT2022 Great energy & discussions! Thank you to all for a stellar experience! @jgersh1115 @BarbWuebbels @RobertTomaino @SanfordBenF
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It's @michelerhee between 2 Robs @RobertTomaino & @RobLong47 moderating Findi g the Common Ground for @SanfordCoRDS @PPALSorg #PACT2022 Really good conversation! @UpliftingAth @jgersh1115 @BarbWuebbels @DMLaGreca Thanks for your enthusiasm!
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Replying to @michelerhee
@michelerhee leading #patientadvocacyinlifesciences w/ colleagues working in #patientadvocacy function about challenges! @PPALSorg @SanfordCoRDS @jgersh1115 @BarbWuebbels Great conversation!!!
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What an exciting week @Sanford Health & Sanford Research Institute learning, connecting and advancing as Rare Disease Advocates. Thanks to PPALS Founding Board Members, PPALS Team & the Sanford team for hosting us. #PPALS #PACT2022 @Sanford @PPALSorg
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Thanks Rob Long @UpliftingAth sharing how they work with Industry, PAOs and other stakeholders. @SanfordCoRDS @PPALSorg @jgersh1115 @BarbWuebbels @teaminspire @RobertTomaino @DMLaGreca #rarediseases #patientadvocacyinlifesciences #PACT2022
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Day 3 at @SanfordCoRDS @PPALSorg #PACT2022 Discussions on Working with Non-Profits, CSuite, Collaboration with Academia, Nonprofit, Industry & Government, and Finding Our Common Ground. @jgersh1115 @BarbWuebbels @RobertTomaino IT HAS BEEN TERRIFIC!!
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Thanks Jamie Ring for the History of Patient Advocacy at @SanfordCoRDS @PPALSorg #PACT2022 It was indepth, intriguing & Informative. Having historical perspective gives a stronger base for the #patientadvocacyinlifesciences function. @jgersh1115 @BarbWuebbels @BarbWuebbels
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Chris Smith @SmithSolve telling the Industry Introductory participants How to Tell Their Story at the @SanfordCoRDS @PPALSorg #PACT2022 @RobertTomaino @jgersh1115 @BarbWuebbels @DMLaGreca
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Patti Engel @EngageHealthInc shares good advice on hiring vendors/finding partners during @SanfordCoRDS @PPALSorg #PACT2022 Important discussion @RobertTomaino @jgersh1115 @BarbWuebbels #patientadvocacyinlifesciences
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David Eckstein explaining ways for collaboration with the NIH during @SanfordCoRDS @PPALSorg #PACT2022 Thanks David!! @RobertTomaino @jgersh1115 @BarbWuebbels
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Nita Patel from @amicusrx1 leading discussion on ROI #patientadvocacy during @SanfordCoRDS @PPALSorg #PACT2022 Important conversation @RobertTomaino @jgersh1115 @BarbWuebbels #patientadvocacyinlifesciences
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Replying to @SanfordBenF
@SanfordBenF knocking it out of the park discussing @SanfordCoRDS registry @PPALSorg #PACT2022 Captive audience asking fabulous questions @RobertTomaino @jgersh1115 @BarbWuebbels #RareDisease #patientadvocacyinlifesciences
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Replying to @PPALSorg
@PPALSorg @SanfordCoRDS Britta Dornan from @EveryLifeOrg @RareAdvocates sharing great #public policy at #PACT2022. @jgersh1115 @BarbWuebbels @RobertTomaino #RareDisease
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