Creator https://xitter.gq/t.co/pI6DQ8186g FRSA. Frm MacArthur Fellow; VR Fellow KCL; @CombatAmrOrg @AgeofthePhage @WAI_WomenAid @PidaRipley #WorldPhageWeek -see linked websites.
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Joined September 2019
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Poor quality medical records are dangerous re #patientsafety! #LongCovid is a major public health issue that is under-reported, under-counted, under-recognized and under-treated. #cardiotwitter #medtwitter #PPIE #PPI
Working today due to an overflow of patients and here is a very important case:
👉 49-year-old old previously healthy man who ends up with #NSTEMI. Cardiac cath is negative, he is discharged on a beta blocker only.
👉 Following this event, he developed daily symptoms of headache, paresthesia, presyncope, dyspnea and fatigue.
👉 I asked him if he had Covid in the weeks preceding this: sure enough he did - about 12 weeks before the heart attack.
👉 I reviewed all medical records, including from a university hospital in the South ➡️ no mention of #COVID_19 or post-Covid conditions anywhere.
👉 Treatment of this patient did not include any management of #LongCovid and post-Covid cardiovascular conditions.
What do we learn from this case?
🫀 Cardiovascular, autonomic and neurologic manifestations of #Covid are widespread and are often not recognized or coded as such ➡️ will not be tracked in the electronic medical records.
🧠 People are having heart attacks, strokes and blood clots at a young age, which are not counted as post-Covid sequelae ➡️ thus, the real incidence and prevalence of Long Covid and post-Covid conditions are largely underestimated.
💊 Patients are not started on aspirin because "there is no blockage in the arteries," but many patients are in hypercoagulable state (his d-dimer on admission was high) ➡️ at least a daily aspirin might be beneficial
‼️ #LongCovid is a major public health issue that is under-reported, under-counted, under-recognized and under-treated.
#MedTwitter #CardioTwitter #NeuroTwitter
... slowly, the evidence is building. Meanwhile many are struggling to cope with dramatic changes to their health.
Thinking and praying for of ALL #LongCovid struggling survivors this morning. @PidaRipley @WAI_WomenAid
Imperial College of London: 'Long COVID leaves telltale traces in the blood'
'People with long COVID have distinct patterns of inflammation detectable in the blood, which could potentially be targeted with immune therapies.'
imperial.ac.uk/news/252415/l…
How do we define the impact of public involvement in research? How can we monitor it, evaluate it and learn from it?
Take a look at our new topic page on Learning for Involvement to learn more:
learningforinvolvement.org.u…
ALT Impact and evaluation. How do we define the impact of public involvement in research? learningforinvolvement.org.uk
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
Public contributors are often actively engaged in the early stages of research, yet overlooked when it comes to disseminating & implementing findings.
Our Collection makes the case for working with members of the public at every stage of research: evidence.nihr.ac.uk/collecti…
ALT How to involve the public in knowledge mobilisation - read the evidence
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
Well done to this coroner for issuing the prevention of future deaths report to @NHSEngland rather than the Trust. The lack of psychiatric beds is a national scandal that hardly anyone is talking about. bbc.co.uk/news/articles/c2ej…
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
Cuts to prevention like child & family support, domestic violence, homelessness will only increase demand in both short & long term. The real cost lies in the gaps between services, repeated assessment, referrals & system reactivity. Massive change needed! bbc.com/news/articles/clejng…
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
In children and adolescents, consequences of undertreatment or no #treatment of #hypothyroidism in children are poor growth and development, poor performance at school. These may be reversible in children and adolescents if hypothyroidism is treated early with #levothyroxine.
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
We're delighted to see the publication of this impact report from Versus Arthritis, highlighting the work of the Primary Care Centre here at Keele University and featuring how the Impact Accelerator Unit works towards closing the gap between research and patient benefit 👇👇
[1/2] We're excited to share our Primary Care Centre Impact Report which highlights how #research funded by Versus Arthritis, at @KeeleUniversity seeks to address challenges that both people with #arthritis and primary care clinicians, like GPs and physiotherapists, face.
ALT Bold text, left aligned, on a black background that says, 'Primary Care Centre Impact Report.' Below is a white 'Versus Arthritis' logo. Bottom right is a photo, in a circular frame, of a Healthcare Professional supporting a patient doing exercise.
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
Thanks to @BruiningNico and Robert van den Boon for the opportunity to contribute. The article is available in the European Heart Journal - Digital Health (@ESC_Journals x @OUPAcademic), OA, at this link: academic.oup.com/ehjdh/advan…
Risks and benefits of sharing patient information on #SocialMedia: a digital dilemma bit.ly/3UHPY9I
#EHJDigital @BruiningNico @rafavidalperez @charles_driving @Steph_Achenbach
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
It’s not always obvious if someone is struggling with their mental health.
Be kind - you never know what’s going on in someone’s life.
And share this post to help us raise awareness 💙
ALT illustration of an iceberg. The iceberg top half sticks out with an arrow pointing to it saying 'What everyone else sees'. The iceberg bottom section says 'What you may be struggling with'. Title reads: Mental health struggles aren't always visible
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
Do you experience UTIs? We want to hear from you! We're exploring the future of #urinarytractinfection research and we'd love you to help us shape the future of #UTI care. It could be that you attend a meeting or share your views by phone/email #urology #patientexperience
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
With Alt text added! Please share!
Pls share -
Sign up for this webinar taking place on April 11 from 12-1pm ET!
Linda Hunter will present on "Regaining Power and Control Living with Chronic Pain: My Journey as a Patient Research Partner".
Register: bit.ly/43BkQvd
ALT KT Canada Seminar Series Presenter: Linda Hunter Title: Regaining power and control living with chronic pain: My journey as a patient research partner Learning objectives: understand how a patient diagnosis can lead to a journey that ends in patient partnership in research; describe what patient engagement in research really means; explain some common challenges and barriers that frustrate patient partners; examine how you might be more open to patient co-partnership in research. Date: April 11 Time: 12:00-1:00pm Eastern Register with link or QR code.
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
🤷🏻♀️🤷🏻♀️🤷🏻♀️Why do we need a strength training awareness day?
Myself and the strength training academic giants before me have found that -
1. The general public are mostly unaware of strength guidelines and what ‘counts’ as strength training (our science communication needs to improve in this area, @jacksonfyfe has a newsletter and @mackinprof is prolific on social media to help in this area)
2. Some exercise instructors are also unaware of guidelines and how important progressive strength training is for all ages and abilities (@BexTownley and @LaterLifeTrain are working on it)
3. Not all health care professionals feel confident or comfortable discussing the benefits of strength with patients (clinical exercise physiologists @csep_scpe @ClinExPhysUK @CEPAupdates could play a BIG role here)
4. There is room for improvement in the implementation, sustainability, and scale of evidence-based progressive strength training in community settings (projects @STARTwSTRENGTH and @STRONGERaHOME are looking to help here!)
#STAD2024
Together, we are all #StrongEnough to make a change 💪🏻💪🏻💪🏻
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
On national TV, the Prime Minister claimed to have 'resolved' the nursing pay dispute.
This is untrue.
We remain in a formal trade dispute and the government is late with its award for this year.
A letter from @patcullen9 to PM @RishiSunak. 👇
ALT Page one of a letter to the Prime Minister
ALT Page 2 of a letter to the Prime Minister
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
Over 90% of #women diagnosed with endometriosis actually present with #GIsymptoms as their initial symptoms.
Bloating is the most common presenting symptom, and is typically reported by 83% of women with #endometriosis.
I think citizens ought to be very concerned over the appointment to NHSE Board of Mark Bailie (-career of senior leadership in banking, financial & digital services) who worked alongside the NHS on setting up NHS TEST and TRACE during the pandemic! A £37 billion dodgy disaster.
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
pxphub.org/event/webinar-ser…
Please join us at the next Webinar series!! Should be excellent!!
@wecantrain you might be interested in this too 👇
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
ChatGPT just made a diagnosis that 17 doctors over 3 years couldn't make!
A tired mom with a child with a rare disease started entering his symptoms into ChatGPT, which gave a diagnosis for this patient.
She took that information to a neurosurgeon who confirmed the correct diagnosis. This shows the power and the potential of AI, but of course there's still so much work that needs to be done.
These exact algorithms are being utilized by @EveryCure to unlock the full potential of existing medicines, to find treatments for diseases that don't have any.
What do you think are some potential upsides and risks of using generative AI in medicine? #MedTwitter
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
What a sad loss for thyroid patients.
As well as doing desperately needed research, John Midgley shared his wisdom amongst Thyroid UK Health Unlocked community. He helped them understand their condition and treatment, put them on a path to better health, when the NHS didn't help
Sadly, John Midgley, a pioneer in #thyroid diagnostics and co-author of multiple papers by our group, passed away. Read Rudolf Hoermann's (@HoermannRudolf ) obituary at The Guardian:
theguardian.com/society/2024…
@PPIEglobal #GlobalHealthDialogue #PPIE retweeted
Long before I was a doc, I was an EMT. My instructor made us chant a symptom triad, in addition to shortness of breath, often seen w/ blood clots in lung—“anxiety, restlessness, fear of doom”— & I’ll always be grateful. #MedTwitter should memorize it too. Patients deserve better.
Woman died of lung clots four days after being discharged from hospital with anxiety diagnosis
irishtimes.com/crime-law/cou…
