
🙋🏻♀️ Here to listen, curate, & synthesize so people can manage their chronic illness by making informed decisions about their health. 🍎💊📈 #GiveMeMyData
Washington DC
Joined September 2010
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Originally presented by Dr. Tullis of @torontoadultcf , these remarkable trends usher in a #CF #CareModel where learning begins with patients on the edge of medical knowledge. youtu.be/1xuuxvxxjVw
A national pool would solve several problems at once: address insurer churn, enable long-term tracking of patient outcomes, & ensure the federal government’s substantial investment in #genetherapy translates to real-world access.| The Incidental Economist theincidentaleconomist.com/w…
“My philosophy is, you don’t want the job to change you,” Mr. Miller said. “You want to be able to change others on the job — by what you say and what you do.” share.google/HkRlKxnjELBEa4X…
Petrochemicals for #plastic are, “expected to be the largest single driver of oil demand in decades to come. Big Oil keeps drilling to keep making $.Solar & wind - not as profitable, so they’re all in on the current model, and plastic can perpetuate it. theguardian.com/environment/…
Physicians Are Not Providers: The Ethical Significance of Names in Health Care, the American College of Physicians | Annals of Internal Medicine = Physician > Provider; Clinician > Provider acpjournals.org/doi/10.7326/…
magazine.foriowa.org/story.p…
The NIH creates the bedrock on which biomed stands. Yes, the NIH funds disease-specific work, but they also fund curiosity-driven research … ideas & tools often come from scientists studying Qs that seem totally unrelated to human disease. #Science
#AI include:
* Decision support for diagnosing & predicting diseases
* Virtual assistants and automated in-basket tools for responding to patients
* Ambient scribes, documentation tools and coding assistance for reducing admin
* AI-assisted prior auths share.google/TsHGlDexpqfuF83…
Food can only be absorbed after conversion into their basic units: proteins, triglycerides, glucose... If a food has a strong, entangled matrix, this conversion into basic units becomes slow and the nutrients become de facto less bioavailable. #FeedTheGut search.app/yh7sW2CLVqdbrhNW6
I just donated to The Grantsformers Summer Picnic Potluck! Help support Cystic Fibrosis Foundation today! passion.cff.org/the-grantsfo…
Quynh Tran retweeted
I just hope that our government can learn this lesson. Well ventilated buildings are a public health and productivity good.
@IndependentSage consistently advocated for cleaner indoor air from summer 2020 onwards.
Bad air quality and poor ventilation substantially contributed to spreading Covid
7 Lessons learned @ScienceMagazine
science.org/doi/10.1126/scie…
Study examined 9 screening panels and found they accurately identified 95% of white babies w #cysticfibrosis, they missed, on average, 44% of Asian babies, 22% of Black infants and 14% of Hispanic, Native American and Alaskan Native babies. #HealthEquity
nytimes.com/2024/05/29/well/…
I just donated to 2024 Sweat for a Cure! Help support Cystic Fibrosis Foundation today! passion.cff.org/2024-sweat-f…
“… students and licensed physicians prefer an ed model that combines clinical training w info on social services, caregiver support, and community resources. #PCP
Primary care physicians should be at the heart of treating Alzheimer’s statnews.com/2024/03/27/alzh… via @statnews
Having walk-in access to lab for blood draws (with consistently competent phlebotomists) and ease of scheduling with caring clinicians + app for communicating & tracking exchanges & health results with @onemedical has made me less cynical about our healthcare system.
“…for all of the partisanship and division in our culture right now, what I really found is that most folks want the same thing: They want to work hard and put food on the table, and they want their families to be safe and healthy,” Brown 19thnews.org/2024/01/gifford… via @19thnews
“Premature death is > 2x as likely for middle-income Americans as for those at the top of the income ladder, and > 3x as likely for those at the bottom than those at the top.” Nancy E. Adler, Who Linked Wealth to Health, Dies at 77 nytimes.com/2024/01/18/healt…
Treating Opioid Use Disorder in General Practice — Diagnosis, Harm Reduc... youtu.be/BWtDaCSocMk?feature… via @YouTube
"18–27-year-old PwCF had a lower rate of annual preventive visits compared to GP in the same age group of the GP (27% versus 42%)." Preventive service utilization among PwCF covered by private insurance is comparable to the GP - Journal of Cystic Fibrosis cysticfibrosisjournal.com/ar…
Quynh Tran retweeted
Help inform the future of cystic fibrosis care by taking our survey. Information you provide about health-related assets and needs will reveal how CF care can change to meet the needs of people with CF. Take the survey now: on.cff.org/3SsEJRv





