Disabled; European; Embroiderer. 'I do not care what comes after; I have seen the dragons on the wind of morning'. ~ The Farthest Shore - Ursula Le Guin
Joined August 2012
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⚡️ “Goldwork by RSN C&D student Anne Norton”
xitter.gq/i/moments/101777222957…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Excellent letter from Tessa Munt MP in The Times, joining the dots and rightly pointing out Long Covid & ME is costing 0.7% of GDP & how it is decimating young people
Following the German funding model would be moral, wise & cost effective.
ALT Photograph of a letter published in The Times, under the heading “Better ME funding”, written by Tessa Munt MP, chair of the All-Party Parliamentary Group on ME. The letter calls for greater government investment in research into myalgic encephalomyelitis (ME), highlighting the debilitating nature of the illness, the lack of treatments and its impact on young people’s ability to work. It references calls for Andy Burnham to fund ME research, the economic costs of ME and Long Covid, and Germany’s €500 million research investment over ten years.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
“This health issue has nothing out there for you” is the message that needs to get out there. So many people assume that if you develop a life destroying illness, there’ll be doctors, specialists, treatments. There’s absolutely nothing! Zero! We’re on our own, left to rot.
“This health issue has nothing out there for you… There are specialist clinics, but they don’t have any doctors… It’s life decimating. I’m in bed 22 hours of the day”
Former Olympic sprinter @BethDobbin on her letter calling on PM Andy Burnham for more #MECFS research funding.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
There’s an update on Savannah.
She's still in the hospital where they don't take her #severeME seriously and don't follow NICE guidelines. Full update in fundraiser.
Please share or donate if you're able.
gofundme.com/f/severemergenc…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Hi everyone, we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
I can’t believe 360 people signed in just 1 week, so many amazing names and messages still coming in of people wanting to add theirs (so feel free to message to add yours, we’re keeping on the pressure!!!)
The list includes 114 Olympians, with 77 medals between them (and that’s not even including Worlds and Europeans 🤯). Also some huge names from football and many other sports!!
Thank you SO much to everyone that signed, I can’t tell you how much it means to me when I’m truly at rock bottom ❤️❤️❤️
I know everyone wants their issues taken seriously, but this has been neglected like nothing else. WE HAVE 0 APPROVED TREATMENTS!!! Please listen 🙏🏼 @andyburnham @number10gov @UKLabour @DHSCgovuk
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
“This health issue has nothing out there for you… There are specialist clinics, but they don’t have any doctors… It’s life decimating. I’m in bed 22 hours of the day”
Former Olympic sprinter @BethDobbin on her letter calling on PM Andy Burnham for more #MECFS research funding.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
There really is nothing. You finally get a diagnosis and are then just left to it. I remember being told that living with ME would be easier if I just accepted that this was my life now. Why should I accept it when no real effort is being put into solving it? #MEcfs @andyburnham
“This health issue has nothing out there for you… There are specialist clinics, but they don’t have any doctors… It’s life decimating. I’m in bed 22 hours of the day”
Former Olympic sprinter @BethDobbin on her letter calling on PM Andy Burnham for more #MECFS research funding.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Earlier this year I was asked if I’d be part of an international M.E quilt, embroidering a 3.5x3.5” square with whatever I wanted that meant something to me about living with this condition.
It took a long time, stitch by stitch, & cost a lot in energy, but I love it.
#MECFS
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
What absolute rubbish!
Vote Leave did own Brexit.
Johnson, Gove, Cummings and Frost took control, purged Tory dissenters, won an 80-seat majority and chose to leave both the single market and customs union.
They delivered the Brexit they wanted. Its failure cannot now be blamed on Remainers, bats or the public.
“It wasn’t true Brexit” is simply the last refuge of those who sold an undeliverable fantasy.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
"Of course, as there is no effective treatment, it’s a difficult situation for doctors as well as patients. But even worse than no solutions is false solutions & a dangerous, gaslighting, even punitive approach to a terrible disease" George Monbiot
#ME
theguardian.com/commentisfre…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
I'm actually shaking, I can't believe it's been voted down. I'm so proud of every single disabled person who made this happen
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
This might sound small but the fact the bill supporters keep saying ‘people with a disability’ isn’t small. The language of legislation is disabled people.
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
The Assisted Dying Bill's impact assessment confirmed that it lacks protections against coercion for disabled people. In a perfect world, everyone dying should be supported in death, but when disabled people aren't assisted to live, it can't be safe. #AssistUsToLive
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings. - Sign the Petition! c.org/GsgKCMGN8f via @UKChange
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
📢Announcing the launch of the National Disability Movement Archive & Collection (NDMAC)
The archive documents protests that challenged exclusion from public life, while preserving the stories of those whose contribution has often been overlooked.
💥ndmac.org
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Disabled people are burnt out from fighting the same #Eugenics agenda on different fronts. And repeatedly. Victories are short lived, only a temporary reprieve from the fight because @UKLabour are now demonstrating that they want us impoverished, destitute, then dead. #NotDeadYet
ALT Freezing ? Starving? Euthanasia ?
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
DWP PIP saved £950 million last year by people not claiming what they’re entitled to thecanary.co/uk/analysis/202…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
A permanent accessible ramp has been installed inside @York_Minster , marking the largest architectural addition to the building in the last 200 years bbc.co.uk/news/articles/cp8p…
OpusAnneglicanum 🖤 ♿ #MillionsMissing retweeted
Today is #MEAwarenessDay
ME/CFS is often described as neglected and under-researched. That ignores the true history. George Monbiot and Carol Monaghan have described it as one of the greatest medical scandals of the 21st century. They’re right.
