Pro #MUA & #bblogger w/ #chronicillness. I’ve lived yrs being 1 person to some, hiding my ill self Fr. others. It’s time 2 be all of me & w/ that, be relatable.
North East, England
Joined April 2016
- Tweets2.4K
- Following895
- Followers498
- Likes7.7K
Amy Harbottle retweeted
[TW: story about severe ME/CFS]
Some time ago, a person with severe #MECFS requested that I visit with them. It has been a while since I was there and I’m still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)
Amy Harbottle retweeted
I’ve had severe ME for 17 years & have had so many experiences of neglect and abuse in hospitals that I now have a PTSD diagnosis. I don’t know anyone in the severe ME community who doesn’t also have similar horror stories to tell. It’s about time something was done #DontLetMEDie
Amy Harbottle retweeted
We've organised an emergency demo at parliament on 8 March. Too many people with severe ME are dying. The NHS fails too many people with ME. Politicians must act NOW before anyone else comes to harm & before #LongCovid patients are next. Please support #MEAwarenessHour #NEISvoid
Amy Harbottle retweeted
'Sign this petition to help try to save Alice Barrett's life. She's 25 & has #VerySevereME.
She's currently in Royal Devon & Exeter NHS Foundation Trust hospital.
They are refusing to adapt their NG tube feeding policy for her requirements'
#MECFS
#pwME
change.org/p/save-alice-barr…
Amy Harbottle retweeted
Clip from today's debate in Scottish parliament about #MECFS. @SueJWebber shares some powerful words from Jo - @therealmecfs
"Read the reddit threads about #ME or #Fibromyalgia and you will see what [doctors] say of us and our diseases... malingerers, delusional, heartsink..."
Amy Harbottle retweeted
Sign up today!
Thank you so much to everyone who has taken part so far – you can still help us by spreading the word!
If you haven’t yet signed up or completed your questionnaire you can do so here: bit.ly/3gDAX6T
#DecodeME #pwME #MECFS
ALT STAGE 1 QUESTIONNAIRE SIGN UP ON OUR WEBSITE Or contact the team to request a paper version of the Questionnaire Take the DecodeME questionnaire which will ask you about your symptoms and experience of ME/CFS. Which is vital to directing future research. STAGE 2 DNA COLLECTION IF YOU ARE ASKED FOR A SALIVA SAMPLE Don't worry if you are not as you are still a study participant and your questionnaire answers are invaluable. PROVIDE AND POST YOUR SALIVA SAMPLE If you are also asked to provide DNA we'll send you a 'spit kit' in the post and you can post it back to us using the pre-paid parcel. You can post it via any postbox. ANALYSING THE DNA When your sample reaches us, we'll extract your DINA and study it.
Amy Harbottle retweeted
My son has lived through four chancellors, three home secretaries, two prime ministers and two monarchs.
He's four months old.
Amy Harbottle retweeted
We all know the care crisis is disastrous right now but this morning I agreed to go into a care home for a few weeks so my family can have a break from caring. If I had a full care team, I wouldn’t need to do this. If you know anyone near Horsley, Newcastle after a job, hmu 🤙🏻
ALT Hiring carer/PA Job spec: - must have clean driving licence and confident driving WAV - be reliable and understanding - be prepared to be busy Hours/pay - Monday, Tuesday, Saturday & Sunday. Job share available. £10.82 ph Email [email protected]
Amy Harbottle retweeted
No, Liz Truss, younger people on benefits aren’t more able to “adjust” to cuts than pensioners. Disabled people who are in too much pain to get out of bed are no more able to find a job than an 80 year old - and they shouldn’t have to. Divisive and deceitful.
Amy Harbottle retweeted
“The government cannot do everything” is such gaslighting bullshit. The government can literally do whatever is wants. It can help you have decent housing, manageable energy bills, a working hospital, and food in your stomachs. The Tories can do it all - they just don’t want to.
Amy Harbottle retweeted
Research Summary: The Pathology of ME/CFS
A free factsheet that explains what research is telling us about ME/CFS.
meassociation.org.uk/8rsa
#pwME #MECFS #MyalgicE #Research #HealthcareProfessionals #MedTwitter
Amy Harbottle retweeted
🧵
Press release for New Zealand paper:
“New research provides insight into Long COVID and ME: Researchers have uncovered how post-viral fatigue syndromes, including #LongCOVID, become life-changing diseases & why patients suffer frequent relapses”
#MEcfs #CFS #PwME #PwLC
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Amy Harbottle retweeted
Wow. America is moving backwards not forward. Roe vs Wade overturned & it’s a sad day in US history again. I’m so sorry for all the women who will risk their lives to make their own choice because of 5 people who took their voices away. #mybodymychoice
Amy Harbottle retweeted
So it turns out we did find “something in the blood” of #ME/CFS patients: fibrinaloid microclots + hyperactivated platelets (that you can see with your own eyes). Thank you so much to @polybioRF donors who helped support part of the study: researchsquare.com/article/r…
Amy Harbottle retweeted
Are ME/CFS patient advocates 'militant activists'? - as some claim - or are they simply patients unhappy with their treatment, who are legitimately campaigning against a perceived injustice - Dr @crblease and I covered this recurrent rhetoric narrative: pubmed.ncbi.nlm.nih.gov/2997…
Amy Harbottle retweeted
Science could have done a great deal of research in 67 years.
~ Post Infection Illness
Amy Harbottle retweeted
"Sajid Javid’s radical new approach to the debilitating condition myalgic encephalomyelitis was shaped by his experience with a family member."
thetimes.co.uk/article/relat…
Amy Harbottle retweeted
Lee Anderson MP, who today said poor people forced to use foodbanks 'cannot cook or budget properly' claimed £222,000 in expenses in 2020/21 - including £4,100 on travel and 'subsistence'
