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childneph

@childneph

Canadian Childhood Nephrotic Syndrome Project. A national initiative to improve care and outcomes of children with nephrotic syndrome.

Joined March 2017
  • Tweets10
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  • Followers72
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Photo by childneph (@childneph)Photo by childneph (@childneph)
If you have a child between 1 & 18 years with nephrotic syndrome we would love for you to join the @Childneph study. Help us build a registry, find the different treatments used across Canada, & find the best way to provide care to our patients. Email [email protected]
Image from Chronic Disease Care (@ICDC_Research)
Image from Chronic Disease Care (@ICDC_Research)
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Why is there practice variation in pediatric nephrotic syndrome and what does that mean for treatment in Canada? bit.ly/2xpj00y
Image from Chronic Disease Care (@ICDC_Research)
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@childneph research team is inviting patients and families to help us prioritize research efforts in #nephroticsydnrome xitter.gq/ICDC_Research/status/9…
Chronic Disease Care (@ICDC_Research) profile pictureChronic Disease Care@ICDC_Research30 Oct 2017
#MotivationMonday CHILDNEPH is a great example of #patientengagement & listening to what patients & families want. bit.ly/2xir5av
Image from Chronic Disease Care (@ICDC_Research)
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Children with nephrotic syndrome don't have equal access to medications in Canada. @CAPNeph calling for harmonized pediatric drug approvals. xitter.gq/drsamuelcalgary/status…
Susan Samuel (@drsusansamuel) profile pictureSusan Samuel@drsusansamuel13 Jul 2017
Canadian kids with kidney disease deserve equitable access to medication @CSNSCN @CBCHealth @CKRRenal @rheault_m @KidneyCathy @ISNkidneycare xitter.gq/capneph/status/8851950…
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Why is there practice variation in nephrotic syndrome? Qualitative study of pediatric nephrology providers cmajopen.ca/content/5/2/E424… @CAPNeph
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Setting new directions for research in childhood nephrotic syndrome: results from a national workshop in Canada. journals.sagepub.com/doi/ful…
Image from childneph (@childneph)
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CHILDNEPH mid-point data will be presented soon at: 1) Canadian Society of Nephrology Meeting May 6 & IPNA Epidemiology Meeting May 25, 2017
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CHILDNEPH study is recruiting patients with steroid sensitive nephrotic syndrome from 12 Canadian centres, and >200 patients are enrolled.
Image from childneph (@childneph)
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Follow us on Twitter to get updates of the @childneph study. All @CAPNeph members welcome to attend our next meeting in Montreal on May 4.
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CHILDNEPH is now on Twitter! #bettercarefornephroticsyndrome @CAPNeph @CSNSCN @Nephcure @kidneycanada @CIHR_IRSC @UCalgary @UofCr4kids
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