Huntington's disease advocate, blogger, and historian of science, technology, and medicine (aka Kenneth P. Serbin)
San Diego, California, USA
Joined August 2014
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Brain donations from #HuntingtonsDisease patients like Dorlue Schulte to the Harvard Brain Tissue Resource Center are crucial for the cure of neurological disorders but could lose @NIH funding @HDSA @SenMcConnell @SenWarren @Harvard @McLeanHospital @maddow curehd.blogspot.com/2025/07/…
Dr. Jody Corey-Bloom’s succinct, comprehensive, and up-to-the-minute annual overview of Huntington’s disease clinical research and trials. vimeo.com/1024249700
With $1 million grant from @HDFCures @harvardmed Mouro Pinto Lab is deploying CRISPR to target genetic modifiers of somatic expansion in #HuntingtonsDisease, testing an experimental drug in mice to deactivate harmful MLH3 scissors #CureHD @HDSA @Help4HDI curehd.blogspot.com/2024/10/…
Gene Veritas retweeted
A big thank you to Cardinal Blase Cupich for presenting his Holy Father with a personalized copy of Profiles in Mental Health Courage!!
At symposium Hereditary Disease Foundation @HDFCures featured an interview with Michael about how he navigates #HuntingtonsDisease with joy, inner strength. “You’re a hero!” declared @FoxTacie. #CureHD @HDSA @Help4HDI @Neurocrine @Ionispharma @PTCBio curehd.blogspot.com/2024/08/…
Learn how San Diego’s @Neurocrine developed INGREZZA for #HuntingtonsDisease chorea, how it compares to Xenazine, Austedo curehd.blogspot.com/2024/07/… @HDSA @Help4HDI @Pontifex @GavinNewsom @ToddGloria @biocom
Louise Vetter is resigning as head of HDSA. It's critical for the HD community to find a superb successor.
📢 A message from Louise Vetter, President & CEO of HDSA.
To read the full message, please visit: hdsa.org/wp-content/uploads/…
#HDSA #HuntingtonsDisease
Impactful @XWilliamYang1 Research Group @UCLA employs a multi-pronged effort to investigate potential therapeutic targets for #HuntingtonsDisease, spurs hope #HDAwarenessMonth #CureHDNow @HDSA @Help4HDI @Pontifex @POTUS @Roche @Ionispharma curehd.blogspot.com/2024/05/…
A crucial interview with @RobertPacifici of CHDI Foundation about the fight to cure #HuntingtonsDisease #CureHDNow @hdfcures @HDSA @HuntingtonSG @Help4HDI @Roche @PTCBio @uniQure_NV @VertexPharma @NIH @NYTimes @statnews vimeo.com/918568167
After “terrific” conference, CHDI Foundation head scientist declares that #HuntingtonsDisease community will “get there” in search for therapies. #CureHDNow @Pontifex @POTUS @HDSA @Help4HDI @Roche @PTCBio @uniQure_NV @VertexPharma @NIH @NYTimes @statnews
curehd.blogspot.com/2024/03/…
Gene Veritas retweeted
In this review article, Dr Jenny Morton of @Cambridge_Uni argues that studies in HD animals provide compelling evidence that sleep and circadian deficits should be better studied in humans.
➡️content.iospress.com/article…
#Huntingtonsdisease #Sleep #HDResearch
Gene Veritas retweeted
It is not necessary to be wealthy to do good. Rather, it is almost always common people who devote their time, skills and heart to caring for others. #ApostolicJourney #Mongolia
After @US_FDA approval of once-daily INGREZZA for chorea in #HuntingtonsDisease @Neurocrine vows to seek disease-modifying therapies. #CureHDNow @Pontifex @HDSA @HuntingtonSG @NIH curehd.blogspot.com/2023/08/…
Alarming, heartbreaking destruction by @Lahaina wildfires a reminder to strive for human solidarity, peace, and ensure resources to conquer devastating disorders like #HuntingtonsDisease, #Alzheimers #CureHDNow @Pontifex @POTUS @SecBecerra @NIH @HDSA @Maui curehd.blogspot.com/2023/08/…
This holiday season with fears of World War III and millions needing cures for neurological disorders, cancer, and other maladies let people everywhere and their leaders embrace a new global ethic of #FightDiseaseNotWar @Pontifex @JoeBiden @KremlinRussia_E curehd.blogspot.com/2022/12/…
Journal of Huntington’s Disease @journal_hd published my article “Striving for a Realistic and Unapologetic View of #HuntingtonsDisease,” about my blog: since 2005 321 articles giving voice to HD community, exploring history of the cause. #LetsTalkAboutHD content.iospress.com/article…
Gene Veritas retweeted
Tell your #Representatives & #Senators to ACT NOW to make sure the #HDParityAct is passed before the end of the year to remove the 2 year waiting period for #Medicare for people with #HuntingtonsDisease.
➡️HDSA.org/takeaction
#LetsTalkAboutHD #HDSAFamily #PasstheHDParityAct
Gene Veritas retweeted
Ionis announces European Medicines Agency accepts Marketing Authorization Application of tofersen to treat rare, genetic form of ALS $IONS prn.to/3H6ZBbl
Dr. Jody Corey-Bloom’s annual comprehensive and up-to-the-minute #Huntingtonsdisease research update: therapies inching ever closer to reality @HDSA @jcoreybloom @ucsd_hdcrc @Roche @SageBiotech @neurocrine @uniQure_NV
vimeo.com/774452745
Ten years out of the terrible and lonely #HuntingtonsDisease closet, going public made me a more effective – and convincing – advocate. @PTCBio, @Roche have intensified the quest for treatments. curehd.blogspot.com/2022/11/… @Blackstone @HDSA @HDFCures @IonisPharma @UofSanDiego @NSF